I tried to post this yesterday but I think it must be lost in cyber space somewhere...I don't see it anywhere!
I was hoping someone here might be able to shed a little light on what's been going on with me. I'm hoping to come across someone whose experienced what I'm going through (or knows someone who has). I've been trying to get a solid diagnosis for almost a year now!
It all started last March with a seizure (which for whatever reason seemed to affect the right side of my body more than the left).
I was hospitalized for a week due to non responsiveness after the seizure and a complication from anti-seizure meds they administered (Keppra...it made me sleep for almost 3 days straight).
After being released I had complications with heart palpatations and blood pressure but nothing was found.
I was sent home on Dilantin (which was also too high of a dose that went unnoticed for the first 2 months). Once the dose was lowered I was able to get out of bed. It was then that we realized I was severely sensitive to bright light (motion and sound also bothered me terribly). I would look and act as though I was drunk...unstable, dizzy, vision blurred, slurring speech. To date they can't figure out what this is from!
I then developed severe pain that mostly affected my left side (arm, hand, leg, foot) but does sometimes move into the right side. The pain was debilitating and would leave me in bed for days at a time. Then, it would be gone as quickly as it came! I also experience a tingling sensation on the left side of my brain (both with and without headache). I also experience tremors (both externally and internally) along with being unbalanced most of the time.
My family doctor recently discovered that he felt this was Parkinson's! I do have MANY of the symptoms and after being put on Mirapex improved, even the first day we saw vast improvement! Each day my symptoms seem to become less and less severe, but are still there.
I went to movement disorder specialist earlier this week who basically said I needed a psychiatrist...that the only problem I have is that I'm severely depressed. I can tell you right now, I am NOT! I do have trouble dealing with living with my issues but it doesn't consume my life! We can also track some of my symptoms all the way back to my teen years (of course they were very sporatic and less intense, but...they same symptoms none the less). My own research on my symptoms brings me back to either MS or Parkinson's every time! As much as I'd hate to have either of these, I really want to know what is going on, and what to expect. I seem to have about 80% of the MS symptoms I've found and most like 90% of the symptoms of Parkinson's (of course, early stage Parkinson's).
I have compiled a list of my symptoms if anyone would care to read them! I could post them! If anyone has any advice on where to go next (what field medically I mean) I'd greatly appreciate it! Also, if anyone else is on Mirapex for Parkinson's I'd love to ask you a few questions if possible!
Thanks so much!
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