Discussions By Condition: I cannot get a diagnosis.

Head pressure, loss of focus

Posted In: I cannot get a diagnosis. 20 Replies
  • Posted By: Concerned777
  • October 2, 2008
  • 03:33 PM

I am a 26yr. old female who has been experiencing lots of head pressure. Not necessarily headaches, just pressure. Sometimes light-headedness, dizziness, even a flushed face. Also, lack of focus or concentration even difficulty recalling during the episodes. They come and go, sometimes last all day. Ibuprofen doesn't really help. Some pain, and the pressure is mostly at the temples and the top of my head. Occasional pain at back of head. I never know when they're going to hit, and they make it difficult to operate. It's been almost a year, and they're progressively becoming more frequent. I was concerned that it might be an infection of some type, or tumor/cyst, hypertension, tension headache, migraine. Most of these seem to be associated with nausea/vomitting or some other unrelated cause. I just don't fit the bill. I'd much appreciate advice, suggestions, or first-hand accounts. Thanks.

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  • My boyfriend is actually going through the exact same thing right now. He's 27 years old and has been feeling this way for going on 6 weeks. He describes it as pain behind his eyes and at the very back of his head and lots of head pressure all over. He says he has a hard time focusing on anything and feels like he's half dead and just not himself. He's had an MRI which was clear and has seen 4 different doctors, one of which is a neurologist and no one can figure out what's wrong with him. His neurologist prescribed him medicine for anxiety but this doesn't seem to fit what's going on with him and the medicine is not helpful. So far no pain medication or anything else has worked. We just don't know what to do at this point as it's interferring with his normal life and is causing minor depression. IF anyone knows of what this could be or has any advice, please help!
    Anonymous 42789 Replies
    • October 2, 2008
    • 11:41 PM
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  • Wow. I really thought I was alone on this one. When I describe these symptoms to people, they assume it's a minor headache-you know, take tylenol. Please. I know a minor headache from a severe one and the difference between pressure and pain. It's not normal, and scares me a little bit. I was misdiagnosed with trigeminal neuralgia in 2005 (by 2 neurologists, mind you)-they had me on 900mg of Tegretol (an anti-seizure) and various narcotics for the excrutiating pain(neither of which really helped). I was also pregnant at the time. I too, had an MRI. Everything was 'normal'. I did some research, and tried arguing with the doctors that it might be my teeth. They laughed and said 'Your belly and teeth aren't connected'. Well, despite my suicidal state, I managed to hang in their for my baby girl and son. I gave birth in Oct. 2005, (I stopped the meds sometime before labor), and wouldn't you know, the pains were gone shortly after. I saw an oral surgeon, and was told I needed 6 teeth pulled. Don't count on just neurologists. If the medication doesn't work, tell them you want to stop taking it. Tell them to stop addressing the symptoms, and find the cause. Do some research online and start ruling different causes out. That's what I'm doing. I'm looking into everything from tumors to infections, brain/spinal fluid increase and cysts etc. If I come across anything that looks like it fits, I'll let you know. Meanwhile, I've been noticing that it seems to be worse when I'm near the computer. There was a fellow replying to one of these threads, saying that it might be sensitivity to electronics-comp., microwave, etc. Have you recently moved near a lot of power lines, used the cell/microwaved more often?He also lists a website to visit. I'll look it up, and post it here. For now, have him try to stay away from these things for a day or two. See if it helps. -Also, does he have eye/vision problems? It could be it, too. Good luck, and check back.
