Discussions By Condition: I cannot get a diagnosis.

Having trouble walking

Posted In: I cannot get a diagnosis. 18 Replies
  • Posted By: rusde62
  • November 12, 2008
  • 08:44 PM

I am a 46 year old male that has had walking problems for about the past 6 years. When walking, I stagger slightly as if I've been drinking. Going down stairs is a problem because I start to teeter forward unless there is a rail to hold on to. Standing up is somewhat difficult like I have no muscle although my muscle tone is no less than its ever been. If I stand still, I teeter back and forth like i;m going to fall and I can't balance on one leg. I"ve been through a battery of tests including a CAT scan and a nerve test in my legs with no results. help!!!

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18 Replies:

  • Muscle mass not affected,no other symptoms?
    Anonymous 42789 Replies
    • November 13, 2008
    • 11:27 AM
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  • Muscle mass is not affected. There is no dizziness or vertigo, just a slight lack of balance. There have been a few rare ocasions where I have tripped, but I am able to avoid falling. If I'm walking right next to someone I do have a tendency to bump into them.
    rusde62 2 Replies
    • November 14, 2008
    • 04:18 PM
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  • Although I have experienced some of the symptoms described, The overall condition developed suddenly with no lifestyle changes. Also since this has developed I have moved twice and changed jobs three times. Shouldn't I have noticed changes after these moves?
    rusde62 2 Replies
    • November 16, 2008
    • 06:34 AM
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  • I believe it`s a neurological problem,you should discuss it with a good specialist
    Anonymous 42789 Replies
    • November 16, 2008
    • 00:28 PM
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  • Is there any family history of Huntington's disease? The only way to test is via a genetic blood test so even if you had a battery of bloodwork, its highly unlikely they would run this test without consultation first.Many families would not discuss HD, as it used to be one of those diseases families would keep hush hush. So sometimes a true family history regarding this issue could be hard to get. You would more then likely be referred to a Neurologist if HD is suspected but even if it isn't HD, a Neuro would be your best bet.Good luck
    Anonymous 42789 Replies
    • November 18, 2008
    • 01:26 AM
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  • I am a 46 year old male that has had walking problems for about the past 6 years. When walking, I stagger slightly as if I've been drinking. Going down stairs is a problem because I start to teeter forward unless there is a rail to hold on to. Standing up is somewhat difficult like I have no muscle although my muscle tone is no less than its ever been. If I stand still, I teeter back and forth like i;m going to fall and I can't balance on one leg. I"ve been through a battery of tests including a CAT scan and a nerve test in my legs with no results. help!!!I am a 53 year old female with the same problem please help me!!!
    Anonymous 42789 Replies
    • August 20, 2010
    • 03:44 AM
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  • Muscle mass is not affected. There is no dizziness or vertigo, just a slight lack of balance. There have been a few rare ocasions where I have tripped, but I am able to avoid falling. If I'm walking right next to someone I do have a tendency to bump into them.I've only just found this thread, how are you doing now?
    GalDriver 4 Replies
    • February 19, 2011
    • 10:55 PM
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  • I am a 53 year old female with the same problem please help me!!!and I'm a 52 year old female with similar problems and want to understand this too. I've seen 2 specialists who say I should try epidural injections into my lumbar then an operation if that fails then on Thursday I saw a new one, via work, who said he thinks it's neurological and recommended I see a neurosurgeon. I see my GP on monday to ask for a new referral. I've been off work for 2 months when my walking became worse than even and I have to use sticks now as my legs give way without warning.I just want it sorted as it's been going on for so long now and I'm in a fair amount of pain too. It's so frustrating, I've always been pretty active and do a manual job that I just can't do like this so am worried about losing that too.Googling this throws up worrying things too so any advice would be very gratefully received as I'm sure it would by all of us!
    GalDriver 4 Replies
    • February 19, 2011
    • 10:56 PM
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  • Middle ear problems can throw your balance off. Sure hope your doing better.
    Anonymous 42789 Replies
    • February 20, 2011
    • 05:27 AM
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  • I am a 46 year old male that has had walking problems for about the past 6 years. When walking, I stagger slightly as if I've been drinking. Going down stairs is a problem because I start to teeter forward unless there is a rail to hold on to. Standing up is somewhat difficult like I have no muscle although my muscle tone is no less than its ever been. If I stand still, I teeter back and forth like i;m going to fall and I can't balance on one leg. I"ve been through a battery of tests including a CAT scan and a nerve test in my legs with no results. help!!!Parkinson is possible.
    Anonymous 42789 Replies
    • February 24, 2011
    • 09:23 AM
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  • Parkinson is possible. My dad is 60 and is doing the same thing too. He has been to the VA for a battery of tests and recently let me know they are going to look into possible spinal cord damage--he has numerous back surgeries and neck surgeries (fused vertabrae, steel cage put in back?--I think my dad meant rods--but I was younger when it was done and I don't know for sure which). My dad first started having black outs, then these turned into seizures, hadn't seen him a couple of years till he and my mom came down for christmas 2010 and couldn't believe it. It was like watching a baby learning to walk. He had to be careful to place his foot down when he stepped or he just wasn't balanced. I personally think neurological is the cause; he is also a Veitnam Vet and was exposed to Agent Orange--but ya' know...I don't think your old enough to have been exposed to anything like that, but then again if your job consisted of you being around harmful chemicals on a daily basis, it's possible. Having worked in long term care facilities, most of our Parkinson's patients didn't start off this way (lack of balance, ect.); but I do recall one resident who did and they diagnosed him as having Altziemers and Dementia. It was like the part of his brain that told his feet to move or controlled his balance forgot the process. I hope you find out something..Maybe I can pass information to my dad that might help.
