Discussions By Condition: I cannot get a diagnosis.

Hamartomas / Von Meyenburg Complex

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Laney59L
  • October 30, 2009
  • 05:11 PM

I have had a continual pain in my rt. upper abdomin near an old gall scar. I have been in and out of Dr's offices for a year, with this constant pain. Finally I get a MRI both showing foci (too many to count) on my liver & ..The diagnosis is Von Meyenburg Complex. The Dr. told me it's no big deal and very common. Well when I look it up online I find it is very rare, and not at all common. Usually runs hand & hand with Polycistic Liver, Polycistic Kidneys, and --as well as numerous other disorders. Also have read it matastisises and can spread to other organs inlcuding the brain. I have had problems with and my ear drums under constant pressure, as well as humming for the past 6 months. Could this had mastisised to my ear drums.. Anyone with any info. on this disease/complex/ please forward it.. I am still dealing with this constant pain in my riight upper side. What can I do to stop this from spreading? Should I be concerned or am I making this a big deal? What is the possibility of this being a misdiagnoses?

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