    Concerned777 8 Replies
    • October 4, 2008
    • 02:34 PM
    • 0
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  • Wow. I really thought I was alone on this one. When I describe these symptoms to people, they assume it's a minor headache-you know, take tylenol. Please. I know a minor headache from a severe one and the difference between pressure and pain. It's not normal, and scares me a little bit. I was misdiagnosed with trigeminal neuralgia in 2005 (by 2 neurologists, mind you)-they had me on 900mg of Tegretol a day (an anti-seizure) and various narcotics for the excrutiating pain(neither of which really helped). I was also pregnant at the time. I too, had an MRI. Everything was 'normal'. I did some research, and tried arguing with the doctors that it might be my teeth. They laughed and said 'Your belly and teeth aren't connected'. Well, despite my suicidal state, I managed to hang in their for my baby girl and son. I gave birth in Oct. 2005, (I stopped the meds sometime before labor), and wouldn't you know, the pains were gone shortly after. I saw an oral surgeon, and was told I needed 6 teeth pulled. Have his teeth checked. There are 12 cranial nerves, the fifth of which is the trigeminal nerve. It is the eye/face nerve, and is seriously affected by teeth, as I said. Even if you don't have insurance, it's worth paying cash for an opinion/exam. If it is his teeth, most dentists/oral surgeons have payment plans. Don't count on just neurologists. If the medication doesn't work, tell them you want to stop taking it. Tell them to stop addressing the symptoms, and find the cause. Be aggressive. Doctors will recommend meds of the particular drug co. they are affiliated with. Do some research online and start ruling different causes out. That's what I'm doing. I'm looking into everything from tumors to infections, brain/spinal fluid increase,cysts, bp problems and my teeth again. If I come across anything that looks like it fits, I'll let you know. Meanwhile, I've been noticing that it seems to be worse when I'm near the computer. There was a fellow replying to one of these threads, saying that it might be sensitivity to electronics-comp., microwave, etc. Have you recently moved near a lot of power lines, used the cell/microwaved more often?He also lists a website to visit. I'll look it up, and post it here. For now, have him try to stay away from these things for a day or two. See if it helps. -Also, does he have eye/vision problems? That could be it, too. Good luck, and check back.
    Concerned777 8 Replies
    • October 4, 2008
    • 03:35 PM
    • 0
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  • -Duplicate message-
    Concerned777 8 Replies
    • October 4, 2008
    • 03:42 PM
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  • Be aggressive in your own treatment/diagnosis. Have him see a dentist. If you don't have ins., it's worth paying cash for opinion/exam. If you need treatment, most oral surgeons/dentists have payment plans.
    Concerned777 8 Replies
    • October 4, 2008
    • 03:52 PM
    • 0
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  • Don't forget that some of the testing done may not have been sensitive enough for a good answer. Therefore retesting with particular labs MIGHT be a good idea. If you can't find answers, check out more about Lyme Disease and other tick borne diseases. It took me many years of misdiagnosis to find a diagnosis and start treatment. My symptoms were not what most "doctors" would consider Lyme Disease symptoms. Along with lots of other symptoms, I had the headaches of all kinds and head pressure, etc. for 8 years straight. The updated information is now saying these symptoms can be tick borne diseases. If you don't find answers, check out www.lymenet.org. It can't hurt to look for knowledge while you are trying to feel better. Good luck. Email me if you wish.
    Anonymous 42789 Replies
    • October 4, 2008
    • 06:34 PM
    • 0
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  • Okay, these symptoms have absolutely nothing in common with Lyme disease and it's entirely unnecessary for you to follow the link to those sites for the purpose of indoctorination into supporting their cause with donations or any other participation, up to and including demands that your doctor test you for lyme disease. It is unwarranted and medically unnecessary. It appears that the individual posting these summations is doing so in the entire absence of any medical relevance to the symptoms being described on this forum. To your inquiry, migrainous headaches do not necessarily have to follow the characteristic prodrome that you've described. In your case, however, the symptoms are typically more associated with stress and or anxiety. Realize that this does not mean that it's all in your head or that the symptoms are somehow imaginary. To the contrary, symptoms of actual anxiety disorder are very real and constitute sometimes abrupt changes in physiological processes that patients misconstrue as possible signs of disease. It's also very critical not to confuse the sensations of mere situational anxiety with those of anxiety disorder with somatic features. They are not one in the same and most all patients with somatic anxiety exclaim "It's not anxiety because I don't feel anxious!" These same physiological features can also be induced by certain medications as well. Also be aware that brain tumors and such do not present themselves in the fashion of the symptoms you describe. Best regards, J Cottle, MD
    JCottleMD 580 Replies
    • October 4, 2008
    • 08:56 PM
    • 0
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  • Headache caused by stress is often described by the patients as ”wearing a hat which is too small”. It does not have anything to do with anxiety. This can sometimes result in pressing or grinding your teeth, especially at night. In such cases a night guard can relieve the symptoms within a couple of days. I hope you will find relief soon! Good luck!
