Discussions By Condition: I cannot get a diagnosis.

Gastric and multitude of symptoms

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Anonymous
  • October 25, 2008
  • 06:05 PM

The symptoms are:
-chronic diarrhea
-low blood pressure
-pain that loops around the right side from the stomach to beside the belly button
-the pain also causes swelling inflammation
-b12 deficiency on and off
-canker soars
-weight loss of 35lbs

The doctors have ruled out Addison's, Thyroid, Celiac, Lactose intolerance, (i avoid gluten and dairy anyway but still get sick), Crohn's disease, colitis, ulcers, adrenal tumors, carcinoid tumors, Lupus, etc. The symptoms are constant daily, it's horrible.

I had a CT that showed spots on my liver but when they scanned it with an ultrasound they couldn't find it.

The symptoms have gotten worse over the past several years, to the point where I've been crippled I can't go a day without being sick. I've been sick since I was 18 and it just has never gotten better. My doctor is very worried there is something wrong but its not an obvious answer. Any suggestions on this or what I should do?

Reply Flag this Discussion

3 Replies:

  • Already having all those tests which showed nothing and having all those symptoms which affect many areas along with the low BP (86% of CFS patients get that).. makes me think you may have chronic fatigue syndrome (also known as chronic fatigue immunity dysfunction syndrome). The diarrhea could be irritable bowel sydrome (IBS).. which is quite normal in CFS. I suggest you check out http://wwcoco.com/cfids/bernesx.html (for a full list of symptoms and how common that symptom is in CFS/CFIDS based on scientific studies). The CDC says that 80-90% of CFS patients are sick and undiagnosed. Doctors are relunctant to diagnose it as most cant tell CFS from other illnesses and many have never dealt with a CFS patient. http://www.prohealth.com/me-cfs/index.cfm is a great site for more info (support and on finding a doctor who specialises in this). There are in fact test findings which are found in CFS but as they are also found in other illnesses too.. they aint specific for this illness (they are not the "common" medical tests doctors think to do but more specialised medical tests). But if you go and see a CFS specialist.. he may test you for these other things which will help to back up a diagnoses. (thou a CFS specialist can usually tell a CFS patient a mile off as we all present very similarly thou each is slightly different)............... i also suggest getting all food intollerances ruled out.. that testing isnt the same as normal allergy testing. Just in case your issues are still food related. Doctors are usually more familar with food allergies than food intollerances ...but food intollerances can affect people too.
    taniaaust1 2267 Replies
    • October 26, 2008
    • 08:59 AM
    • 0
    Flag this Response
  • Definitely get tested for food intolerance, particularly celiac disease. Try here: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/
    aquila 1263 Replies
    • October 27, 2008
    • 04:43 PM
    • 0
    Flag this Response
  • have you had a small bowel biospy? was atrophic gastritis ruled out?
    Anonymous 1 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.