Discussions By Condition: I cannot get a diagnosis.

Have labs, no dx

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: bellevue
  • April 18, 2007
  • 04:47 PM

Hi, I've posted in a few areas on this board since Jan or Feb of this year. My pcm refered me to a rheumy based on symptoms and labs. My symptoms are a leg rash (that is very itchy and will not go away), fatigue, losing hair, joint pain and stiffness (both hips, both shoulders, right hand), weight gain, headaches, palpitations, rapid heart beat and light sensitivity with my eyes. My pcm was pretty sure I had lupus, now the rheumy just says I have mild arthritis and put me on predinisone and naproxen and told me to come back in 30 days. The intern in the rheumys office was leaning towards a dx of lupus as well. I have been in prednisone for 3 weeks and naproxen for almost one week. I am miserable on the naproxen because it hasn't done anything for the pain and I was told to not take any other pain relievers. I am not thrilled being on prednisone- I am already overweight and am working hard trying to get weight off (not that that has been working).

Anyway, I picked up my labs from my pcm this morning I can't make heads or tails out of it. I had my first ANA on 11 Jan 07. It states: cytoplasmic staining present suggestive of anti-mitochndrial AB recommend follow up test for auto antibody panel, SCT
Ginigebeiyus tuter >=11:160 will automatically perform dsDNA
Speckled, Nuclear Matrix, few and Multiple Nuclear dots titers >=1:160 will automatically perform ENA

On 13 Feb 07I received a phone call from my pcm's nurse saying that I needed to come in right away for another blood draw. I said, it is a snow day and we are leaving on vacation the next day so I'll come in next week and she said no that I needed to come in right away. So in I went. These results read: performed by indrect fluorescent antibody MITO AB 1:320 H
Smooth Mus AB ,1:20
Parietal AB ,1:20

Can anyone help me?


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3 Replies:

  • Oops, realized that I typed a whole lot of nothing in my 2nd paragraph and apparently am too late to edit it. Third line of the 2nd paragraph should be: homogeneous titer >= 1:160 will automatically perform dsDNA Sorry!
    bellevue 3 Replies Flag this Response
  • short update: I called the rheumy's office to let them know that the pain, stiffness and swelling was much worse and they increased the prednisone to 20mg/day. Does anyone have any ideas? Thanks.
    bellevue 3 Replies Flag this Response
  • go to www.ahummingbirdsguide.com write down every sx you have...see a neurologist or internal medicine dr and don't stop until you find a dr that will listen to you...mommy cat
    mommy cat 1654 Replies Flag this Response
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