Discussions By Condition: I cannot get a diagnosis.

From Walking Pnuemonia to Neck Tightness

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: Anonymous
  • August 1, 2007
  • 04:16 AM

History: I was in the hospital a little over a month ago. I went into the clinic for swollen ankles (which has never happened to me before in my life, and not since), and was kept overnight because I had an "unusual blood pressure". Through many tests, it was determined that my blood work was clean and the "unusual blood pressure" was simply "one of those things" (there were several EKGs, both sitting up and laying down and oddly no one seemed to know why; also a heart ultrasound which seemed to show nothing abnormal). Because I'd been sick in January and never fully recovered (from many conversations with friends I'd come to think it was walking pneumonia if only because I fit all of the classic symptoms), there was also a chest x-ray. Heart and lungs looked fine, normal, nothing retaining fluid, lungs and heart also sounded fine to everyone who checked. I got two weeks of antibiotics "in case" I actually did have walking pneumonia (as doctors scoff at self-diagnosis--not that I don't understand, just that it irritates me). Two weeks later, I got over the Doxycyline side-effects... and promptly felt sick again with extremely mild flu-like symptoms.

Enorm It's now three weeks after that, and I've had two days of neck tension and stiffness. Not anything I'd consider agonizing or something I can't deal with with a heating pad and the occasional massage, but it was obvious and uncomfortable. The neck stiffness is very mild now, but I have noticed just the slightest stiffness in my jaw. And every once in a while it feels like the very vague beginning of an ear infection, with a wash of heat inside both ear canals. Nothing about my neck, jaw or cheeks seem swollen. I don't currently have a fever. My diet hasn't changed, I'm a 105 lb 26-year-old female who rarely drinks and lives a dull live of no drugs and no cigarettes. I'm not allergic to any foods that I am aware of.

Enorm My mother has also made it a point to remind me that I'm due for a tetanus booster. While I do occasionally work around metal, I also haven't been cut in recent memory, and can find no wounds. I thought perhaps it would be helpful to mention.

Enorm I'm mostly posting this here to get some informed questions to ask a doctor. I seem to have the worst luck with the "I'm listening to exactly half of what you're saying" types, so some questions/concerns/potential test suggestions that may get them to pay attention would be very helpful.

Enormous thanks to anyone who can offer anything.

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9 Replies:

