Discussions By Condition: I cannot get a diagnosis.

Hashis thyroiditis doesnt explain it all

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Winnah
  • August 1, 2009
  • 05:36 AM

I have been hypothyroid for several years, took synthroid and life way pretty much normal.
3 months ago that all changed. I was driving and suddenly had bad chest pains, numbness in my arm and my ears were roaring. I thought I was having a heart attack and went to the ER. Turns out I wasnt tand they couldnt find anything wrong. They kept me overnight and sent me on my way. I followed up with my dr who said my thyroid levels were high and upped my synthroid. After many trip to the dr he finally ordered an ultrasound and found that I had thyroiditis.
I saw an endo who just adjusted my dose and said he would see me in 4 months.
I am having many unexplained symtoms. My left ear rings constantly since the day I got out of the ER, I still have chest pains (went to a cartiologist and it wasnt heart related) I have daily back and neck pain and well as sore ribs. I have a burning/tingling in the back of my head and sometimes on the top of my head, which the dr keeps telling me to just ignore. everything I tell him he just shrugs off or says 'THATS WEIRD' but does nothing to find the cause.. as of last week my thryroid levels were back down to 5.6, not great but alot lower than they were when all of this started. it was at 9.8 but still no improvment in the symtoms.
I finally have an appointment at OHSU next week and hope to find out more then. I just dont feel like my DR has gotten to whats really wrong with me and I dont think its just my thyroid.
I have had a lung, abdomen and pelvis CT, blood tests, a pap, mamagram, ekg's, stress test with echo and xrays of my neck and spine and several ER visits. All have come back normal, except the thyroid and arthritis in my neck and back.
I have been unable to work or do much of anything at all, I feel like I am always about 10 minutes from going to the ER, but I know it wont do any good. I dont drive much with my son in the car, just incase something happens and I have someone checking on me in the mornings to make sure I am still here and my son doesnt find me passed out or worse.

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