Discussions By Condition: I cannot get a diagnosis.

Have constant pain but can't get help

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Iamhurting
  • July 7, 2010
  • 10:46 PM

Three years ago, I started hurting in my lower back and went to see a doctor. I was given some pain meds and sent home to rest. The pain persisted and so I went back to teh doctor. I had an MRI of my lumbar spine and they told me I had degenerative disc disease and a torn and bulging disc at my L5-S1. I was referred to a Neurosurgeon. I went to the Neurosurgeon and he told me he didn't see any reason why I should be hurting. However, he sent me to physical therapy. After about three trips to physical therapy, I started having pain go down my leg. I went back to the doctor and was referred to a different Neurosurgeon. He sent me to more therapy and suggested surgery. After a few sessions of therapy and no improvement in my pain, I had the surgery. It was a spinal fusion. I have a metal rod attached to my vertebrae where they took out my disc.

After recoverying from surgery, I still have pain. I managed with over the counter medication for almost two years. I could not lift anything heavy and my sex life with my husband was minimal.

Then in September of last year, my boss sent me on a trip for work that involved me driving six hours away from home by myself and I had to carry my luggage which was heavy. Upon returning from the trip, I was having extreme pain that started along my shoulder blade on my right side and radiated straight through my chest to the nipple of my breast. If I have to write to fill out forms(like at the docs office) my whole arm hurts badly that I have to rest between words.

I have been to seven doctors, had MRI's, injections, and a nerve study and no one can tell me what is wrong or treat me. I am in lots of pain that keeps me from living anything close to a normal life. I have been told I have a lesion on my spinal cord but no one will do anything about it.

The over the counter pain meds don't work anymore and the doctors say I am too young to take narcotics(I am 37). I am getting worse as my neck and shoulders hurt alot along with my low back and my chest.

I have thought of ending it cause I am tired of the pain but I have children and so I try to supprese these thoughts.

Any suggestions?

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5 Replies:

