Discussions By Condition: I cannot get a diagnosis.

Gastroparesis, abdominal bloating/discomfort, nausea

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: Anonymous
  • December 13, 2006
  • 10:20 PM

This has been going on with me for almost 5 years now and I'm at my wit's end. It's long - bear with me.

History:
- 33 y/o female, fit, mild hypertension (due to stress/thyroid condition.)
- Meds: Synthroid 150mcg, Advair (mild), Solia (birth control.)
- Pyloric Stenosis at 3 weeks old. Surgery done - no problems since.
- Age 23 diagnosed with hyperthyroidism/Graves Disease. Was put on beta-blocker and Tapazole. After 3.5 years of being on meds, was told to go off Tapazole cos bloodwork indicated liver irritation. Was off for one year. Went back on. After year or so back on Tapazole, nodule was discovered on thyroid. Surgery recommended for total thyroidectomy.
- A week or so prior to diagnosis (Age 28) was suddenly overcome with gastrointestinal problems. Strong waves of nausea, and constant mild nausea. Mild to moderate reflux. Upper abdominal bloating/belching. Constant feeling of fullness. Sometimes tightness in chest with bloating (similar to asthma.) Inability to eat/loss of appetite (ate cereal/oatmeal/lite foods... drank water constantly.) Malaise. Upper abdominal "pinching" pain centered more in the middle/lower part of rib cage - near pyloric scar. Tender to touch. No radiating pain. Difficulty exercising (painful), and lying down (had to lay with head elevated due to pain and GERD. Bowel movements regular, and would sometimes lessen "fullness" feeling - but only temporarily. Sometimes would feel worse after bm/urination - upper digestion would have sensation of becoming full again. Also had constant nasal drainage.
- Saw regular GP. Started out with reflux and antihistamine meds. No change. - Saw gastroenterologist. Went through several reflux meds with no change. Nausea/pain/malaise constant and debilitating.
- Bloodwork done: No parasites, or abnormal levels of any function.
- Endoscopy done: No ulcer, hernia, or gallbladder issues. H pylori normal.
- Abdominal ultrasound done: no obstructions or issues noticed.
- Pelvic ultrasound done: normal cysts detected, but nothing significant.
- CT scan done: No issues other than aortic lymph nodes slightly enlarged.
- Motility test done: Positive for gastroparesis. Gastroenterologist just shrugged shoulders cos didn't know why. No diabetes. Was hyper (not hypo)thyroid. No indications of other issues related.
- Decided to finally go through with thyroid surgery in 2003 with hopes that maybe it was the cause. Within a month or so of the surgery, the symptoms went away - for the most part.
- Once a month, a week prior to menses (ovulation time?), I get that fullness and nausea.
- Pathology exam of thyroid tissue indicated I had several spots of cancer. Still small percentage of tissue left in body. After routine check-ups, there seems to be no residual cancer. But will haveto continue with annual ultrasound and bloodwork to monitor.
- 5 months ago, the symptoms started to come back. I decided to see if it was wheat-related... perhaps mild form of Celiac. Bloating went away for a while, but has since returned, as well as all other symptoms. Am continuing to function a bit better than I had the first time, but am still debilitated by it in some ways. I eat lots of yogurt and take acidopholus pills. Drink about 40-60oz of water a day (water sometimes causes discomfort...)
- Exercise is okay. But doing abdominal crunches often causes pain in that upper region, and leaves me bloated and slow-motility feeling.
- Am currently on dosage of Synthroid that is causing me to be mildly hyperthyroid through my Endocrinologist's recommendation. Apparently less reoccurance of cancer if slightly hyper.

Have researched endlessly, but without someone actually doing exploratory surgery, I have no clue. Have narrowed it down to a handful of possibilities.
Gastroparesis seems to be the largest symptom that is not found in many illnesses, so I'm trying to start with that and see if I can find something related:
1. Thyroid function... perhaps causing hormonal imbalance
2. Chronic Fatigue Syndrome - though not as tired as classic symptoms describe.
3. Hiatal Hernia - perhaps more visible now?
4. Liver dysfunction - possibly as result of thyroid issues?
5. Gallbladder - who knows... maybe they missed something?
6. Undiagnosed heart problem - have heard of heart function relating to GI...
7. I'm completely losing my mind.

