Discussions By Condition: I cannot get a diagnosis.

Frustrated

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: andrea1921
  • December 1, 2007
  • 04:48 AM

Woke up 6 weeks ago with my lower left half of my lip swollen. That evening I was snacking and I felt that my throat was swollen. I went to an urgent care and the doctor said my throat looked swollen and treated me for an allergic reaction.
From this point on I have been to many different doctors.

1) ENT originally saw evidence of Rienkes edema as well as post arytenoid edema. Had a CT scan and everything showed normal.
2)GP & Allergist - blood tests for angioedma. Blood tests came back normal.
3)GI - Esophagram (barium swallow) showed motility issues. Endoscopy all showed normal.

My throat feels slightly better than it originally did, but overall the symptoms haven't improved much. I still feel a tighness in my throat most of the day. Also the doctors assumed that the lip swelling was a coincidence but then it happened again about 4 weeks after the initial swelling. At this point I avoided all foods that I had eaten before both incidences of the lip swelling.

Next thing you know I am extremely itchy. Mainly my scalp, neck, back, torso. I just assume this is due to the weather change and it must be dry skin. Less than a week later when I get home from work I notice tiny red bumps on my stomach and lower back.

I just can't see these things being a coincidence.

I don't want to insult the doctors, but they haven't been much help. I know my body and I know something is wrong.

Any help would be greatly appreciated. I have most of my medical records with me if you need more specifics.

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1 Replies:

  • I don't remember what tiny red bumps are called, but it is a specific skin condition. Celiac disease, or gluten intolerance, is one thing that causes it. Gluten is in just about everything, as it is in flour.
    not a fifty five 34 Replies
    • December 1, 2007
    • 05:04 AM
    • 0
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