Discussions By Condition: I cannot get a diagnosis.

Frustrated and don't know what else to do

Posted In: I cannot get a diagnosis. 16 Replies
  • Posted By: jessigirl1963
  • January 20, 2009
  • 04:05 PM

My 10 year old daughter has terrible stomach cramps and constantly has to pee.It's to the point of her tinkling in her underwear if she can't get to the bathroom within minutes of the urge to go.This has been going on for about a year and it's just been getting worse with pain more often and having to go to the bathroom more often.I have had her to the doctors numerous times, they have checked for infections and recently for diabetes.Everything keeps coming back normal.I'm getting frustrated because it seems like the doctors just don't care.When the test come back negative that's it they don't attempt to check other things unless I push about it.Like I said this started about a year ago so obviously there is something wrong with her.Any suggestions?

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16 Replies:

  • Has she been seen by a urologist?
    richard wayne2b 1232 Replies
    • January 20, 2009
    • 09:07 PM
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  • Hi Richard, thanks for responding.No she has not been seen by any specialist whats so ever.Her doctor has not even mentioned about sending her to any kind of neurologist or any other kind of specialist, why I have no idea.I've questioned it but I get the well everything else is showing normal speech
    jessigirl1963 1 Replies
    • January 20, 2009
    • 11:33 PM
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  • I'm with Richard. See a urologist. But for your own info, try this: http://familydoctor.org/online/famdocen/home/children/parents/toilet/366.html
    aquila 1263 Replies
    • January 21, 2009
    • 05:22 PM
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  • I agree with Blaze that electrosensitivity is a real consideration with a lot of people. (I am as well, but it affects me in different ways.) One thing for sure - and electrosensitivity could be the cause because it puts the body into stress - there is likely a candida yeast imbalance. Stress causes the adrenals to produce cortisol which is "candida food". Radiation also impacts the immune system which causes candida imbalance. Or it can just be diet based - too much sugar and fast foods, packaged foods. These contain MSG which causes an increase in insulin production - also "candida food". Regardless of the cause of the imbalance, just try a few diet changes for a couple of weeks.. dramatically cut sugar and refined starches, juices etc., focus on lots of green veg, salads, meat/fish/eggs and give her 3 drops of oil of oregano 2 x day in a bit of apple juice (yes it's a juice, but the oregano is so strong it balances out the sugars) to kill the yeast. Another pleasant anti candida drink is 2 cloves in a mug of hot water. I wrote an article on this which was published in the short version - if you like it I'll send it to you.regards, Karen
    Kinesiologist 62 Replies
    • January 21, 2009
    • 11:29 PM
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  • Okay, there are numerous considerations when evaluating dysfunctional voiding in a young child and I would agree that a referral to a pediatric urologist is most appropriate. The general practitioner is more likely than not to dismiss a child's incontinence episodes as urge incontinence, an extremely familiar phenomenon in children who avoid urgency to maintain focus on pleasurable activities, ultimately subcumbing to incontinence in many cases. If tests have been performed to rule out the presence of a UTI, then a clue mentioned in your posting may likely be associated with the onset of dysfunctional voiding in your child. Realize that the nerve plexus for the sphincters of the bladder and rectum are very close in proximity, such that dysfunction in one region can definitely affect the other. The mention of prominent stomach cramps that may be related to constipation or other GI dysfunction can impose pressure on the neck of the urinary bladder that can cause or sustain detrusor instability, which in simple terms affects the smooth muscle and neural network which induces urinary voiding, thus interfering with central inhibition in some cases. Hence the sudden urgency and incontinence. The condition, when present, is known as Associated Bowel Dysfunction. Agressive treatment of GI dysfunction will typically result in resolution of the urinary dysfunction as well. It's also important here to realize that treatment for dysfunctional voiding must be addressed promptly because children will typically exercise voluntary control of the urinary sphincter to delay or interrupt urination, a practice that if chronic enough in the presence of a urinary dysfunction can lead to vesicourerteral reflux. So prompt attention in seeking evaluation and treatment for the original urinary dysfunction will result in a lesser chance of complications such as I've mentioned. Again, prompt evaluation by a pedatric urologist is recommended. Best regards, J Cottle, MD
    JCottleMD 580 Replies
    • January 22, 2009
    • 00:26 AM