I haven't been back to the doctor since the symptoms reappeared. I don't have the money to go through another round of testing - even with insurance. Any feedback is GREATLY appreciated!!!

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6 Replies:

  • Sorry to read about your symptoms. II'm a 39 year old male that has been on sunthoid now for 7 years (175) and feel that I do better on lower doses - even through lab works indicate otherwise. They seem to concentrate on the TSH, but once they get that in range, my T4 is at about 2.4The last 2 years or so I've been battling stomach issues (bloating, slight nausea - general discomfort) that are extremely annoying. Like you I have had every test imagineable (three endoscopies, CT scans - you name it). All the gastroenterologists believe it is Gastritis, but how can that last 2 years! Don't give up. I'm going to see a hollistic specialist to see if dietary changes can do what modern medecine has not been able to do for me.
    Anonymous 42789 Replies
    • December 15, 2006
    • 10:29 PM
    • 0
    Flag this Response
  • Sorry to read about your symptoms. II'm a 39 year old male that has been on sunthoid now for 7 years (175) and feel that I do better on lower doses - even through lab works indicate otherwise. They seem to concentrate on the TSH, but once they get that in range, my T4 is at about 2.4The last 2 years or so I've been battling stomach issues (bloating, slight nausea - general discomfort) that are extremely annoying. Like you I have had every test imagineable (three endoscopies, CT scans - you name it). All the gastroenterologists believe it is Gastritis, but how can that last 2 years! Don't give up. I'm going to see a hollistic specialist to see if dietary changes can do what modern medecine has not been able to do for me.Thank you for responding. I'm considering see my Endo again and going back to an alternating combo of 135/150mcg which I was on a year ago and seemed to be fine. Even if he doesn't agree that it's enough. I have a feeling the higher TSH is triggering my high blood pressure as well as other issues. Perhaps Thyrotoxicosis which can cause gastroparesis. I'm sorry to read that you're going through similar symptoms as well. It's so frustrating and emotionally draining to not feel healthy. Best of luck with your holisitic approach - please keep me posted on if you discover anything. I'm considering Ayurveda remedies and acupuncture. I'm getting so tired of doctors.
    Anonymous 42789 Replies
    • December 16, 2006
    • 03:54 AM
    • 0
    Flag this Response
  • maybe celiac disease, celiac can cause many problems even neurological ones. It cant hurt to get tested
    Anonymous 42789 Replies
    • December 16, 2006
    • 09:35 PM
    • 0
    Flag this Response
  • Have you tried any alternative medicine or nutritional treatments? My health consultant has recommended a full range of vitamin capsule (not tablets) supplements. A liver cleanse using Black Cherry concentrate. Additional Coral Calcium and Omega 3 supplements and Spirulina (blue green algae) for digestion. (preferably Hawaiian grown or Light Force.) My digestion and bloating and nausea are diminished and energy improved. Bowl movements regular. She has me drinking at least four ounces of water before any meal and of course taking care what I eat. (with fats and carbs) Protein sources are important too. But that water, in the morning when I rise, a Dan Active. And water before every meal and before bed. I do eat yogurt, but not a lot of other dairy. A little cheese once in while, eggs and some meat, chicken or fish. Soy milk. It even tastes good with plain oat or corn cereals. Hope some of this helps, Cdlee
    Anonymous 42789 Replies
    • September 7, 2008
    • 06:48 PM
    • 0
    Flag this Response
  • I have Chronic Fatigue Syndrome and I have abdominal bloating/discomfort and nausea and the doctors told me that CFS was why.
    Anonymous 42789 Replies Flag this Response