    Felsen 510 Replies
    • October 4, 2008
    • 10:40 PM
    • 0
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  • I will say first. I AM NOT A DOCTOR. It is interesting to me that some people say that these symptoms have nothing to do with Lyme Disease, when there is two definite sides to the Lyme question. Those who believe it is an easy fix and has a few symptoms and those who believe there is more to it and more symptoms can be possible. In my personal experience as a sufferer with a migraine headache and other headaches for a straight 8 years, I can say, I done all the dental testing and fixes, head/brain testing with no answers UNTIL I got treatment for Lyme and Babesiosis. Babesiosis can cause headaches because it robs you of available O2 and other reasons. If you look up the symptoms on most ANY Lyme Symptom LIST... you will find, HEADACHE! Let's not throw out the baby with the bathwater. Denying the possibilities is not very prudent. Who is this person who is sooooooo darn sure of what is or is NOT lyme?What are your beliefs/impressions of what are Lyme symptoms? And what is your belief as to how it is treated? And why so adamant about not allowing forum member links to possible answers? Aren't we here for answers or at least possibilities?
    Anonymous 42789 Replies
    • October 5, 2008
    • 00:27 AM
    • 0
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  • I'm a 28 y-o male experiencing very similar symptoms.Over a year ago I did experience a migraine, it had all the migraine characteristics: nausea, tunnel vision, blurry vision, sharp stabbing pain, etc. For more than 2 months following that one day migraine I experienced a type of headache isolated in the left hemisphere of my brain, it included some dizziness but mostly a fluctuating sensation of both numbness/tingling to pressure and throbbing. Over a year later I am still having daily headaches lasting all day in waves. Throbbing, pressure, numbness, tingling. And now it is accompanied with episodes of dizziness and almost syncope as if i'm about to faint. I've also experienced a couple of moments of confusion about my whereabouts and lost track of projects I'm working on. The worst part is it is now producing a depression - I love life, love living, have never really dealt with depression before but now I've forgotten what it feels like to feel "normal" and it makes me feel like the walking dead to deal with this pain and physical disorientation everyday.I've been to both a general practitioner and a neurologist. I've been put on Midrin, Imitrex, and now Methocarmbomol (muscle relaxer) - the migraine medications make my headaches worse and the muscle relaxer just makes me drowsy without alleviating any of the problem. The neurologist was stumped and suggested a possible MRI but I have a strong inclination that it is going to show nothing unusual. I don't have fatigue, consistent morning headaches, or the other symptoms that indicate tumors/cancer. Besides that I'm uninsured and unemployed and can't afford a $2k-3k scan. Has anyone had any luck with a diagnosis yet? Are we just a new type of disease/disorder appearing in young 20-30somethings? I'm quite certain it isn't stress - I'm a laid back person and have learned to deal with any stress that comes my way. I've tried different sleeping positions, situations, pillows, etc - no bueno.
    Anonymous 42789 Replies
    • October 5, 2008
    • 00:41 AM
    • 0
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  • Hello, everyone. Thanks for your input and sharing your stories, I really appreciate it. I find myself being told a lot, that it's likely stress. I know mental/emotional stress and one's physical well being run hand in hand. I also know that given the economy outlook, job losses, foreclosures and the war casualties-high stress levels are taking their toll on all of us. Admittedly, I am under a lot of stress-have been for a long time. So is everybody in my family, as I'm sure are all of you. I don't doubt that it could be stress-I'm just not sure it's a 'one-label-fits-all'. For those of us whose symptoms are stress related, what do you do? Relax? Find a job? Take a wonder drug? I have been trying to reduce my stress level to see the effects it will have on me. Hoping my symptoms will subside. Hoping to pass it on. Problem is, I can't figure out how. The reasons I'm under stress haven't resolved. How can I put those 'aside' to heal? If it is stress, and it won't subside until the causes are resolved, then my concern would be about the symptoms compounding(like one of you mentioned, depression). I'm already experiencing more symptoms than I care to admit. Recently the symptoms were so bad, I spent almost the whole day trying to pacify them-Advil, sleep, counterpressure, silence, darkness. Lately, it seems like focusing/concentration triggers the onset of symptoms. Anybody else? Have you noticed what triggers it, or is there nothing apparently specific?I also can't have coffee anymore. Caffeine? Maybe. I tried decaf. Same thing. It feels like an instant 'brain attack'. Pain and pressure. I'm thinking now it may be the acid level. I'm going to try 'low acid'. My quality of life has gone way down, I just wanna beat this thing. One of you also mentioned 'panic/anxiety disorder'. I have a family member recently diagnosed with it, the symptoms differ considerably. She has fear related symptoms, like an overwhelming sense of doom/impending death, when no danger is present, increased heart rate/hyperventilating and symptoms that resemble those of a heart attack (traditionally treated with anti-anxiety/depression meds and/or psychotherapy). Thanks anyways. I'm going to keep searching, and I'm all ears (eyes). Take care.
