Discussions By Condition: I cannot get a diagnosis.

Full body burning sensations

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: shadowkitty
  • August 28, 2007
  • 11:06 PM

I have had several instances of severe burning pain. The doctors don't know what is wrong. I have been to the ER and doctors office several times. I have had a heart stress test, blood work, had my vitals monitored, etc. I have had an attack while hooked up to all the heart and blood pressure machines in the ER, and all the machines said that I was normal! The last doctor said that he had never heard of this, and he didn't know how to help me. It's not a panic attack, an anxiety attack, or in my head, as other doctors have suggested. I usually wake up with a tight feeling in my chest, it gets hard to breathe, then a strong burning pain radiates out from my chest to my arms and legs for several hours. The pain is so bad that I feel like I'm dying. The sensations last for several days, slowly fading away. The first time it happened I felt like I was on fire! The doctor's thought I had had a bad reaction to Effexor, and took me off that. Then they thought it might be the Lovastatin, and took me off that. But I am still having these attacks. I have asthma, and when I take my Albuterol inhaler for the breathing problem in the beginning, it makes the burning even worse! I am also taking Q-var, Nasarel, and Wellbutrin. My doctor is going to try weaning me off the Wellbutrin to see if that is it, but since I can tolerate this med, I don't want to go off and have to try a new antidepressant. Has anyone else had symptoms like these? Could it be Albuterol, or one of the asthma meds? When an attack happens, there is nothing I can do except suffer until it goes away! I don't know what to do next. Any help or ideas would be gratefully received!

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8 Replies:

