My wife has been to 2 neuros and several doctors, had 3 MRIs (brain and spine and a ton of blood work done,
I would appreciate any suggest or other things I could research. Searching for
some kind of answer.
My wife has attacks every 2-3 weeks as described below:
While we were eating at a restaurant on Sunday she said her stomach hurt and
she did not "feel right". About 2-3 minutes later her head dropped and rolled
around as if her neck muscles were not able to support the weight.
While helping her walk out of the restaurant the weakness went to the rest of
her body and she dropped. There was no warning for the collapse.
She had to be carried out.
We eventually got her into the car and started home so that we could let her
During the drive she had another attack or a continuation of the previous one.
This time I was able to see some symptoms that I have not noticed before.
Her head dropped again and began to roll left to right while her
head was facing downward.
I picked her head up to help support and stop it from rolling. I saw that her
jaw also dropped and her face muscles were twitching. I would describe her
expression as a snarl. Her right lip raised and her right nostril flared.
Both arms were also jumping up and down quickly bending from the elbow like an arm curl.
She was conscious and was able to talk during the episode but was not completely lucid.
When we got home I gave her 50 mg of Trazodone and later another 50mg. This seem to help some so that what we do.
She was able to walk about 45 minutes later with some assistance and remained weak the
rest of the day.
There is no trigger for the episode that I can come up with. No similarities between the
previous attacks time of day, eating, activity, etc.
Problem has been on going for about 1 yr.
If you have any suggestions I would greatly appreciated it.
Recognize the risks associated with Crohn’s disease.
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