    concerned_mom_74 4 Replies
    • February 24, 2011
    • 09:36 AM
    • 0
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  • Thank you so much for that. I googled everything I could think of the other night and got myself quite emotional. I'm back in fighting mode now (I'm a stubborn one!) and am looking at it more logically.I don't think it's Parkinsons but you never know. I am piecing together all the info that I think may be relevant. The fingers on my right hand (though occasionally mildly on the left too) are tingly and hard to control most of the time. That's the first 2 fingers and my thumb. I got up the other night and wrote something and they were fine but after sleeping again they were back to their bad state.The other thing I've started thinking about is that I was concussed 30 years ago. The GP at the time treated it quite lightly, probably because I actually walked into his surgery, but I was in fact very sick that first day, my eye's followed on a few seconds later when I turned my head. Dilated pupils, very wonky walking etc. Since then I've been more light sensitive (never wore sunglasses before, now hardly ever not wear them when it's bright particularly when driving). I was wonky for a couple of weeks and walked like I was drunk (which I wasn't) and speech was slow. It scared my mum quite a lot and I must ask her more about it as she probably remembers more from seeing me than I do from getting on with it. I was early 20s after all and thought myself invincible!Do you think the concussion could be related? It's a long time ago but I've had neck problems, that I put down to driving for a living, most of my life.
    GalDriver 4 Replies
    • February 24, 2011
    • 11:01 AM
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  • Thank you so much for that. I googled everything I could think of the other night and got myself quite emotional. I'm back in fighting mode now (I'm a stubborn one!) and am looking at it more logically. I don't think it's Parkinsons but you never know. I am piecing together all the info that I think may be relevant. The fingers on my right hand (though occasionally mildly on the left too) are tingly and hard to control most of the time. That's the first 2 fingers and my thumb. I got up the other night and wrote something and they were fine but after sleeping again they were back to their bad state. The other thing I've started thinking about is that I was concussed 30 years ago. The GP at the time treated it quite lightly, probably because I actually walked into his surgery, but I was in fact very sick that first day, my eye's followed on a few seconds later when I turned my head. Dilated pupils, very wonky walking etc. Since then I've been more light sensitive (never wore sunglasses before, now hardly ever not wear them when it's bright particularly when driving). I was wonky for a couple of weeks and walked like I was drunk (which I wasn't) and speech was slow. It scared my mum quite a lot and I must ask her more about it as she probably remembers more from seeing me than I do from getting on with it. I was early 20s after all and thought myself invincible! Do you think the concussion could be related? It's a long time ago but I've had neck problems, that I put down to driving for a living, most of my life. It is very possible that is due to what had previously happened to you. The tingling in your hands and those fingers in particular, sounds like carpal tunnel syndrome. I, myself was seeing a physical therapist for it and my dad had at least 2 surgeries on his hands. Both were years apart. I wish I knew more about what the VA is planning on doing if my dad's problems are related to his spine, from what he last emailed me--they may have to do surgery again on his back. There is this part of me that wishes we lived closer to them (they live in Kansas and we live in Texas). They also live in a condo that has stairs and between his seizures that occur all of the sudden, and his lack of balance, I worry that he'll fall down the stairs when my mom is not there. He had already had one ambulance ride when he fell at their mail box and hit his head the concrete curb. I know it's scary. I wish I had more answers for you. Maybe going to a neurologist or someone that specializes in spinal cord/back issues. Please let me know if you find anything out.
    concerned_mom_74 4 Replies
    • February 24, 2011
    • 07:50 PM
    • 0
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  • Thanks hun, I'll let you know.Wish your dad all the best and to you and your mum who must worry terribly over him. I hope he finds something out to help him. He's no age either to be putting up with this.Anna.x
    GalDriver 4 Replies
    • February 24, 2011
    • 08:06 PM
    • 0
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  • Thanks hun, I'll let you know.Wish your dad all the best and to you and your mum who must worry terribly over him. I hope he finds something out to help him. He's no age either to be putting up with this.Anna.x I appreciate that a lot! I will be looking forward to updates from you. You take care too!:)
    concerned_mom_74 4 Replies
    • February 25, 2011
    • 03:05 AM
    • 0
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  • Im a senior physics student in high school and am having trouble grasping the math of physics in general. Anyone willing to help at all? Maybe pointers on what I might do that can help? ))
    Soyclaway 1 Replies
    • February 25, 2011
    • 03:22 PM
    • 0
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  • Im a senior physics student in high school and am having trouble grasping the math of physics in general. Anyone willing to help at all? Maybe pointers on what I might do that can help? )) Wish I had answers for ya, my son is in chemistry--and I don't have a clue as to either one...You might try looking up tutorials+math+physics on line and see if there is a website (which there is usually one for everything) and see what you can come up with. If still no luck, try the nearest community college and see if there are any postings on the Student Life Boards or check with the counselors as to seeing about arranging tutorials with a student at the college. Who knows you might bump into a physics teacher there who can help ya out a little more than what it seems your getting now. Best of Luck!
    concerned_mom_74 4 Replies
    • February 26, 2011
    • 05:36 AM
    • 0
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  • Here is some research related to a genetic autoimmune condition Ankylosing Spondylitis. Please take a peek at this > http://www.rhnegativeregistry.com/rh-negative-factor-recessive-trait.html it may help, since you are HLA-B27 positive.Have you been tested for HLA-B27? Do you know your blood type? Do you come from an Rh-Negative Family?
    thefarrellfam 46 Replies
    • February 26, 2011
    • 04:39 PM
    • 0
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