Discussions By Condition: I cannot get a diagnosis.

had this since august, please help!

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Anonymous
  • December 23, 2006
  • 07:38 PM

so i guess i posted this in the wrong section a few seconds ago, so i'll try again. :P

here's a general summary of my problem. maybe one of you can help?

my friends and i go to a lot of ***k shows, probably over 20 in the past two years. at this one show we went to in philly, i had a panic attack (my first one ever, and i didn't know what it was at the time) during the show. the next day my boyfriend (who is now my ex) was over, and all the same feelings came back. i went to the ER thinking it might have been dehydration, where they didn't find anything wrong except a cyst around my forehead (which they said was completely normal and probably wasn't anything to worry about.) (since that time, whenever i saw/talked to the guy i would feel lightheaded and anxious.. so i pretty much told him to fxck off. i feel bad about it.)

since that time, (the concert was in august) i've been feeling dizzy almost ALL the time. i started seeing a psychologist for it and guessed that maybe it was anxiety, but now i'm really starting to doubt it. (maybe some social anxiety left over, though.) even just being in k-mart for a while i'll feel dizzy and worried that i might pass out. (but in all the situations i've felt dizzy in, i never passed out once.) it seems to get worse over time. around august it was only a lightheaded feeling, but now it's.. a worse lightheaded feeling, and i get worried about passing out. on occasion it might be a bit of vertigo, but that's only once in a while when i have my eyes closed.

i can't go into arcades or movie theaters for very long, because something about the noise and vibrations gets to me. same with being in a car and having the radio on. so i saw the local MD for it, he did a blood test, and the tests said that i have a slightly underactive thyroid, but he wasn't sure if that could cause it. i'm going back for another blood test in early january.

the MD prescribed me Cymbalta, an anti-depressant, but the first day i took it i ended up with diahrrhea and vomiting. needless to say, that was also my last day on it.

yesterday, i went to an ear nose and throat doctor. he said my ears looked fine, but that there was something he said about not being able to hear really low-frequency noises that they found in my hearing tests. he thought it could be meniere's disease and also mentioned lime disease. (Lime disease.. haha, you have to be kidding me. I'm barely ever outside in the first place, and I don't have any rashes or ANYTHING. I personally think the guy's crazy for saying that, but I really want to get my life back on track.) So maybe meniere's makes a tiny bit of sense to me, but they're still going to do more tests on my ears in early january also.

even something as simple as taking a shower is enough to make me feel the same way. (which is why my hair is greasy right now. ew.)

my ears don't really make any ringing noises (and if they do it's not often and only lasts a few seconds.) but i usually yawn a lot during the day, even when i'm not tired, and i'll hear them popping.

also, sometimes my eyes will black out for a few seconds, but then they'll come right back. it happens occasionally if i change positions, and it also only happens once in a while.

sometimes it'll feel like there's something in my throat but the doctors didn't see anything. also.. this is strange and probably silly, but if i have a lot of mucus in my nose, it has this weird kinda fruity smell.

during the past few months i've changed my diet a lot. i completely removed fast food from it, and i also took caffeine products out altogether.

as far as i know, i'm not anemic, but i'm really pale. (probably naturally lol) and my hands get cold a lot, especially when i'm typing on the computer.

anybody know any helpful information? thanks in advance.

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4 Replies:

