Discussions By Condition: I cannot get a diagnosis.

Having strange symptoms...please help

Posted In: I cannot get a diagnosis. 11 Replies
  • Posted By: Anonymous
  • February 19, 2008
  • 09:32 PM

For the past 2 weeks I have had blood seeping through my pores randomly all over my body off and on. When I first went to the doctor, I felt fine. But then I really started having bad pain a fews days later. I've had bad joint pain off and on all over my body. It gets bad enough that I have a noticeable limp from my left hip hurting, and yesterday I had a hard time walking around b/c of my back. I have been having extreme fatigue. Laying in bed or on the couch is when I feel the best. I have a hard time doing normal things. One day I had to lay down after unloading the dishwasher. I used to be able to jog and walk around my entire neighborhood. Now I get tired and winded from just walking around the house. I have been running a mild fever off and on. I had a rash appear on my right leg that had fever in it, but it went away and left one small blue spot on my skin. The sides of my neck hurt. Sometimes the front of my neck hurts and I have a hard time breathing. I have had several small red spots appear on my chest from the bleeding, but these are under the skin. One was biopsied today and I will get the results in 7-10 days. I have had some blood work done. The CBC, PTT, and iron deficiency test all came back normal. I was tested for rheumatoid arthritis and those results are still pending. My primary care physician believes this is some type of vasculitis; however, the dermatologist he sent me to does not think I have vasculitis, although she has no idea what this could be. I am only 21 years old, but this makes me feel like I'm in my 70's. I haven't been able to work a full day all week. I had a normal life before this, and nothing has changed that could have brought this on. I haven't traveled or been under stress. My veins have become easily visible through my skin, and sometimes I have a strange 'hot/cold' sensation in them--like Ben-Gay is being poured into them. So far the doctors are going to do some more blood work and a urinalysis. I have been put on dexamethasone and ibuprofen, but they haven't helped at all. I would really appreciate any ideas about what this may be. Anyone ever heard of these symptoms before? Feel free to give me any ideas or ask any questions. Thanks!

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11 Replies:

