This past September, I had a severe respiratory infection which was treated with two rounds of antibiotics, steroids and nebulizer treatments. I never recovered fully and just generally felt fatigued. In November I started having lower right abdominal pain, fever, chills, extreme exhaustion. Some weeks I was ok, other weeks I couldn't get out of bed. Just after the New Year, the pain worsened and I developed a severe case of diarrhea and vomiting which included large quantities of bright red blood involved in both. Went to the ER, they said colitis, gave me Cirpo and Flagyll and told me to see my GP. My GP said it was the flu or stress. :confused:
Since then I have been unable to eat anything without extreme pain and stomach upset. I've been in the hospital twice since for high fever, diarrhea, vomiting, and dehydration. I continue to have bleeding. I have had a rash off and on for 2 years that has really flared the last 6-8 weeks. I've lost 20 pounds since November. I can't function and spend most of the day laying down as my stomach is constantly cramping and my body hurts in a way I cannot describe.
I had a colonscopy last week and GI doc said ulcerative colitis or Chron's based on visible state of my colon. But, biopsies came back negative for both. Stool cultures and blood cultures are normal. All other bloodwork is normal, aside from my WBC which continually ranges between 12,000 and 22,000. Negative for Celiac Disease. Had a normal pelvic sono and also normal abdominal CAT scan.
I've had periods of being generally unwell for 7 years now. Time span between episodes can be as much as 1-2 years. The episodes started as extreme fatigue, joint pain, muscle achiness, chronic fever, and stomach upset. But, nothing has EVER been to this extreme. I also have a history of chronic tonsillitis, respiratory illness, rashes, asthma and unexplained recurrent miscarriage.
The GP always thinks its auto-immune but all tests are always negative. I can't get a referral to a Rheumatologist without a positive titre. I've seen an Infectious Disease doc who said I don't have an infectious disease and he can't help me. Now seeing the GI guy who is stumped by the apparently UC or Chron's that has biopsied normal. I've seen the GYN as well and everything is normal.
Anyone have any ideas? I've wondered if its some kind of extreme allergies?
All I know is I'm barely hanging on and running out of options as my symptoms are random and my bloodwork and testing is always relatively normal despite the apparent symptoms. I'm not thrilled with my GP who has chalked any and all illness I've had up to stress. Time for a second opinion?