Hello. I am a very sick girl. I wake up every morning with these symptoms. I am very thin but I have always been that way. That is if I ever fall asleep. This has been happening for 5 years now. I'm 23. I really need help because I am struggling to find a diagnosis. I should not be this sick at such a young age. Thank you for reading. It is kind of long.
-severe abdominal pain (sharp pain right at the mark of the first abdomen both sides)
-severe aches/joint pain (neck pain, high back pain, shoulders, legs, hands)
-uncontrollable muscle and joint twitches: (right and left big toes, thumb, pinky, right and left quad and calf)
-Low Grade fever around 99.5
-severe insomnia due to thirst/pain/hunger
-pain helped with ibuprofen and eating
-inability to lie down
-excessive sweating/fast pulse (due to fever?)
On August 31, 2008: ER trip due to severe leg weakenss
They ran all tests coinciding with that:
Ultrasound of legs for blood clots
Urine Test (Only thing that was weird was this: found protein in the urine)
Otherwise inconclusive sent home.
Been to Neurologist(1), Cardiologist(1), Gastroentorolgist (7), Rheumatologist(1 awhile ago before new symptoms)
Had another Echo, brain scan, MRI of Brain, MRI of abdomen awhile back
Camera test for small intestine, Abdoman Xray showed 3 kidneys duplicate right kidney.
3 colonoscopies (last one showed healthy colon)
2 endoscopies (both normal)
multiple blood tests for markers for all gastro things all were normal.
Manage pain because they dont know what is causing it
Any ideas would be greatly appreciated. Doctors just seem to have given up on finding what is wrong. I'm a puzzle no one wants to solve. But this is my life and it is miserable.
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