  • Sounds like you have been seen by a dermatologist, how about rheumatologist or hematologist? It sounds like you may have something either autoimmune, in the vasculitis family, and/or coagulation problems (even though the tests so far are negative). Any chance you can get in to see a rheumatologist?Also, it could be something infectious like Lyme or something else maybe an STD if that applies.I hope you get answers soon.Sorry you are going through this.
    Anonymous 42789 Replies
    • February 19, 2008
    • 10:25 PM
    • 0
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  • No...I haven't seen a rheumatologist yet. My primary physician has been in contact with a hematologist, who is leaning towards some type of vasculitis, also. I have not met with the hematologist, yet, but I am willing to do anything to find out what is wrong. The dermatologist had asked me if I had been bitten by any ticks lately, but I haven't in several years, so I'm not for sure if Lyme disease is what I have. STD's wouldn't apply. I still have to go back to my doctor for more testing this week. I will see about a referral to a rheumatologist asap. Thanks!
    Anonymous 42789 Replies
    • February 20, 2008
    • 00:12 AM
    • 0
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  • Update:I still haven't been diagnosed, yet, but the doctors are making progress. I am feeling much better and have not been bleeding for the past few days. However, I have had several angiomas pop up on me on my chest, arms, and legs (these were confirmed by a skin biopsy). I am still having joint pain on and off, but the fatigue has gone away and the pain is not as severe. I have been able to go back to my job and work full days, which I am happy about. I still have more blood work to do, and the doctors are now concerned about possible liver problems, since angiomas can be a sign of that. I go in on Tuesday for another CBC, hepatitis panel, liver screening, urinalysis, ANA, and ESR. I will also ask my doctor to test me for Lyme disease. I think they may also be concerned that this could be Lupus, since I have had problems with sensitivity to sunlight in the past. I usually get these bright red whelps on my arms after being in the sun that don't itch or bother me, but they do have a fever to them. They go away after stepping out of the sun for several hours. My cheeks and nose also look like they're burnt after staying in the sun, but it doesn't hurt and it goes away after coming inside. It happens regardless of whether I wear sunscreen or not. I have done this since I was a teenager, and it happens every single summer. One doctor dismissed it as allergies, but now I think Lupus is a definite possibility after reading about it online. I also have problems with my fingers and toes when they get cold. They hurt really bad, swell, and turn bright red after warming up. My ears sometimes do this at night after I've been asleep. (I've never had it checked out b/c I told my mom once when I was younger and she thought it was normal). I've never seen them turn blue, but they do turn white, so I'm thinking this may be Raynaud's phenomenon. I can't help but worry that this is something serious that is affecting me. I'm glad that I am feeling much better, and my life is pretty much almost back to normal. Hopefully it is a sign that whatever this is may not hurt me too bad. If there's anyone out there that has had or that knows anything about Lupus, Lyme disease, hepatitis, or liver problems, please let me know if you've gone through any of the symptoms listed from my first post. Thanks.
    Anonymous 42789 Replies Flag this Response
  • I live in an area where Lyme disease isn't very common, and the last time I was bitten by a tick was years ago (when I was a little girl), and I never got sick or had any reactions to the bite. Would it still be possible that this could be lyme? Also, from what I have read, I would've had to skip stage I and II of the disease and go straight to stage III in 2 weeks without any of the 'mental' symptoms. Is that possible? If my doctor does not take Lyme seriously, I have a friend who's father was diagnosed with Lyme. I will see his doctor if needed, since his symptoms have completely gone away after treatment. I will also check Lymenet. Also, I was going through my medical records, and it looks like I already had an ESR, and it came back slightly elevated. It was a 22, and normal is 0-20. I am planning to call my doctor tomorrow to ask his opinion. Would this indicate Lyme, Lupus, or liver issues?
    Anonymous 42789 Replies Flag this Response
  • Had you been on any medications prior to these symptoms, including birth control or hormonal therapies? Had you taken any antibiotics or other medication in the past few months? DOM
    acuann 3080 Replies Flag this Response
  • I am on birth control. I have been on it for about three years now. The last antibiotic I had was Tobramycin Opthalmic solution for pink eye at the beginning of January. I had to take horomones for a short time right before I started birth control, because I was only having my period once every 4-6 months, yet my body was having PMS symptoms constantly. I am now having normal cycles since starting the pill.
    Anonymous 42789 Replies Flag this Response
  • I am on birth control. I have been on it for about three years now. The last antibiotic I had was Tobramycin Opthalmic solution for pink eye at the beginning of January. I had to take horomones for a short time right before I started birth control, because I was only having my period once every 4-6 months, yet my body was having PMS symptoms constantly. I am now having normal cycles since starting the pill. What is the name of the pill are you on currently? Have you changed pills in the past 6 months? DOM
    acuann 3080 Replies Flag this Response
  • Yasmin. No changes at all for the past 3 years.
    Anonymous 42789 Replies Flag this Response
  • Yasmin. No changes at all for the past 3 years. According to www.rxlist.com: Yasmin can cause hemorrhagic eruptions as well as erythema multiforme and nodosum :eek:. To me, I would feel there is a very strong connection here between yasmin and your current symptoms. Side effects can be cumulative...even though you have been taking this birth control for several years you can develop side effects over time. Do you drink alcohol? Do you smoke? Alcohol may intensify the symptoms. Smoking is totally contraindicated for birth control and can lead to blood clots and other clotting disorders, even stroke. I cannot stress this enough: doctors don't look at side effects of medications! I have so many horror stories on this - please do the research yourself and print out the list of side effects you find on either www.drugs.com or www.rxlist.com and take this to your doctor... Your symptoms are too strange to just be a coincidince IMO. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • Wow...a lot of those symptoms do sound like what I am going through. I will definitely call my OB/GYN tomorrow and talk to him about it, since I haven't informed him of my condition, yet. I do not smoke, and I do not drink on a regular basis. If I do drink, I only have one glass of wine or champagne--I don't really like a lot of alcoholic drinks. I go in for more blood work tomorrow, so hopefully we'll get some answers. I also hope my liver is ok, since more angiomas popped up on me today. I also started bleeding again, so I'm a little more than concerned that something serious is going on.:( I will post another update if I find anything out. I appreciate everyone's input on this so far. Thanks.
    Anonymous 42789 Replies Flag this Response
  • According to www.rxlist.com: Yasmin can cause hemorrhagic eruptions as well as erythema multiforme and nodosum :eek:. To me, I would feel there is a very strong connection here between yasmin and your current symptoms. Side effects can be cumulative...even though you have been taking this birth control for several years you can develop side effects over time. Do you drink alcohol? Do you smoke? Alcohol may intensify the symptoms. Smoking is totally contraindicated for birth control and can lead to blood clots and other clotting disorders, even stroke. I cannot stress this enough: doctors don't look at side effects of medications! I have so many horror stories on this - please do the research yourself and print out the list of side effects you find on either www.drugs.com or www.rxlist.com and take this to your doctor... Your symptoms are too strange to just be a coincidince IMO. Best wishesDOMi agree with this 100%, many people have no idea how many complications medicine can cause.
    LymeTime 65 Replies Flag this Response
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