to start with, I live in Australia
I get terrible seizures, (both petit and Grand mal) seizures, but the hospital cant give me a diagnosis.
have had one MRi and two EEG's, and although was not allowed to view results myself, my specialist tells me they were normal, and that it must be all in my head.
appart from the seizures, I am in perfect health, dont do drugs, drink rarely, don't have diabetes, or any elecrolyte imbalances or anything, every time it happens, and i get shekced out I am told my vitals are all good.
I no longer bother going to my hospital, because last time i had a grand mal seizure (which apparently lasted for 11 minutes) and was taken to hospital in the ambulance, my wife heard the nurse saying i had been in heaps of times before (it had been three) and that i must be a junky looking for a drug fix because they could never find anything wrong, and that the ambulance should not bother picking me up next time. that really hurt.
I know i am not mad, and i sure as ***l know o am not having seizures for the fun of it! the stress it puts on my wife, with worrying, and my 2 yo daughter absolutely freaks out and screams, because all she can see is there is something wrong with daddy.
I am at my witts end. I am on epilum (sodium valproate) 2000mg bd, and it seems to me that im am wasting my time with the hospital.
it is almost ot the point where i am wondering if it is worth going off my meds so i get a really bad one that forces them to do something, but i dont want to put my family through that. has anyone else found such ineptitude in the health system? have full insurance, so that is not the problem.
Any suggestions would be fantastic, cause I am all out of ideas and sick of the treatment. or should i say lack of treatment?
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