Discussions By Condition: I cannot get a diagnosis.

granduloma in toenail,myopathy,elevated liver enzymes,elvated proteins,....

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: sandralee
  • July 16, 2010
  • 08:10 PM

Our teen has the following issues-

Undefined myopathy(via biopsy)
elevated liver enzymes
elevated RBC,WBC,MPV


Her autoimmune panels come back normal mostly-though she has had a positive ANA speckled in the past.

Elevated proteins*did 24 hour urine creatinine and protein elevated, lots of blood in urine, did a spot check(blood and urine) last week and creatinine and BUN have settled down to normal levels but still passing blood and high protein. Which is where they found the liver enzymes still elevated from 2 months ago.

kyphosis and scoliosis(likely due to neurological)
frequent sinus infections-frequent low grade fevers.

muscle and joint pain triggered by about everything.

Food and airborne allergies-

What in the world is going on? Nothing seems to ever get bad enough to go much further then watching-but in the meantime she is missing out on her teen years.

We have seen a lot of specialists, but they just keep finding new ones to send her to...

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