Since I was a very young child, I have suffered from pains in my joints. It started off as mainly in my legs. My parents tell me I used to wake up screaming. For years I was told by a doctor that is was "growing pains" (which is something of a myth, I am now told). I am also 24 now, so really doubt it would be that. One physician suggest hyper-mobility, but I have lost a lot of my flexibility in recent years. No one really seems to have a clue. I have flares, and can feel awful for weeks then it just goes away, but for the past few months it's stuck.
In January 2007, I was sent to a rheumatologist. I was having a good spell, and in some ways (for once) wish I had been having a "flare" because it may have been easier to find something. They could not find anything conclusive, but said it may be a different story in 10 years time (great, only another 8 years to wait). There is a history of autoimmune diseases in my family- the ones I know of in the family are: Rheumatoid Arthritis, Systematic Lupus Erythematosus, Myasthenia Gravis and Churg-Strauss Syndrome.
My symptoms are: joint pain in my shoulders, hips, elbows, wrists, fingers, knees, ankles and now toes. It feels like they are burning sometimes. I get pain in my long bones (my shin and thigh bone mainly), I feel like I have the flu for most of the year, I feel off my food a lot, I get IBS a long (again, something they had trouble diagnosing and I was giving medicine for gastritis instead). I feel like I have fever, and am hot to the touch. My joints feel hot to the touch too, and I've started putting ice packs on them to cool them down. My fingers look really swollen and red sometimes.
I can't find any joint deformities. I've been on anti-depressents, which did not alleviate any of my pain. I don't find painkillers help me now, even very strong anti-inflammatories don't seem to work (but this is over the counter stuff, I've never been given a prescription). It hurts when I walk.
The thing that is upsetting is that when I go to see my GP, they plain don't believe me. I've been sent to physiotherapy twice to no avail. They've not done blood tests (the last one I had was in 2007). It has been going on for about 2 decades now and has gotten quite unbearable as it's more frequent and has spread. I don't know what to do. :(
Any insight to what it might be and how I should harrass the docs (in the nicest possible way) would be really appreciated!
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