Hi i am a 29 year old woman with a history of swollen lymph nodes that never get any smaller.
they started in the right side of my neck then right under arm, right groin,left groin,left underarm, left side of neck and then in front of throat under chin and jaw. i have been sent to ent for hoarseness and a feeling of something being stuck in my throat when i swallow, ent Dr said everything looked ok then sent me to the breast clinic for nodes underarms.
this is what the breast clinic Dr said. last seen bilateral breast axillary ultrasound which revealed normal breast tissue and several prominent lymph nodes in both axillae all of which have preserved fatty hilum but with thickened core disease. these features are benign reactive type pattern. ultrasound guided core biopsy was performed on the largest palpable node in the right axilla and histology reavealed features consistent with a reactive lymph node and no evidence of malignancy.
my worries are not eased as Drs seem to be checking just the nodes under my arms. they have never checked the other areas that are affected ie groin neck throat. they all feel rubbery to the touch and never decrease in size, they just gradually get bigger, and until xmas never give me any pain, i had alcohol on 2 occasions over xmas and got a sharp pain in both sides of my neck almost immediately, i don't usually have alcohol and haven't drunk since. the nodes in my right groin feel a lot firmer thantheothers 1 feels like a stone but again does not hurt.
i am worried that maybe i have more nodes enlarged internally. i was told to basically go away as the one under my arm is not malignant.
i was wondering if you could give me some information as to what reactive lymph nodes are? whats the treatment if any? should i urge my gp to send me to a lymph node Dr? or should i just accept what the breast Dr said?
i have had enlarged nodes for a few years now but they all grew gradually and not all at once, they are all palpable and most are visible especially the one on the front of my neck, looks a little like a males adams apple.
the Drs do make me feel like its all in my head and i dont like going to see the Dr if i'm not in pain, i'm not a person that worries either but i would just like to know once and for all, if i have to live with these growing lumps for the rest of my life, i am most concious about the ones in my neck than any of the others as i can hide them easier.
i have occasional night sweats not every night but when i wake up hot and bothered all my hair is damp and i get really itchy i seem to always wake at the same time too ( don't know if this is relevant)
i have a rash that is mainly on my back and been there for almost 12 months i just put it down to heat rash when i sweat gp thought it was a virus at the time. i do feel really tired all the time with lack of energy but again Dr say i would be tired because i have 4 children aged 12, 9, 4,2 so i have a busy lifestyle, but i don't feel my tiredness is due to my children as its getting worse not better. i am not taking any kind of medications. i smoke approx 7 cigarettes a day don't really drink alcohol unless special occasion, and i have never taken any recreational drugs.
i was generally fit and healthy before all this. i did lose quite alot of weight at one point but Drs never found the cause, i have since managed to gain a bit but find it very hard to gain weight, Dr said to go to gym to lift weights as muscle weighs more than fat and there would be no point in gaining weight for the sake of it, so then i felt i looked like a teenage boy from the waist up. the Dr also said if i weighed more i probably wouldn't be able to feel my nodes so much, but i do weigh more now and i can still feel them.
i feel like i am being made to sound like a moaner but my concerns are genuine. as far as i know there is no family history of cancers and no one else in my family has ever had problems with nodes.
a blood test was performed to check for infection and a virus and came back negative. i think i covered just about everything.
any information will be gratefully received
many thanks in advance Geebop1978