  • Stiff neck is a sign of meningitis, i think, so be careful. Also, it can be a sign of dehydration. So make sure that you are drinking enough water. I would try switching doc, it won't hurt and maybe another doc might have some better ideas.
    Anonymous 42789 Replies Flag this Response
  • Stiff neck and lockjaw are no joke. Call the doc.
    rad-skw 1605 Replies Flag this Response
  • Here is a list of mycoplasmas and the diseases/symptoms they cause. Your symptoms/possibilities may include the red highlights.The Main Human Mycoplasma PathogensPathogen / Implicated Disease (1-6)Mycoplasma genitalium Arthritis, chronic nongonococcal urethritis, chronic pelvic inflammatory disease, other urogenital infections and diseases, infertility, AIDS/HIVMycoplasma fermentansArthritis, Gulf War Syndrome, Fibromyalgia, Chronic Fatigue Syndrome, Lupus, AIDS/HIV, autoimmune diseases, ALS, psoriasis and Scleroderma, Crohn's and IBS, cancer, endocrine disorders, Multiple Sclerosis, diabetesMycoplasma salivariumArthritis, TMJ disorders, Eye and ear disorders and infections, gingivitis, periodontal diseases including even cavities.Mycoplasma hominis and Ureaplasma urealyticum Pelvic inflammatory disease, infertility, non-gonococcal urethritis, vaginitis, cervicitis, amnionitis, pyelonephritis, post-partum septicemia, neonatal pneumonia, neonatal conjunctivitis, Reiter's syndrome, peritonitis, wound infections (C-section), low birth weight infants, and premature rupture of membranes. Mycoplasma pneumonia Pneumonia, asthma, upper and lower respiratory diseases, heart diseases, leukemia, Steven-Johnson syndrome, polyarthritis or septic arthritis, CNS disorders and diseases, urinary tract infections, Crohn's and Irritable Bowel Syndrome, Guillain-Barr syndrome, polyradiculitis, encephalitis, and septic meningitis, autoimmune diseases. Mycoplasma incognitus andMycoplasma penetrans AIDS/HIV, urogenital infections and diseases, Autoimmune disorders and diseasesMycoplasma pirum Urogenital infections and diseases, AIDS/HIVMycoplasma faucium, M. lipophilum and M. buccale Diseases of the gingival crevices and respiratory tractSome questions for your doctor might be: Have I been tested for mycoplasma's?...Could I have CFS/ME, also known as post viral fatigue syndrome? I had a "flu" in Jan 05 and since then, an explosion of symptoms...up to and including yours.Hope this helps...mommy cat:)
    mommy cat 1654 Replies Flag this Response
  • P.S. The CFS/ME would also account for the swollen ankles, abnormal BP, neck tension and stiffness as well as the "flu-like symptoms. I hope this finds you well...I am praying for us all...mommy cat:) I found alot of helpful information at www.ahummingbirdsguide.com and I hope you do too.
    mommy cat 1654 Replies Flag this Response
  • Yes its definitely CFS. Mommy Cat is right. Everyone in the whole website is a victim of the CFS Monster. Watch out because every symptom is a symptom of CFS. If your hair turns grey its CFS. If you lose weight, feel depressed and like monkeys, its because you have CFS. If you like the smell of paint or enjoy drinking warm beer, its because you have ME and CFS!!! Rush to your doctor right now and tell him that Mommy Cat diagnosed you with CFS and watch his respect for you wane even more and maybe he will give you an anti-anxietal medication or suggest you check yourself into Promises with LiLo!!!
    Anonymous 42789 Replies Flag this Response
  • Dear unegistered...grow up. I am trying to help others. I am telling them that CFS/ME is a possibility. Just like others tell people to have their thyroid checked or to see a specific type of doc. I am opffering options....like everyone else. There are countless in this forum that I have helped already with my "spamming".I'm happy to know that you, infact, have all of the answers for everyone here and my "possibility" is useless.Have a nice day:D mc
    mommy cat 1654 Replies Flag this Response
  • Yes its definitely CFS. Mommy Cat is right. Everyone in the whole website is a victim of the CFS Monster. Watch out because every symptom is a symptom of CFS. If your hair turns grey its CFS. If you lose weight, feel depressed and like monkeys, its because you have CFS. If you like the smell of paint or enjoy drinking warm beer, its because you have ME and CFS!!! Rush to your doctor right now and tell him that Mommy Cat diagnosed you with CFS and watch his respect for you wane even more and maybe he will give you an anti-anxietal medication or suggest you check yourself into Promises with LiLo!!!What's your contribution to the forum, unregistered?People are trying to help. Immune System, Central Nervous System Dysfunction is the real disease- no matter in what part of the body manifests or how people choose to call it.There is much important info out there. Are you frustrated? What's going on?There has to be a reason why you are in WD.Be well.Frui.
    Eatafruit78 960 Replies Flag this Response
