Discussions By Condition: I cannot get a diagnosis.

gum growths, lots of tests-no answers

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: jlg1963
  • November 9, 2009
  • 07:15 PM

My son developed a quick growing growth on his lower gum. Despite different treatments- including having it removed- it has returned and spread throughout his mouth. The growths are dark red, almost leach like and grow up to overlap his teeth. He is 23 with no risky sexual behaviour. In addition he has had ongoing fatigue, fever ranging from low grade to over 101, cold symptoms, enlarged lymphnodes and stomach symptoms ranging from sharp pains to mild nausea. He has seen a dentist, doctor, oral surgeon, internist, and infectious disease specialist. We still have no answers. He has had blood work several times. His wbc count was slightly elevated at 13,000. No initial signs of mono in the blood work. He had more extensive blood work done Thurs. and we are awaiting results but not really expecting they will show anything new. They are testing for ebv, cmv, bartenellas and hiv. The concern seems to be about lymphoma or leukemia. He had a CT scan done from face to pelvis. No lumps or masses, but the enlarged lymphnodes did show up. Assuming that the blood work is negative, the next step we have been advised to take is to have the largest lymphnode excised and biopsied, and then possibly a bone marrow test. I hate to keep hopping around from Dr to Dr I am thinking oftaking him to U of M or Cleveland Clinic... The photo that shows the one in the front is where it started. This is the one that was removed (it was much larger then) and has returned. Anyone seen this before?

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