Discussions By Condition: I cannot get a diagnosis.

Have I caught something, or is it all paranoia?

Posted In: I cannot get a diagnosis. 12 Replies
  • Posted By: Anonymous
  • December 3, 2008
  • 09:02 PM

Hello,

About 6 months ago (around the end of June, early July) of this year I went see my RL boyfriend (we had a relationship online for just a little over 5 years). At somepoint he revealed to me (I'm also male) that he'd have 5 other partners (though I don't know how many he slept with; neither do I know of his HIV status). He claims to have been responsible and a couple of years ago was worried that he had contracted Hepititis (I think C) but the test proved negative.

When we met I did engage in some open mouth kissing though we did *not* have intercourse (and definately no injecting drugs, never!).

I am quite worried that I have picked up some sort of disease from him and am concerned about HIV. Could I have caught it?

About a week ago I was trying to do research by looking at various medical websites on the 'net. And a few days ago I noticed some white marks on my skin inside my mouth on the inside of the cheek. Though I can't match them to any pictures I've seen on the internet!

I do have some dental problems btw, I am sure I have at least one tooth which needs seeing too (though it's on the opposite side of the mouth).

I can't really think about what the white patches are, are they an early symptom of HIV or is it something else? Very occasionally there is a very slight stinging sensation from them but yet sometimes there isn't.

I can't really describe the shape though some seem to have congrigated together with an area of either untoched or slightly more red (hard to tell!) skin in the middle. There's about 3 or so patches at the bottom, and 1 at the top with another similar "structure" just above, with 2 patches at the top, a central untouched or slightly more red (hard to tell again) area and 1 below. That one almost looks more circular.

I will also admit sometimes I have my cooked food (at work) a little too hot(!) and I usually try to eat on the right side (the bad tooth I mentioned earlier's on the left, so most of my eating is on the right).

At the very back of my mouth on the roof there's some white which also looks like an upside down "Y" shape, but also there's other colours. It is very hard to see, but other areas look orange or purple. As I say though it's hard to tell, as the colours differ as to where I point the torch(!).


Can anyone tell me if I'm at high risk of HIV or what this odd mark is?

ljonez

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12 Replies:

