Discussions By Condition: I cannot get a diagnosis.

Head, hand and face swelling.

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: puffed daddy
  • January 1, 2008
  • 09:31 PM

:( For the past year my fingers and hands have been swollen and have become white and numb in cold weather. I was diognosed with reynards disease but this could not explain the swelling. Six months later my face and head began to swell to a point where I could not open my eyes hence my user name. My neck and shoulders became stiff which is unusual as I have a manual job. I have also been suffering from dry skin on my face and I am not healing well from small cuts especially on my face and hands. Over the past 6 months I have had various repeated blood tests, ultrasound scans for all major organs, and x-rays for head, neck and shoulders. A diognosis has not been reached. All of these symptoms occur significantly more when I am not so active such as holidays and when I first wake up but the swelling reduces as the morning progresses.
Does anybody have any ideas whats wrong with me as this is driving me insane?

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2 Replies:

  • I like your username! Yes, I have a suggestion. Ask your doctor if he or she has looked at angioedema as a possible cause. This problem can be caused by allergies, but it can also be an inherited blood disease. It can be very serious, so you need to get to a doctor to be evaluated. Take a picture of your swelling so your doctors can see what you have going on. You will want to see an allergist. In some cases, there are no tests for angioedema. If you have tests and they all come back normal, this doesn't mean you don't have it. Good luck!
    aquila 1,263 Replies
    • January 4, 2008
    • 05:52 PM
    • 0
    Flag this Response
  • You may want to see if your doctor will check for lupus (SLE).... Hope you are better.
    Anonymous 42,789 Replies Flag this Response
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