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  • I'm also going to post here in response to those who persistently attempt to impose charismatic remedies for persons in need of medical information. While I certainly have an unwavering disdain for such practices generally directed toward the adult population, I find it absolutely repugnant that it is avidly recommended in cases where young children are concerned as well. There is absolutely nothing whatsoever about electrosensitivity, candida or any other absolute nonsense associated with this child's condition and I would admonish you regarding the consistent attempt to convey medical expertise in either the evaluation or treatment of persons seeking medical information on this forum, most particularly where children are concerned. It is, without doubt, a reckless endeavor and in certain instances may cause hesitancy or delay in a parent bringing their child for necessary medical evaluation or timely treatment. While the forum is certainly open to public participation, it should be noted here that persons who are directing others to seek treatment via charismatic practices are not licensed physicians, nor do they possess the medical training or experience to provide appropriate discourse to persons seeking answers to medical inquiry. regards, J Cottle, MD
    JCottleMD 580 Replies
    • January 22, 2009
    • 00:39 AM
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  • The mother is clearly searching out medical attention and should pursue it until the issue is resolved - absolutely. Perhaps I should have mentioned that again. We all certainly appreciate when an MD gives their time and expertise to help out others in desperate situations. I've worked here in Europe in medical clinics and the heath field for 15 years and this sounds like the kind of situation where an anti-candida diet (mainly cutting out sugars and un-necessary stressors such as chemicals/MSG in the diet) could be beneficial while the search goes on. Also a surprising number of people are significantly impacted by high tech environments. It is actually grounds for paid disability leave in Sweden, and recognised in other countries. I tend to get a lot of clients who havn't had success with clinical medicine and have had to explore many possibilties - perhaps something I can offer this forum. These are some of the issues that are often over looked because they are not easy to test for accurately, or there is not yet enough research out to be accepted mainstream. It is certainly not to replace or delay appropriate medical care and I truly appologise if it sounded that way. Karen
    Kinesiologist 62 Replies
    • January 22, 2009
    • 02:21 AM
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  • The mother is clearly searching out medical attention and should pursue it until the issue is resolved - absolutely. Perhaps I should have mentioned that again. We all certainly appreciate when an MD gives their time and expertise to help out others in desperate situations. I've worked here in Europe in medical clinics and the heath field for 15 years and this sounds like the kind of situation where an anti-candida diet (mainly cutting out sugars and un-necessary stressors such as chemicals/MSG in the diet) could be beneficial while the search goes on. Also a surprising number of people are significantly impacted by high tech environments. It is actually grounds for paid disability leave in Sweden, and recognised in other countries. I tend to get a lot of clients who havn't had success with clinical medicine and have had to explore many possibilties - perhaps something I can offer this forum. These are some of the issues that are often over looked because they are not easy to test for accurately, or there is not yet enough research out to be accepted mainstream.It is certainly not to replace or delay appropriate medical care and I truly appologise if it sounded that way. Karen Thank you Karen. Well said. The evolution of modern medicine will include integrative approaches such as Traditional Chinese medicine, Ayervedic medicine, and many other modalities. The Pentagon in the US of A is even studying acupuncture and holistic approaches to treating our veterans returning from Iraq with PTSD. Dr. Cottle has his opinions on this, and his prejudices. But the fact is that there are many paths towards healing. I have used homeopathic treatments on my children since they were babies. And yes, when appropriate, I have used antibiotics in rare instances. Candida should be ruled out IMO. I would recommend having a stool exam done to test the range of candida found in the stool. This is a simple noninvasive test that can show if there is candida overgrowth. And yes, I MUCH prefer herbal candida cleanses over allopathic antifungal meds. Best wishesDOM
    acuann 3080 Replies
    • January 22, 2009
    • 03:54 AM
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  • My daughter is also 10 years old. She has had chronic urinary tract infections since she was 10 months old. She also could not hold herself to urinate. She had to always where diapers. It took me 4 years to finally find a doctor (nephrology specialist) that knew what she had. She has a disfunctional bladder. I would strongly suggest you see a nephrologist or/and urologist. The name of the test they had my daughter take is called a Urodynamic Study. It's basically an EKG of the bladder. Just a suggestion...good luck..i feel your pain..
    Anonymous 42789 Replies
    • January 22, 2009
    • 05:16 AM
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  • Yes a stool sample for candida is a good suggestion however these tests are not always completely reliable. Another method of identifing excess candida in the system is live blood cell micoscropy - you can actually see yeast in the live blood sample if it's there. Also, has your daughter been tested for celiac disease and dairy allergy? Both can cause strong reactions. I had a client in Germany who was on stomach medication (which didn't always ease the pain) for 30 years since she was 11. It turned out to be milk sensitivity which happened when her family moved to a city - the milk source changed from raw milk to today's processed milk. It's possible for these sensitivities to suddenly start to manifest, sometimes from high exposure if she eats a lot of wheat or dairy products..regards, Karen