  • Do you feel like your pain is coming from the trachea (windpipe) or maybe the esophagus? I'm surprised no one has mentioned GERD. Look it up and do all the little mechanical things they suggest (like elevating the head of your bed), and see if that helps. If I don't take Prilosec regularly, I can get a burn that is like battery acid.
    rad-skw 1605 Replies
    • August 29, 2007
    • 11:50 AM
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  • Burning pain is usually nerve related. With your history, you might want to think about your calcium, potassium or other mineral level imbalances. It also sounds like thoracic outlet syndrome could be a possible cause.
    Kirmize 6 Replies
    • August 29, 2007
    • 01:14 PM
    • 0
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  • Thanks for all the ideas. I started taking Famotidine for possible GERD about a month ago, but I am still getting the burning symptoms. Kirmize, I was wondering about the mineral level imbalances. How do I find out if this is the cause? Also, what is it about my history that points to this? I looked up thoracic outlet syndrome, but I don't think this is it. I'll mention it to the doctor, though.
    shadowkitty 1 Replies
    • September 29, 2007
    • 03:31 AM
    • 0
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  • I have had several instances of severe burning pain. The doctors don't know what is wrong. I have been to the ER and doctors office several times. I have had a heart stress test, blood work, had my vitals monitored, etc. I have had an attack while hooked up to all the heart and blood pressure machines in the ER, and all the machines said that I was normal! The last doctor said that he had never heard of this, and he didn't know how to help me. It's not a panic attack, an anxiety attack, or in my head, as other doctors have suggested. I usually wake up with a tight feeling in my chest, it gets hard to breathe, then a strong burning pain radiates out from my chest to my arms and legs for several hours. The pain is so bad that I feel like I'm dying. The sensations last for several days, slowly fading away. The first time it happened I felt like I was on fire! The doctor's thought I had had a bad reaction to Effexor, and took me off that. Then they thought it might be the Lovastatin, and took me off that. But I am still having these attacks. I have asthma, and when I take my Albuterol inhaler for the breathing problem in the beginning, it makes the burning even worse! I am also taking Q-var, Nasarel, and Wellbutrin. My doctor is going to try weaning me off the Wellbutrin to see if that is it, but since I can tolerate this med, I don't want to go off and have to try a new antidepressant. Has anyone else had symptoms like these? Could it be Albuterol, or one of the asthma meds? When an attack happens, there is nothing I can do except suffer until it goes away! I don't know what to do next. Any help or ideas would be gratefully received!You are having a severe allergic reaction. I have been there and suffered terribly. Please look into NAET at naet.com and visit a doctor of Oriental Medicine that works with NAET.Your problem is rooted in your Central Nervous System and in your Immunse system (which runs in your blood). Please do as much reading as you can. Psychiatry is only a temporary solution. Best.
    Eatafruit78 960 Replies
    • September 29, 2007
    • 07:57 AM
    • 0
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  • Well, as I said, burning pain is usually a symptom of something happening to your nerves. (Not psychological nerves, your nerves that transmit signels from your brain to your body and back)The reason why I said mineral/electrolyte levels is because those are the common things that nerves use that when are too low or two high cause pretty severe symptoms. The other thing that can cause a strange feeling spreading out like that is getting too much niacin. You may want to read the effects of the antidepressants and other meds you are taking because I believe they do affect niacin levels. As an example, if you are taking a multivitamin daily you are getting a steady dose of niacin. But say, Effexor as an example only, states that you should not take niacin because Effexor causes niacin levels to rise. See what I am saying? If a drug causes niacin to rise, and you take more niacin on top of it, you will get a niacin flush which is pretty nasty if you don't know what it is. And if it is a niacin flush that lasts several hours, you are DEFINITELY getting way too much niacin.Many people taking extra niacin for the first time will get that flush and think they are dying of a heart attack or something! I know if I had not known about it before I took it the first time I would have gone to the ER for sure.Anyway, since you are taking so many drugs at the same time, I would talk to a good pharmacist because they are much more educated about drug and vitamin and supplement interactions than Drs are. And they know more about the residual effects of a drug that you stopped taking causing problems with a drug you are starting.Hope this helps.
    Kirmize 6 Replies
    • October 3, 2007
    • 02:45 AM
    • 0
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  • Well, as I said, burning pain is usually a symptom of something happening to your nerves. (Not psychological nerves, your nerves that transmit signels from your brain to your body and back)The reason why I said mineral/electrolyte levels is because those are the common things that nerves use that when are too low or two high cause pretty severe symptoms. The other thing that can cause a strange feeling spreading out like that is getting too much niacin. You may want to read the effects of the antidepressants and other meds you are taking because I believe they do affect niacin levels. As an example, if you are taking a multivitamin daily you are getting a steady dose of niacin. But say, Effexor as an example only, states that you should not take niacin because Effexor causes niacin levels to rise. See what I am saying? If a drug causes niacin to rise, and you take more niacin on top of it, you will get a niacin flush which is pretty nasty if you don't know what it is. And if it is a niacin flush that lasts several hours, you are DEFINITELY getting way too much niacin.Many people taking extra niacin for the first time will get that flush and think they are dying of a heart attack or something! I know if I had not known about it before I took it the first time I would have gone to the ER for sure.Anyway, since you are taking so many drugs at the same time, I would talk to a good pharmacist because they are much more educated about drug and vitamin and supplement interactions than Drs are. And they know more about the residual effects of a drug that you stopped taking causing problems with a drug you are starting.Hope this helps.My Father once took a normal dose of straight niacin and though he was going to die, because he felt his skin was on fire. But he just took straight niacin without the amide group attached, which is properly called, niacinamide. Always get niacinamide, not niacin. Stop taking niacin and your symptoms should go away.
    Anonymous 42789 Replies
    • October 3, 2007
    • 04:24 PM
    • 0
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  • hi, I'm having the same symptoms and have been reading about trichinosis(we have been eating alot of chinese food and I recall mentioning that the meat sometimes is not cooked enough?) and also tetanus. These are just a couple of other ideas for you to look at...it is scaring me and it feel like I have been poisoned. Are you breaking out in a rash/rashes at all? If I itch AT TIMES and scratch or rub it all all, it turns to hives immediately. Around my face is driving me crazy. There are some muscle 'spasms' and my left eye has been 'twitching' too. This even causes my bp to elevate on some days.So many things have the SAME symptoms! I am seeing a doctor this week and for once in my life I'm happy about it. I have read so much medical information that I will be telling HIM alot ... good luck.
    Anonymous 42789 Replies
    • October 3, 2007
    • 06:00 PM
    • 0
    Flag this Response
  • I have had several instances of severe burning pain. The doctors don't know what is wrong. I have been to the ER and doctors office several times. I have had a heart stress test, blood work, had my vitals monitored, etc. I have had an attack while hooked up to all the heart and blood pressure machines in the ER, and all the machines said that I was normal! The last doctor said that he had never heard of this, and he didn't know how to help me. It's not a panic attack, an anxiety attack, or in my head, as other doctors have suggested. I usually wake up with a tight feeling in my chest, it gets hard to breathe, then a strong burning pain radiates out from my chest to my arms and legs for several hours. The pain is so bad that I feel like I'm dying. The sensations last for several days, slowly fading away. The first time it happened I felt like I was on fire! The doctor's thought I had had a bad reaction to Effexor, and took me off that. Then they thought it might be the Lovastatin, and took me off that. But I am still having these attacks. I have asthma, and when I take my Albuterol inhaler for the breathing problem in the beginning, it makes the burning even worse! I am also taking Q-var, Nasarel, and Wellbutrin. My doctor is going to try weaning me off the Wellbutrin to see if that is it, but since I can tolerate this med, I don't want to go off and have to try a new antidepressant. Has anyone else had symptoms like these? Could it be Albuterol, or one of the asthma meds? When an attack happens, there is nothing I can do except suffer until it goes away! I don't know what to do next. Any help or ideas would be gratefully received!Hi, I think I am having the same sensations that you are describing. They began right around the time I started taking Effexor at 75 mg a day. I only get the sensation while lying down and i am just about to fall asleep, but they are completely unbearable; they begin around my stomach area and the pain radiates out to my legs and feet, and arms and hands. I have also been to the emergency room and had tests run with no conclusive diagnosis, just a doctor saying the feelings are the result of an anxiety attack. I am a bit confused in the sense that I have no problems during the day and only at night right around while I am falling asleep.Please let me know if you find out what this is, or some way to stop the feelings, I promise to do the same for you. Best of luck.
    Anonymous 42789 Replies Flag this Response
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