    Concerned777 8 Replies
    • October 6, 2008
    • 02:14 AM
    • 0
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  • Wow weird I have the same problem.....And it is worse on the weekends when I am on the computer all morning. I cannot focus and have been having these problems for a year now. I had a root canal that went bad and had to have it pulled. The dentist gave me some antibiotics and I couldn't think ...my head is buzzing....i thought it was the antibiotics but its been a year and i am still having this happen almost daily. I have asthma and allergies and....thought OK maybe I am hyperventilating or something... I don't know anymore.....but it is scary....I cannot think or remember anything anymore, It takes me forever to process what people are saying to me...just little thing they are saying.....I feel retarded. It gets so bad its like someone has there hands around my neck.....just weird stuff..Oh ya....when it gets real bad...my legs will start jumping.
    Anonymous 42789 Replies
    • October 12, 2008
    • 02:37 PM
    • 0
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  • Hi, I went through a similar situation and I told my general doctor and he said I was hillusinating but then it got worse to the point that I was doing strange things without my will and they diagnosed it as a strange seizure but then a student doctor asked for me to get an MRI and they found a brain tumor in my head the size of a lemon and I then went from that to 2 brain surgerys, 2 years of chemo and 6 weeks of radiation. Now I am a cancer survivor....don't listen to your doctor go for the MRI PLEASE YOU WILL NOT REGRET IT
    Anonymous 42789 Replies Flag this Response
  • Hello, everyone. Thanks for your input and sharing your stories, I really appreciate it. I find myself being told a lot, that it's likely stress. I know mental/emotional stress and one's physical well being run hand in hand. I also know that given the economy outlook, job losses, foreclosures and the war casualties-high stress levels are taking their toll on all of us. Admittedly, I am under a lot of stress-have been for a long time. So is everybody in my family, as I'm sure are all of you. I don't doubt that it could be stress-I'm just not sure it's a 'one-label-fits-all'. For those of us whose symptoms are stress related, what do you do? Relax? Find a job? Take a wonder drug? I have been trying to reduce my stress level to see the effects it will have on me. Hoping my symptoms will subside. Hoping to pass it on. Problem is, I can't figure out how. The reasons I'm under stress haven't resolved. How can I put those 'aside' to heal? If it is stress, and it won't subside until the causes are resolved, then my concern would be about the symptoms compounding(like one of you mentioned, depression). I'm already experiencing more symptoms than I care to admit. Recently the symptoms were so bad, I spent almost the whole day trying to pacify them-Advil, sleep, counterpressure, silence, darkness. Lately, it seems like focusing/concentration triggers the onset of symptoms. Anybody else? Have you noticed what triggers it, or is there nothing apparently specific?I also can't have coffee anymore. Caffeine? Maybe. I tried decaf. Same thing. It feels like an instant 'brain attack'. Pain and pressure. I'm thinking now it may be the acid level. I'm going to try 'low acid'. My quality of life has gone way down, I just wanna beat this thing. One of you also mentioned 'panic/anxiety disorder'. I have a family member recently diagnosed with it, the symptoms differ considerably. She has fear related symptoms, like an overwhelming sense of doom/impending death, when no danger is present, increased heart rate/hyperventilating and symptoms that resemble those of a heart attack (traditionally treated with anti-anxiety/depression meds and/or psychotherapy). Thanks anyways. I'm going to keep searching, and I'm all ears (eyes). Take care.Concerned777 - have you found anything yet? I have been suffering from the same symptoms for almost a year now except mine include loss of vision and complete face numbness. I have had an MRI and seen a neurologist and just havent had any luck trying to find an answer. I just feel stupid all the time and cannot focus at work anymore. This all started after I had my child and was told to give it a few months and my hormones would work themselves out..... well they haventIi guess because its still happening. Please let me know if you foud a cure!!
