Discussions By Condition: I cannot get a diagnosis.

Head twitches, headaches, waves of lightheadedness, throat tightness

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: CharmedOneTAR
  • January 7, 2009
  • 00:05 AM

I am 16, and I have had headaches everyday, from the time I wake up to the time I go to bed every day, for the past four years. I also get migraines at least once a week, even during summer vacation.
Because I have had my headaches for so long (which normally means it is harmless), the two doctors I have seen basically brushed me off as not important.

I did have all sorts of blood tests done, and I have no vitamin deficiences, thyroid problems, hypoglycemia, or anemia.

This is likely unrelated, but seven to eight months ago, I began getting cramps in my calves, but I drink quite a bit of water, so I don't think it is dehydration. My neck has also been twitching recently, causing my head to turn slightly to the side. It happens very frequently (once every few minutes), and it is embarrassing.

Within the past four months, I have developed some symptoms that I consider odd. First, whenever I get tired at night, I get nausea (sp?), and when I am very tired in the morning, my eyes shake very slightly.
Also, since school started, I have constantly felt like I cannot get enough air (like that feeling in the back of your throat when you hold your breath for 10-20 seconds). When I told my doctor this, he said it was all stress-related.

Just this past month, I have been getting waves of lightheadedness that last fractions of a second and I constantly see auras around things. When I see something move in slow motion (and it looks like a stop-and-go motion) or see different colors blinking rapidly, I have waves of lightheadedness that go perfectly in time with what is causing it (like each time the color blinks).

I didn't notice this until today (and this probably sounds crazy), but when I shake my head rapidly, I hear a wobbling sound in the back of my head (not my neck).

My mom (after taking me to the doctor twice) thinks I am making this up to get attention.

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4 Replies:

  • Do you see a neurologist for your migraines? Have you told him/her of all of your symptoms? Do you eat well? Anorexia and bulemia can bring on some of your symptoms. No one should suffer from migraines for four years! I think you are very brave to have faced that. :) One thing that I thought of is called a patent foramen ovale, or a little hole in the heart. It is normally no big deal. But it rare cases it might cause migraines, shortness of breath and calf cramps. Have a look here: http://www.sciencedaily.com/releases/2007/04/070419212654.htm Don't get too worried about it, please. It's usually not dangerous, just something you and your family should think about and ask the doctor about.
    aquila 1263 Replies
    • January 7, 2009
    • 08:54 PM
    • 0
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  • I forgot to mention (this is likely irrelevant as well): I had mono this past summer. The only time in my life I have ever had a CAT scan was when I was less than 1 year old. The CAT scan showed that I had enlarged ventricles in my brain, but it fixed itself before the doctors needed to do anything about it. I try to eat as healthy as I can (I eat a lot of fruits, vegetables, and usually grains as well, but I don't like grains too much) and I rarely eat foods with a lot of sugar. I try to eat enough meat, but I usually don't :o I have been sick more this past year than I have ever been in my life. I had the flu quite badly in February, two sinus infections, and a stomach virus (I haven't had a stomach virus for more than ten years other than that) My pediatrician told me to take 3 motrin three times a day, and if my headaches don't improve in three months, he would send me to a neurologist. I didn't start complaining about my headaches until last year, so my mom naturally assumed that just because I didn't complain, there was nothing wrong. I thought it was something everyone had to deal with, and I would be weak for thinking I shouldn't have to be in pain. I still don't know how much pain is normal. I will definitely look into your suggestion! Thank you so much for caring!
    CharmedOneTAR 4 Replies
    • January 7, 2009
    • 11:16 PM
    • 0
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  • I would insist on an MRI of your brain to rule out a lesion/tumor. You want to get a tumor out asap!
    Anonymous 42789 Replies Flag this Response
  • Before getting lots of tests done, simply go to a chiropractor. Lots of headaches can be caused from spinal and neck issues. My sister had similar symptoms, went to the chiropractor. He adjusted her back and neck very gently, twice a week for two weeks, and the headaches completely disappeared. She stopped going and they came back. Just a thought before you cost your insurance lots of money or worry about a tumor when there could be a simple answer. Best of luck!
    Anonymous 42789 Replies
    • November 30, 2010
    • 08:00 AM
    • 0
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