Discussions By Condition: I cannot get a diagnosis.

having trouble with diagnosis

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: kschjf2001
  • September 27, 2007
  • 05:15 AM

I started loosing weight about 4-5 months ago. Not intentionally. I have now lost around 25 lbs. Weighing 104 lbs. Constipated most of the time and have to take a laxative to help or I start feeling nauseated with dry heaves. I have had low levels of amylase and lipase levels for over a year or two now with CRP slightly elevated & the same with sed rate. Was diagnosed with Sjogren's Syndrome a couple of years ago from a lip biopsy. I had acute Pancreatitis back in 1994 and had an ERCP which showed the common bile duct was blocked. I had my gall bladder removed back in 1987 due to sludge. I had two cervical fusions and have chronic neck and thoracic pain. My GI doctor did a colonoscopy on me back in June and it was fine other than for internal hemorroids. He got very concerned over my weight loss and decided to send me back to the physician that did the ERCP 12 years ago because he thought he would take a more aggressive approach to find out what is going on. This physician told me that they do not do ERCP on people like me anymore. That MRCP is just as effective in finding problems with the pancrease. NOW, this is where I am getting confused. His blood tests were normal and the MRCP was normal. So now he thinks this is a bowel issue from the constipation or depression related. I'll have to admit that I am starting to get a little frustrated from not knowing. But everything I have read tells me that if I have had pancreatitis in the past with my gallbladder removed, that things just get more complicated and I could have chronic pancreatitis now and that's why I have mild midepigastric pain, nausea and low levels of pancreatic enzymes. But, I'm not being told this by the doctor. I was also told that it could be autoimmune pancreatitis by my GI doctor. But instead, I'm feeling like that this specialist thinks its emotional or bowel related. How can I make my levels go up. I don;t think I can just do that. I'm worried that this is going to get swept under the covers and later I will end up with pancreatic cancer. Can anyone help advise???

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3 Replies:

  • Sounds like some kind of autoimmune issue. See a rheumatologist.
    aquila 1,263 Replies
    • September 28, 2007
    • 00:31 PM
    • 0
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  • That's what I think, but having trouble and very hard to diagnosis.
    kschjf2001 1 Replies
    • October 3, 2007
    • 04:17 PM
    • 0
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  • The quickest way to determine if you have autoimmune pancreatitis is to have your GI Doctor do an iGG4 blood test and if elevated do a symptom monitored course of steroids (prednisone). If your symptoms decrease you probably have AIP. A fine needle pancreatic biopsy and a pancreatic endoscopy would be helpful. Use a large center Doctor not a "country" G.P. Stay happy and heal, Regards Mixo'
    Anonymous 42,789 Replies
    • September 8, 2008
    • 07:31 PM
    • 0
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