    Kinesiologist 62 Replies
    • January 22, 2009
    • 10:40 AM
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  • Well please make certain to notify your local emergency room and healthcare providers to instruct them that in all instances where medical emergencies occur such as heart attack, stroke or any other emergent medical crisis arises, that all allopathic care will be postponed until such time that charismatic efforts have been exhausted, including acupuncture, holistic cleansing, herbal remedies such as oil of oregano and a stool exam to check for candida overgrowth have all been performed. It's nothing more than mask and rattle nonsense that in many cases, places people at jeopardy. When you people are truly sick, you don't go running for the St. John's Wort. You end up right under our noses demanding that we make you well. I certainly don't see you trying to choke down the oil of oregano when those instances arise. You rather look scared as ***l, with no confidence at all in your remedies. The collective willingness to try and promote snake-oil remedies to parents of children experiencing health problems is disgusting and you should be ashamed. Any adult who wishes to consume oils and potions is their own choice, but children of all ages have the unswerving right to competent medical care by a licensed medical doctor. J Cottle, MD
    JCottleMD 580 Replies
    • January 22, 2009
    • 01:16 PM
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  • Well please make certain to notify your local emergency room and healthcare providers to instruct them that in all instances where medical emergencies occur such as heart attack, stroke or any other emergent medical crisis arises, that all allopathic care will be postponed until such time that charismatic efforts have been exhausted, including acupuncture, holistic cleansing, herbal remedies such as oil of oregano and a stool exam to check for candida overgrowth have all been performed. It's nothing more than mask and rattle nonsense that in many cases, places people at jeopardy. When you people are truly sick, you don't go running for the St. John's Wort. You end up right under our noses demanding that we make you well. I certainly don't see you trying to choke down the oil of oregano when those instances arise. You rather look scared as ***l, with no confidence at all in your remedies. The collective willingness to try and promote snake-oil remedies to parents of children experiencing health problems is disgusting and you should be ashamed. Any adult who wishes to consume oils and potions is their own choice, but children of all ages have the unswerving right to competent medical care by a licensed medical doctor. J Cottle, MD Really, Dr. Cottle? No one is mentioning using CAM medicine to replace allopathic medicine. Stop this. You are the one going overboard here. All of the CAM suggestions posted on these boards are suggestions in addition to the allopathic suggestions. DOM
    acuann 3080 Replies
    • January 23, 2009
    • 04:43 PM
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  • Really, Dr. Cottle? No one is mentioning using CAM medicine to replace allopathic medicine. Stop this. You are the one going overboard here. All of the CAM suggestions posted on these boards are suggestions in addition to the allopathic suggestions. DOM Exactly DOM..thank you. Clearly it's important to keep medical tabs on the situation and do what can be done with allopathic medicine, but so far it's not working. One would have to say it is most responsible to the child to look at all possible options until a solution is found.
    Kinesiologist 62 Replies
    • January 23, 2009
    • 09:28 PM
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  • Who of you is smart enough and medically trained enough to really evaluate all the options?
    richard wayne2b 1232 Replies
    • January 23, 2009
    • 10:02 PM
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  • Exactly DOM..thank you. Clearly it's important to keep medical tabs on the situation and do what can be done with allopathic medicine, but so far it's not working. Statements like this don't surprise me in the least and are direct testimony to the fact that charismatics believe their role is to keep tabs on physicians and stand ready to cure the patient when we're through stumbling around in the dark. If you wish to be a licensed medical doctor with the actual responsibility for evaluation and treatment of illness and disease, then I suggest that you attend medical college if you have what it takes. If not, then I stand by my opinion that children have a right to competent medical care and treatment in the absence of being directed to consume potions and herbs when, in fact, you haven't the slightest notion of the breadth of actual medical conditions that may truly underlie the symptoms in this young girl, or anyone else on the forum for that matter. In your estimation, they all have celiac disease, yeast and mold infections, Lyme disease and my all-time favorite, electrosensitivity. This is an open forum and I'm stating my opinons as freely as any other member here. As for exercising all options, you can rest assured that the discipline of allopathic medicine will never open its doors to the likes of what is being demonstrated on this forum. J Cottle, MD
    JCottleMD 580 Replies
    • January 23, 2009
    • 11:17 PM
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  • Just thought I'd post link for people's interest:http://hsc.unm.edu/som/cfl/facultynstaff.shtml My colleaque is on the staff at this wonderful institution. DOM
    acuann 3080 Replies
    • January 23, 2009
    • 11:36 PM
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