  • you need to get your doctors to listen to you that you need better pain killers. One could say this is an act of discrimination due to your age (if its for that reason they wont give them to you when needed). Go back to the doctors and tell them the pain is making you suicidal and something NEEDS to be done about your pain. (I dont know if you could consult a lawyer over discrimination or not seeing they wont give due to age). You could also try to see a good chiropractor to see if that helps at all.
    taniaaust1 2267 Replies Flag this Response
  • you are in a lot of pain, realisticly it sounds like you need morphine patches. i have slip disks and pinched nerves up and down my spinal cord from car accident. methadones worked well for me for the pain (good luck tryin to find those) ((they dont perscribe it for back pain even tho it works wonders for that.... and are highly addictive)) a more realistic option to try is taking something called curamin made by the company terry naturally. after 2 weeks of continous use you can really feel a huge difference. i cant live without these pills my body aches when i dont take them and i believe they make a world of difference. the green bay packers even endorse these for pain. this company is kosher and offer other types of pills as well... please try these :) hope this helps some ;)
    theangrypirate 10 Replies Flag this Response
  • you are in a lot of pain, realisticly it sounds like you need morphine patches. i have slip disks and pinched nerves up and down my spinal cord from car accident. methadones worked well for me for the pain (good luck tryin to find those) ((they dont perscribe it for back pain even tho it works wonders for that.... and are highly addictive)) a more realistic option to try is taking something called curamin made by the company terry naturally. after 2 weeks of continous use you can really feel a huge difference. i cant live without these pills my body aches when i dont take them and i believe they make a world of difference. the green bay packers even endorse these for pain. this company is kosher and offer other types of pills as well... please try these :) hope this helps some ;) I will check into that, if I can get something that helps without having to pay a doctor again and again that would be wonderful! I am not crazy about being on strong stuff but I am not crazy about living the rest of my life like this either. My father in law gets the shots for his neck and all the loratabs he needs but I have to beg for ultram that doesn't help unless I take two of them. And then it only takes the edge off. I don't want to get addicted but I don't see how that could be any worse than not being able to enjoy my kids cause I am in pain. Thanks for the tip. I will repost when I have found and tried it on how it does for me.
    Iamhurting 2 Replies Flag this Response
  • After reading your post about pain from last year, I thought I was looking in the mirror. I'm also 37 and have very similar back problems, ect. I have been through very similar trial and error periods and also have children and have gone nowhere with doctors. It's very frustrating to say the least. Have you gained any ground with your pain? I'm just curious. I was on strong narcotics, but then I took myself off them, because the doctors stopped prescribing them, because they're all afraid of handing them out. I've exhausted my efforts and am living in constant pain. Three years ago, I started hurting in my lower back and went to see a doctor. I was given some pain meds and sent home to rest. The pain persisted and so I went back to teh doctor. I had an MRI of my lumbar spine and they told me I had degenerative disc disease and a torn and bulging disc at my L5-S1. I was referred to a Neurosurgeon. I went to the Neurosurgeon and he told me he didn't see any reason why I should be hurting. However, he sent me to physical therapy. After about three trips to physical therapy, I started having pain go down my leg. I went back to the doctor and was referred to a different Neurosurgeon. He sent me to more therapy and suggested surgery. After a few sessions of therapy and no improvement in my pain, I had the surgery. It was a spinal fusion. I have a metal rod attached to my vertebrae where they took out my disc. After recoverying from surgery, I still have pain. I managed with over the counter medication for almost two years. I could not lift anything heavy and my sex life with my husband was minimal. Then in September of last year, my boss sent me on a trip for work that involved me driving six hours away from home by myself and I had to carry my luggage which was heavy. Upon returning from the trip, I was having extreme pain that started along my shoulder blade on my right side and radiated straight through my chest to the nipple of my breast. If I have to write to fill out forms(like at the docs office) my whole arm hurts badly that I have to rest between words. I have been to seven doctors, had MRI's, injections, and a nerve study and no one can tell me what is wrong or treat me. I am in lots of pain that keeps me from living anything close to a normal life. I have been told I have a lesion on my spinal cord but no one will do anything about it. The over the counter pain meds don't work anymore and the doctors say I am too young to take narcotics(I am 37). I am getting worse as my neck and shoulders hurt alot along with my low back and my chest. I have thought of ending it cause I am tired of the pain but I have children and so I try to supprese these thoughts. Any suggestions?
    Anonymous 42789 Replies Flag this Response
  • After reading your post about pain from last year, I thought I was looking in the mirror. I'm also 37 and have very similar back problems, ect. I have been through very similar trial and error periods and also have children and have gone nowhere with doctors. It's very frustrating to say the least. Have you gained any ground with your pain? I'm just curious. I was on strong narcotics, but then I took myself off them, because the doctors stopped prescribing them, because they're all afraid of handing them out. I've exhausted my efforts and am living in constant pain.Sorry to hear someone my age is suffering as I am. In October of 2010 I went to two doctors, one a thoracic surgeon and another neurosurgeon. I drove two hours to Memphis to see them. I was diagnosed with Thoracic Outlet Syndrome for the pain in my right chest/back region and in December had my first right rib removed. I would say the surgery was about 80% successful. I did get pneumonia in my right lung right after coming home from the hospital and had to go back for five days, so I spent Christmas in the hospital.I still suffer from my neck to my tailbone and throughout my hips. The pain is like someone ringing out a wet towel by twisting it in different directions, expect my spine is the towel. I have an appointment tomorrow to see the surgeon that did the spinal fusion to see if I am fused and can get the hardware removed. My pain has gotten worse over the last six months and I finally found a doctor who would prescribe me real pain medication, but only two pills a day which means I only get relief for a few hours a day. The relief is not enough to actually do more, and when I do try to do more, I'm worse. And I have to drive an hour to his office every month to get drug tested and get my prescription. It's ridiculous. I hate having to take the pills, but the little relief does keep me from going crazy. I feel my kids are affected by this even more than I am cause they fend for themselves a lot.The weather affects my pain too. Been practically living on a heating pad the last six months also and it's affected my skin. The possibility of them taking out the tumor in my spinal cord and me being numb from my ribs down is starting to look like a better option. At least I would still have my brain and my arms.I will update you after I meet with my neurosurgeon tomorrow. Hang in there, I really believe the DEA and FDA are not after our best interests and could care less about our quality of life in this country. So many of these doctors won't prescribe medications for severe pain because the Feds are looking over their shoulder. Some people who do get prescriptions sell them to other people to make money and they are hurting us by doing this as doctors aren't sure how to tell who really needs them. I believe that is why I am drug tested, to make sure I am taking the meds and not selling them.And the arsenal of medications Anesthesiologists have available to them to help, most often they choose a steroid shot and for me that makes me fatter, therefore more pain on my joints and back, not to mention they are unbelievably expensive even after insurance pays.Lately, I am wondering what grade a doctor has to make in order to pass to be a doctor. I'm thinking it's a D. They are in it for the money, not for the help of others. And most people don't know the difference between dependence and addiction. People on insulin, heart meds, etc. are dependent on these meds to live, but anyone who needs pain medication to get through the day are considered addicts. The views of our country are screwed up. And living in pain does shorten your life according to my doctor.
    Iamhurting 2 Replies Flag this Response
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