  • This has been going on with me for almost 5 years now and I'm at my wit's end. It's long - bear with me.History:- 33 y/o female, fit, mild hypertension (due to stress/thyroid condition.)- Meds: Synthroid 150mcg, Advair (mild), Solia (birth control.) - Pyloric Stenosis at 3 weeks old. Surgery done - no problems since.- Age 23 diagnosed with hyperthyroidism/Graves Disease. Was put on beta-blocker and Tapazole. After 3.5 years of being on meds, was told to go off Tapazole cos bloodwork indicated liver irritation. Was off for one year. Went back on. After year or so back on Tapazole, nodule was discovered on thyroid. Surgery recommended for total thyroidectomy.- A week or so prior to diagnosis (Age 28) was suddenly overcome with gastrointestinal problems. Strong waves of nausea, and constant mild nausea. Mild to moderate reflux. Upper abdominal bloating/belching. Constant feeling of fullness. Sometimes tightness in chest with bloating (similar to asthma.) Inability to eat/loss of appetite (ate cereal/oatmeal/lite foods... drank water constantly.) Malaise. Upper abdominal "pinching" pain centered more in the middle/lower part of rib cage - near pyloric scar. Tender to touch. No radiating pain. Difficulty exercising (painful), and lying down (had to lay with head elevated due to pain and GERD. Bowel movements regular, and would sometimes lessen "fullness" feeling - but only temporarily. Sometimes would feel worse after bm/urination - upper digestion would have sensation of becoming full again. Also had constant nasal drainage.- Saw regular GP. Started out with reflux and antihistamine meds. No change. - Saw gastroenterologist. Went through several reflux meds with no change. Nausea/pain/malaise constant and debilitating. - Bloodwork done: No parasites, or abnormal levels of any function.- Endoscopy done: No ulcer, hernia, or gallbladder issues. H pylori normal. - Abdominal ultrasound done: no obstructions or issues noticed.- Pelvic ultrasound done: normal cysts detected, but nothing significant.- CT scan done: No issues other than aortic lymph nodes slightly enlarged.- Motility test done: Positive for gastroparesis. Gastroenterologist just shrugged shoulders cos didn't know why. No diabetes. Was hyper (not hypo)thyroid. No indications of other issues related. - Decided to finally go through with thyroid surgery in 2003 with hopes that maybe it was the cause. Within a month or so of the surgery, the symptoms went away - for the most part.- Once a month, a week prior to menses (ovulation time?), I get that fullness and nausea. - Pathology exam of thyroid tissue indicated I had several spots of cancer. Still small percentage of tissue left in body. After routine check-ups, there seems to be no residual cancer. But will haveto continue with annual ultrasound and bloodwork to monitor. - 5 months ago, the symptoms started to come back. I decided to see if it was wheat-related... perhaps mild form of Celiac. Bloating went away for a while, but has since returned, as well as all other symptoms. Am continuing to function a bit better than I had the first time, but am still debilitated by it in some ways. I eat lots of yogurt and take acidopholus pills. Drink about 40-60oz of water a day (water sometimes causes discomfort...)- Exercise is okay. But doing abdominal crunches often causes pain in that upper region, and leaves me bloated and slow-motility feeling. - Am currently on dosage of Synthroid that is causing me to be mildly hyperthyroid through my Endocrinologist's recommendation. Apparently less reoccurance of cancer if slightly hyper. Have researched endlessly, but without someone actually doing exploratory surgery, I have no clue. Have narrowed it down to a handful of possibilities.Gastroparesis seems to be the largest symptom that is not found in many illnesses, so I'm trying to start with that and see if I can find something related:1. Thyroid function... perhaps causing hormonal imbalance 2. Chronic Fatigue Syndrome - though not as tired as classic symptoms describe.3. Hiatal Hernia - perhaps more visible now?4. Liver dysfunction - possibly as result of thyroid issues?5. Gallbladder - who knows... maybe they missed something?6. Undiagnosed heart problem - have heard of heart function relating to GI...7. I'm completely losing my mind.I haven't been back to the doctor since the symptoms reappeared. I don't have the money to go through another round of testing - even with insurance. Any feedback is GREATLY appreciated!!!I sympathize with you, I have the same things going on with me. I have had every test you have mentioned and the same results. I just started thyroid meds too. The only thing that came out with something wrong was my uterus has some fibroids. My gastro doc said if I get that taken care of with surgery, i should be ok. my gastro doc has placed me on meds for the nausea and protonix for the reflux. Tomorrow im having the small bowel series and everyone around me thinks im nuts for going thru all these tests. I know my own body and when you cant function through your normal day, you know something is wrong. Don't give up, keep testing till whatever it is is found. I'm not giving up on myself.
    Anonymous 42789 Replies Flag this Response
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