Discussions By Condition: I cannot get a diagnosis.

Hand pain, any ideas?

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • April 22, 2011
  • 05:56 PM

I am looking for some ideas of what to do next as far as tests or possibilities of a diagnosis for my pain. It started three years ago (though I didn’t know it at the time) with pain in my right wrist (what I know now is my basal thumb joint). I was told I sprained it and given a splint to wear for a few weeks. The pain went away and came back every once in a while. I would wear the splint and it would go away. In September of last year the pain came back and wouldn’t go away even with the splint so I went to the doctors. I got x-rays taken and was told that everything was normal so I was sent to occupational therapy. On January 3rd the pain spread to all the joints in both of my hands and wrists and is that way even now. On the pain scale of 1 -10 mine is a 7 almost all of the time.
As far as my medical history I am a 26 year old female and I have have IBS, lactose intolerance, PCOS, TMJ, knee problems, occ. lower back pain, a shoulder that has limited motion, and a kidney stone 2 years ago. In case anyone is thinking of some random area related diseases I live in Oregon.
The blood tests that I have already had done are: Double stranded DNA antibody, ALT, AST, Alkaline Phosphatase, Bilirubin, Hepatitis B surface Antigen, Hepatitis C antibody, C-reactive Protein, Citrulline Antibody, CBC, ANA, Erythrocyte sedimentation rate, Rheumatoid factor, lipid panel, vitamin d, Calcium, prolactin, TSH, Glucose, HLA B27 Typing.
I have also had a nerve test to see if it was carpal tunnel.
All tests came back negative or normal.
I just recently had a MRI of both hands and was told everything is normal.
I am on several medications that do not make a big difference. (Multi vitamin, Pepcid, Tylenol arthritis, Tramadol, Meloxicam, Melatonin, and stool softeners). It adds up to 24 pills a day.
I have been through 2 GP’s, 2 rheumatologists, and a Physiatric doctor.
The only explanation I have received was that it was over use. I don’t believe this and neither did the last rheumatologist. I only work part time on the weekends and have been taking it easy since January 3rd with no improvement.
I am in desperate need of some relief or even just answers. I am very worried that this is something that will be getting worse over time and soon I will be unable to use my hands at all. The good news is I have a GP now that will let me do whatever tests and such that I can come up with since I am now “out of his expertise". As many people have said when most doctors hear hoof beats, they think horses, not zebras. Unfortunately I think I am a zebra without a zebra doctor.
Anyone have any ideas for me?

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