    Anonymous 42789 Replies Flag this Response
  • Is it a surprise attack in the brain?I have the same symptoms that you have.
    riden344 14 Replies Flag this Response
  • Well. I do think that exercising our brain or sort sometimes helps to relieve this type of symtoms. However, its only temporary...and I do not think its permanent..I still suffer from the same "situation." I think I should blame the computer though. More I am off, better I am. I am not sure. I will be back with more results.
    Anonymous 42789 Replies Flag this Response
  • My boyfriend is actually going through the exact same thing right now. He's 27 years old and has been feeling this way for going on 6 weeks. He describes it as pain behind his eyes and at the very back of his head and lots of head pressure all over. He says he has a hard time focusing on anything and feels like he's half dead and just not himself. He's had an MRI which was clear and has seen 4 different doctors, one of which is a neurologist and no one can figure out what's wrong with him. His neurologist prescribed him medicine for anxiety but this doesn't seem to fit what's going on with him and the medicine is not helpful. So far no pain medication or anything else has worked. We just don't know what to do at this point as it's interferring with his normal life and is causing minor depression. IF anyone knows of what this could be or has any advice, please help!hes having classic cyst symptoms. u must aquire the mri sheet with technical info and see if cyst is on there, doesnt mean he dont have one just because it says everything is normal. u have to check for that and ask doctors to if there was acyst. there is big political cospiracy where doctors dont recognize cysts for money polital reasons. u must research cysts.
    temp85 1 Replies
    • August 26, 2012
    • 02:07 AM
    • 0
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  • Hi Guys. You reminded my early times of this problems.I am not a doctor but i am almost sure i am better than many md's about this because i have been searching for 15 years .Lets start with symptoms.1-Pressure in the sculp ,sometimes with burning sensetions.Focusing on anything, using computers,eading a book, praying to God with whole heart,sometimes pushing in the restroom :) e.t.c. may worsen this presure and burning sensetions. 2- Muscles gets hard.. your whole body, especially your chest may burn.Your neck get so hard that you get pain.3-Your eyes are too sensitive to light and if it get worse your five senses become too sensitive.you cant stand to noise.4-Sudden falling sensetion may happen and sudden diziness 5- if you dont relax on time your eyes may get red and you feel sleepy or opposit you mey not be abÅŸe to sleep.You may even have hypnic jerks ...it gets worse..you may get hypnic jerks everyday.6- You start to worry too much and your all day becomes a torturment.
    Anonymous 1 Replies Flag this Response
  • Second part.We talked about the symptoms counted 6 symps i guess. well... Doctors will say you have Anxiety disorder.Most probably your doc will prescribe you benzodiazephine group drugs like xanax,lorazepam,clonopin. clonopin is best among them but do not take it daily if your anxiety is chronic.Because your body will get used to it and it wont effect much after sometime , plus you will be highly addicted to that drug and withdrawal is very difficult.So take it when you really need it because this drugs will not cure you.They are just semptomatic treatment and when you dont feel anxious it wont have any benefit for you.Also never take more than prescribed since its addictive.Addition to this they will give you SSRI group antidepresants like prosac but it wont help you unless you are depressed as well.Drug companies claim that antidepresants helps anxiety but they have no proof:) Benzodiazepin groups help you because it helps GABA reseptors so Gababentine will help you too.Ask your doc
    Anonymous 1 Replies Flag this Response
  • This is Third part.. If you ask me there is no such Sickness as ANXIETY.Anxiety is just a name for the total symptoms of your problem.Brain is full of secrets and so few things are known yet.So you dont rely on only mediction.Always watch your cortisol levels.Do not take cafeine at nights, lower suger and carbohydrates.Get your tyroid hormones checked.Stay away computers when you are tired.Discharge your body with taking a shower.Learn how to relax.
    Anonymous 1 Replies Flag this Response
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