  • I truthfully do not know how to help you, because I too am going through the same thing. I have a severly underactive thyroid, I have something wrong with my anti-bodies, so I have Hashimoto's thyroiditis. I think, when you go back to the dr in Jan, you should get the dr to check your T4 free, T3 free and a thyroidglobulin anti-bodies test, to rule out, or confirm Hasimoto's. Also, I went on cymbalta, before they found out it was my thyroid. I stayed on it 3 months, it didn't really change my mood. Made me feel sick all the time. As for dizziness, that is something I have had since I can remember. It has gotten a bit better since I went on thyroid meds. But not much. My eyes too will go black, and it would happen,every morning when I would wake up and start walking to the restroom. I haven't had that since the meds, but I still have moments where my vison goes black at any given time. I am having a hard time dealing with a large amount of people. I can't stand anyone within 2 feet of me, unless I know them really well, sometimes even then I don't want my husband to touch me. I start having "panic attacks" because of these situations. I do notice that I get worse if I don't take my thyroid pill at the same time of day. My arms, hands and feet are always freezing. Question: Do you ever feel extremly hot, or a burning sensation inside? Like I feel hot, or something is burning my bones and muscles. But if you feel my skin on those spots, it is really cold. It started in my ears, then included my cheeks, and now recently it is also in my back an legs. Also, sometimes those spots itch like mad. I too took caffine out of my diet and changed what I eat, no difference. I was told to look into addison's disease. Unfortunaly it has a lot of symptoms of other diseases. I am only 22. I was told that all my problems are from my thyroid, but nothing has changed yet. I only was diagnosed with hypo-thyroid in Sept. So I know I haven't given it much of a chance to work properly, since the dr's are still trying to get me at a "normal" spot. Anyways, if you find anything out, let me know, and if you would like, if I find anything usefull I let you know. Good luck on everything.
    Anonymous 42789 Replies
    • December 23, 2006
    • 08:56 PM
    • 0
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  • The problem is your list includes everything that is wrong with you and it isn't possible to work out if these things all started together. You need to try and keep it simple when you speak to your doctor. An inner ear problem sprang to mind when you mentioned the dizziness, but it could be because of a number of reasons. Were you exposed to excess noise in the concerts? It is possible that it is the movement in a car or cinema (or the visually busy K-Mart) that is causing a visual imbalance. It is very worrying that your eyes black out on occasions, and this might suggest there is a positional problem restricting blood flow to your brain. Feeling dizzy for an unknown reason will lead to anxiety in certain situations, but you shouldn't allow this to distract you from finding the real cause of the dizziness. You will need to work out yourself whether you think it might be positional, visual or otherwise based.
    Anonymous 42789 Replies
    • December 23, 2006
    • 09:04 PM
    • 0
    Flag this Response
  • I truthfully do not know how to help you, because I too am going through the same thing. I have a severly underactive thyroid, I have something wrong with my anti-bodies, so I have Hashimoto's thyroiditis. I think, when you go back to the dr in Jan, you should get the dr to check your T4 free, T3 free and a thyroidglobulin anti-bodies test, to rule out, or confirm Hasimoto's. Also, I went on cymbalta, before they found out it was my thyroid. I stayed on it 3 months, it didn't really change my mood. Made me feel sick all the time. As for dizziness, that is something I have had since I can remember. It has gotten a bit better since I went on thyroid meds. But not much. My eyes too will go black, and it would happen,every morning when I would wake up and start walking to the restroom. I haven't had that since the meds, but I still have moments where my vison goes black at any given time. I am having a hard time dealing with a large amount of people. I can't stand anyone within 2 feet of me, unless I know them really well, sometimes even then I don't want my husband to touch me. I start having "panic attacks" because of these situations. I do notice that I get worse if I don't take my thyroid pill at the same time of day. My arms, hands and feet are always freezing. Question: Do you ever feel extremly hot, or a burning sensation inside? Like I feel hot, or something is burning my bones and muscles. But if you feel my skin on those spots, it is really cold. It started in my ears, then included my cheeks, and now recently it is also in my back an legs. Also, sometimes those spots itch like mad. I too took caffine out of my diet and changed what I eat, no difference. I was told to look into addison's disease. Unfortunaly it has a lot of symptoms of other diseases. I am only 22. I was told that all my problems are from my thyroid, but nothing has changed yet. I only was diagnosed with hypo-thyroid in Sept. So I know I haven't given it much of a chance to work properly, since the dr's are still trying to get me at a "normal" spot. Anyways, if you find anything out, let me know, and if you would like, if I find anything usefull I let you know. Good luck on everything.yeah! in august, it accompanied the panic attacks. i'd get this weird burning and tingling in my ears. even sometimes when i'm about to go to sleep, for a minute or two everything will feel really hot. (despite sleeping in my basement with a coal stove so it's normally pretty warm anyway.) but then it goes away and things go back to normal. i like to sleep a lot anymore. it's not really fatigue, but then everything goes away for a while and it's nice to have a break.. the ear doc said it might be something with the fluids in my ears reacting to movements and stuff like that, but i guess i'll hopefully find out next month! thanks for your reply, it's nice to know that i'm not the only person who feels this way.
    Anonymous 42789 Replies
    • December 23, 2006
    • 09:04 PM
    • 0
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  • Were you exposed to excess noise in the concerts?QUOTE].. probably. haha, under most circumstances, the venues were pretty small, and we stood a few feet away from the speakers. but even when my ears were examined, all the doctor saw was a tiny bit of wax. :/
    Anonymous 42789 Replies
    • December 23, 2006
    • 10:22 PM
    • 0
    Flag this Response
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