This has been going on with me for almost 5 years now and I'm at my wit's end. It's long - bear with me.
- 33 y/o female, fit, mild hypertension (due to stress/thyroid condition.)
- Meds: Synthroid 150mcg, Advair (mild), Solia (birth control.)
- Pyloric Stenosis at 3 weeks old. Surgery done - no problems since.
- Age 23 diagnosed with hyperthyroidism/Graves Disease. Was put on beta-blocker and Tapazole. After 3.5 years of being on meds, was told to go off Tapazole cos bloodwork indicated liver irritation. Was off for one year. Went back on. After year or so back on Tapazole, nodule was discovered on thyroid. Surgery recommended for total thyroidectomy.
- A week or so prior to diagnosis (Age 28) was suddenly overcome with gastrointestinal problems. Strong waves of nausea, and constant mild nausea. Mild to moderate reflux. Upper abdominal bloating/belching. Constant feeling of fullness. Sometimes tightness in chest with bloating (similar to asthma.) Inability to eat/loss of appetite (ate cereal/oatmeal/lite foods... drank water constantly.) Malaise. Upper abdominal "pinching" pain centered more in the middle/lower part of rib cage - near pyloric scar. Tender to touch. No radiating pain. Difficulty exercising (painful), and lying down (had to lay with head elevated due to pain and GERD. Bowel movements regular, and would sometimes lessen "fullness" feeling - but only temporarily. Sometimes would feel worse after bm/urination - upper digestion would have sensation of becoming full again. Also had constant nasal drainage.
- Saw regular GP. Started out with reflux and antihistamine meds. No change. - Saw gastroenterologist. Went through several reflux meds with no change. Nausea/pain/malaise constant and debilitating.
- Bloodwork done: No parasites, or abnormal levels of any function.
- Endoscopy done: No ulcer, hernia, or gallbladder issues. H pylori normal.
- Abdominal ultrasound done: no obstructions or issues noticed.
- Pelvic ultrasound done: normal cysts detected, but nothing significant.
- CT scan done: No issues other than aortic lymph nodes slightly enlarged.
- Motility test done: Positive for gastroparesis. Gastroenterologist just shrugged shoulders cos didn't know why. No diabetes. Was hyper (not hypo)thyroid. No indications of other issues related.
- Decided to finally go through with thyroid surgery in 2003 with hopes that maybe it was the cause. Within a month or so of the surgery, the symptoms went away - for the most part.
- Once a month, a week prior to menses (ovulation time?), I get that fullness and nausea.
- Pathology exam of thyroid tissue indicated I had several spots of cancer. Still small percentage of tissue left in body. After routine check-ups, there seems to be no residual cancer. But will haveto continue with annual ultrasound and bloodwork to monitor.
- 5 months ago, the symptoms started to come back. I decided to see if it was wheat-related... perhaps mild form of Celiac. Bloating went away for a while, but has since returned, as well as all other symptoms. Am continuing to function a bit better than I had the first time, but am still debilitated by it in some ways. I eat lots of yogurt and take acidopholus pills. Drink about 40-60oz of water a day (water sometimes causes discomfort...)
- Exercise is okay. But doing abdominal crunches often causes pain in that upper region, and leaves me bloated and slow-motility feeling.
- Am currently on dosage of Synthroid that is causing me to be mildly hyperthyroid through my Endocrinologist's recommendation. Apparently less reoccurance of cancer if slightly hyper.
Have researched endlessly, but without someone actually doing exploratory surgery, I have no clue. Have narrowed it down to a handful of possibilities.
Gastroparesis seems to be the largest symptom that is not found in many illnesses, so I'm trying to start with that and see if I can find something related:
1. Thyroid function... perhaps causing hormonal imbalance
2. Chronic Fatigue Syndrome - though not as tired as classic symptoms describe.
3. Hiatal Hernia - perhaps more visible now?
4. Liver dysfunction - possibly as result of thyroid issues?
5. Gallbladder - who knows... maybe they missed something?
6. Undiagnosed heart problem - have heard of heart function relating to GI...
7. I'm completely losing my mind.
I haven't been back to the doctor since the symptoms reappeared. I don't have the money to go through another round of testing - even with insurance. Any feedback is GREATLY appreciated!!!