  • Here's informatin on how HIV is and is not passed from person to person: http://www.cdc.gov/hiv/resources/Factsheets/transmission.htm I would be more concerned about other infections that you might get from kissing. I would definitely see a doctor based on what you've said here.
    aquila 1263 Replies
    • December 4, 2008
    • 08:27 PM
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  • Thanks for that. I've managed to get to see my doctor tomorrow morning btw. I've examined the white/red marks again, and it is still hard to tell. The red and white marks seem to have grown; currently the red marks seem to have increased more than the white. I see that site says that open-mouth kissing is ranked as very low for hiv. Wow, I sure hope I've not been unlucky on that point. Alas I do not know if the other person involved in all of this has HIV either - they might be complely clean. So maybe this isn't hiv - could it be something else?What other diseases could be picked up via kissing? I did read about one elsewhere on these forums called "mono", but surely 6 months would be too long for it to emerge? Are there any others? I couldn't find any even after I tried searching!thanksljoenz
    ljonez 9 Replies
    • December 5, 2008
    • 00:21 AM
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  • A tiny bit more information, while I remember to write about it (!) ....1. Although I can't be 100% sure the whiteness/redness in my mouth has only started recently. I would say maybe this monday or tuesday, about 3-4 days ago. If I'm correct this coincides exactly with when I started to read stuff about hiv online.2. (Crosses his fingers so as not to have bad luck) I don't see any whiteness on the sides of my tounge.3. I don't really have dirohea to any extent; I did have something similar, again very recently in the last week but it was only once, and even that you could hardly call dirohea. Other than that it has been normal but the time(s) and sensations of wanting to relieve myself have altered. This seems to be tied in with a feeling in my stomach, which in turn is (and I'm pretty sure of this) related to anxiety and fear over all of this.4. I've not had any extra headaches, nor a sore throat.5. I've found some raised "spots" over part of my chest, but I don't know what those are or how long they've been there. Hard to describe, but they look round, raised, not red just ordinary pink and are of different sizes.ljonez
    ljonez 9 Replies
    • December 5, 2008
    • 01:04 AM
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  • An update for everyone. I went to the doctors today and I explained as much as I could above. He confirmed some of what I'd read online, but some of what I pointed out did turn out to be connected to worry/anxiety/fear. The doctor also pointed out that most people normally get approx. roughly 4 colds/year, so there are a lot of "bugs" out there!However, he looked at the infection in my mouth (my neck and throat were examined too) and was almost completley sure it is leukoplakia. He took a swab of it for testing just in case it might be thrush, but he was almost 100% it is leukoplakia. Apparently almost anyone can get it and the first port of call is that it might have somehow come from a tooth (there's one *very* close by which has a *lot* of filling in it). Other than that I don't know where leukoplakia comes from - I didn't remember to ask (d'oh) but the doctor pointed out there are a lot of places from which you can catch it. And apparently, lukoplakia is caused by some sort of irratation in the mouth (wikipedia source).As for HIV he was not convinced that I had caught this because of my lifestyle (I don't 'sleep around' for example) and remained unconvinced of hiv infection even after I mentioned stuff about bad teeth/gums/open-mouth kissing, etc. He said "I'm not getting hiv infection", that is what I was explaining wasn't convincing him.So there we have it. Weather or not I did enough to explain or if its the full story I have no idea, but that's pretty much the professionals' verdict.He also examined the spots on my chest, but could not provide a reason for them. As for having the hiv test itself, I'm in two minds. ljonez
    ljonez 9 Replies
    • December 5, 2008
    • 08:18 PM
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  • I must admit, I am now really worried.Can anyone help?After looking at the lekoplakia again, and after looking at online pictures of something called "hairy lekoplakia" they look very similar. I read that the hairy version if a precursor to hiv, and that it can either appear corrogated or looks well....hairy.It's very hard to tell one way or another - the online pictures all look the same. And if I look at it myself it can look like both!What are the odds of the doctor making a wrong diagnosis?:(ljonez
    ljonez 9 Replies
    • December 8, 2008
    • 07:02 PM
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  • Good grief, get your butt down to the clinic or back to your doctor right away and get the test done. It's a simple blood test (I've had it done) and if it's positive, you can start treating it right away. If it's negative, you can unload the big weight on your shoulders.As for doctors making the wrong diagnosis.... it happens all the time. As an insulin-dependent diabetic for over 20 years, I know more about insulin management than my endocrinologist, and boatloads more than any PCP, so I'm in a unique position to hear the advice given by different doctors, and it's shocking how truly ignorant they are (and yet how very confident they are in their knowledge). If I had taken the advice of doctors all these years I'd probably be on dialysis by now, so please don't assume your doctor knows it all. Just get the blood test done and report back, ok?
    DartGirl 6 Replies
    • December 8, 2008
    • 08:18 PM
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  • Will do. Wow, I hope it sure isn't hiv. Though if it is I have been *extremley* unlucky to catch it - I didn't have intercourse, nor injected with needles!I've arranged a time for the test, it will be this thursday though I've heard it will take a week for me to get the results.ljonez
    ljonez 9 Replies
    • December 8, 2008
    • 08:42 PM
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  • Just a thought on HIV. Take a read here:http://www.newscientist.com/article/dn15156-pimpedup-tcells-seek-out-and-destroy-hiv.htmlOr here:http://www.walesonline.co.uk/news/health-news/2008/11/09/welsh-scientists-develop-bionic-hiv-assassins-91466-22216090/It appears welsh scientists have created a sort of "T-cell" plus (sorry, I am not a biologist!) which if it works could weaken the HIV virus. It probably isn't a cure, but the HIV virus might become so weak that it couldn't really do anything much.ljonez
    ljonez 9 Replies
    • December 8, 2008
    • 09:30 PM
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  • Oops, I made a minor error! I neglected to mention that the doc took a swab of the leukoplakia from my mouth and sent it away for testing. It has just come back apparently saying "all clear" - completely normal that is it isn't connected to stuff like thrush. Note that this isn't a blood test, it's a swab from my mouth. I found this out after just having spoken again to my doctor on the phone. He said he did not think that the leukoplakia was hairy leukoplakia either, and that he had referred me to an aural ( i.e. mouth) doctor and that I should hear off them in the next week or two (presumably for an appointment).He also said to leave off looking up stuff online like this, to forget about it "in the nicest possible way".I wonder if that's good or bad news? The mystery deepens ..... x.x !ljonez
    ljonez 9 Replies
    • December 9, 2008
    • 05:54 PM
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  • Another small update!Ok, I've finally gone for the hiv test. I went to a clinic, and after a talk with the doctor (who was not convinced the leukioplakia was hairy leukioplakia) a sample of blood was taken, they said it would be tested for syphilis and hiv (since they said they were going to, I don't know how worried I should be). And although I am pretty sure I don't have it(!) I also recived the start (1/3) of a course of hepititis vaccine injections (still need two more). I won't have any results though until the 30th.ljonez
    ljonez 9 Replies
    • December 16, 2008
    • 06:57 PM
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  • Well I'm ready finally (hopefully!) to wrap this up now!I was going to wait 'till the 30th, as that is when I was originally told to wait till. However I also noticed later on that the diagnosis usually only takes about 7 days, but that there may (or may not) be a delay because of christmas.So I decided to call up the doctors to try to get my result today, just "off the cuff" so to speak. Fortunatly, my blood test diagnosis had already come back to the doctors. It (my blood) was tested for syphilis and HIV. Fortunatly, it has proven negative on both counts! Phew!!!!!!!!!!!ljonez
    ljonez 9 Replies
    • December 23, 2008
    • 05:23 PM
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  • Have a Happy and Joyful holiday. Get your dental work done and maybe go on some yeast antidotes such as : candidol;http://micronutra.com/candidol.html?utm_source=google_g&utm_medium=ppc&utm_campaign=Candidol-G&utm_term=candidol&s_kwcid=candidol|1156204552&gclid=COOt8dHUrJcCFQv7agodjkTJjw there was also a product that my mother got for her tongue like:Swish and squirt or something like that...she said it sounded like a ***n movie and her doctor laughed...I forget the exaxt name, but you may need a deep dental cleaning..how's your dental insurance? Also, you may want to get rid of all of the fillings and get a couple of crowns. Dental health is so important to your overall well-being. It could also be as simple as a lack of a vitamin and poor nutrition. You could also let your "internet" friend know you think you picked something up and would he get a new hiv test and/or exam..however, your chances were slim but I'm sure you learned a lesson dating these guys online...there's some nice people, but there's a lot of people who will F*** an exhaust pipe....
    Monsterlove 2921 Replies
    • December 23, 2008
    • 06:55 PM
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