  • History: I was in the hospital a little over a month ago. I went into the clinic for swollen ankles (which has never happened to me before in my life, and not since), and was kept overnight because I had an "unusual blood pressure". Through many tests, it was determined that my blood work was clean and the "unusual blood pressure" was simply "one of those things" (there were several EKGs, both sitting up and laying down and oddly no one seemed to know why; also a heart ultrasound which seemed to show nothing abnormal). Because I'd been sick in January and never fully recovered (from many conversations with friends I'd come to think it was walking pneumonia if only because I fit all of the classic symptoms), there was also a chest x-ray. Heart and lungs looked fine, normal, nothing retaining fluid, lungs and heart also sounded fine to everyone who checked. I got two weeks of antibiotics "in case" I actually did have walking pneumonia (as doctors scoff at self-diagnosis--not that I don't understand, just that it irritates me). Two weeks later, I got over the Doxycyline side-effects... and promptly felt sick again with extremely mild flu-like symptoms. Enorm It's now three weeks after that, and I've had two days of neck tension and stiffness. Not anything I'd consider agonizing or something I can't deal with with a heating pad and the occasional massage, but it was obvious and uncomfortable. The neck stiffness is very mild now, but I have noticed just the slightest stiffness in my jaw. And every once in a while it feels like the very vague beginning of an ear infection, with a wash of heat inside both ear canals. Nothing about my neck, jaw or cheeks seem swollen. I don't currently have a fever. My diet hasn't changed, I'm a 105 lb 26-year-old female who rarely drinks and lives a dull live of no drugs and no cigarettes. I'm not allergic to any foods that I am aware of. Enorm My mother has also made it a point to remind me that I'm due for a tetanus booster. While I do occasionally work around metal, I also haven't been cut in recent memory, and can find no wounds. I thought perhaps it would be helpful to mention. Enorm I'm mostly posting this here to get some informed questions to ask a doctor. I seem to have the worst luck with the "I'm listening to exactly half of what you're saying" types, so some questions/concerns/potential test suggestions that may get them to pay attention would be very helpful. Enormous thanks to anyone who can offer anything.You have received some good replies. rad-skw is completely correct, lockjaw, etc. is no joke...tetanous, etc. Rule it out.Unfortunately, severest if illnesses must be ruled out, but many Dr.'s stop there. Or, the patient doesn'[t proceed because how can you go to a new doc and say..."well, this, this and this had been ruled out...but darn....I still have an achey jaw". And then you might get a question like "gee, do you chew a lot of gum", or "so....how is your marriage/home life?". You will promptly be referred to a psychiatrist.CFS is a REAL deal. I think it is a good possibility for you, but unfortunately, you can't think primarily like a western med doc or you'll overlook it. It is not problem for western med to rule out a brain tumor....that's after all easy! Less time is spent with you because you are moved to the MRI/CT gravy train. It takes probably 3 or 4 more minutes for a Dr. to diagnose CFS which I suspect is more likely than brain tumors. Too bad there are bashers of CFS here. Those bashers do not know a thing about the disease. Even the cdc (yes....western med's center for disease control) admits that as many as 80% WITH CFS are UNDIAGNPOSED! Basher's haven't researched. CFS USED to be called Mayalgic Poliomyelitis...in the UK and most of Europe it is called MYALGIC ENCEPHALOMYELITIS (HELLO---encephalitis symptoms--STIFF NECK!) If you had the kind of meningitis that was immediately fatal, you'd be dead by now.I do not like how the US simply calls CFS "CFS". It is a shame so many are suffering. Once you HAVE figured out you have CFS....it is so clear who has it and who does not on this site.If I had it to bet, I'd bet a ton of money you have the umbrella disease called CFS. I've had your symptoms...it is clear as day.Goodluck.....MommyCat is right on track....but please....rule out immediate fatalistic diseases first and lower your expectations for an EASY diagnosis of CFS. Sorry to be sarcastic....but....the diagnosis of CFS is NOT easy to obtain/receive even if you have figured it out on your own and are looking for an M.D. to verify it! By the way, CFS has a diagnostic code: it is recognized as a real illness. Why would any decent doctor wane in respect for a patient if they voice their concerns? I could be misunderstood...but I think the newest trend for those in the top of the field of CFS (US) are starting to call it CFIDS or CIDS Chronic Immune Deficiency Syndrome.Viruses/bacteria/mycoplasma/toxins/neurotoxins/heavy metals....underlying and opportunistic invaders....that must be cleared....but it is hard to know which came first....the chicken or the egg.....immune dysfunction or the underlying and opportunistic invaders.Good luck to you and your health.
    Anonymous 42789 Replies Flag this Response
  • Dear unregistered....Thank you so much for your support with my attempts to help others who are in the dark regarding CFS.It is real...I suffer from it.There truly are many who are undiagnosed in this country alone...not to mention world-wide.The CDC just renamed the disease ME/CFS, even though they originally had said that they were two different diseases.I had a neurosurgery appt and the PA said..."I just asked the doctor the other day...where is all this CFS coming from?"..."It seems we are seeing more and more patients every week"It is a real disease. It is ruining lives, marriages, relationships and families.Many are pushed off the the psychiatrist for a script of Paxil and told their symptoms are from depression.Now, I'm no rocket scientist....but I can tell you that things like a poorly functioning liver is not from depression!!Again, I Thank you. I have been in this forum for a while, attempting to help others avoid my tragic mistakes. All the while, people are throwing rotten tomatoes and booing me but I do not stop. I have already helped several people understand CFS, consider it, and many have already gotten their "official" diagnosis.It's nice to know someone is in my corner....mc:)
    mommy cat 1654 Replies Flag this Response
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