Discussions By Condition: I cannot get a diagnosis.

From fully functional to debilitating in 2 years, no real answers

Posted In: I cannot get a diagnosis. 12 Replies
  • Posted By: EvoMonkey
  • May 17, 2010
  • 03:12 AM

I'm a twenty three year old male and I have all problems and no solutions.

Ive been to see several doctors, but few seem really very interested in finding out what is wrong with me, and why my symptoms are accelerating.

I have a healthy diet, and despite my problems I still exercise . I smoke marijuana semi-regularly (1-2 times a week); I find that it alleviates the pain in my joints; I drink alcohol in larger quantities about once a month (more than 8 drinks); mostly I will just have a glass of wine with dinner.

I've had chlamidia once, but was treated for it. My family has a history of Chron's and other IBD, as well as rheumatoid arthritis. I've been diagnosed with Fibromyalgia (the course of which was determined by pressing thumbs on various parts of my body).

I'll list my symptoms here, in the hopes that someone can give me some ideas:

- persistent (over several months), but sporadic diarrhea - sometimes excrutiatingly painful, but never bloody (some blood has appeared on toilet paper however).

- chronic fatigue (over the course of several years, probably two)

- chronic joint and muscle pain (I used to be a marathon runner, but last year I wasn't even able to walk, the pain was so unbearable. I had to use crutches for three months. Sometimes I have very painful muscle spasms in my legs as well, which can reduce me to tears.)

- Depression, euphoria (the highs and lows are not intense enough to be classified as bipolar ) I was on mood stabilizers which only reduced my quality of life, so I just deal with it by knowing it has nothing to do with my life being bad, but with something wrong in my head (the power of rationalization).

- impulsiveness - I have done some out of character things, especially after drinking (fights, promiscuity, etc), but these urges often occur from day to day, they are just easier to suppress.

- skin rashes (molluscum, which was treated two years ago, regular ringworm infections and now I have tiny red bumps that appear randomly all over my body - on my chest, arms, legs, etc. They are few and seem to come and go, but I've had them for some time and they itch. My doctors have dismissed them, but I'm pretty sure having a permanent rash isn't normal.

- itching in genital area (it only happens every once in a while - once or twice a week, but the itching doesn't feel like normal itching, it persists even after adjustments and scratching - sorry for the mental image).

- poor immune system
- I get pink eye, the flu, colds, pretty much anything and everything I come in contact with. As a teen I had strep yearly. (My sister gets strep every month. She also has a large range of 'undiagnosable' symptoms)

- I get white skin lines in my mouth (not on my gums) - they are dead skin, and often come off - they are intensified by high acid food and drinks as well as alcohol, so I avoid mouthwashes and other abrasive materials. I haven't had them again for a while.

I've been struggling with these problems as they have gotten worse. I had to drop out of University in my third year just to deal with them. But what concerns me is that in my first year, I didn't have any of them.

The doctors I have seen have told me I have fibro, ADD, and some minor form of bipolar disorder. They told me the treatment is diet and exercise, but these don't seem to buffer my physical symptoms.

Please help so I can get back to accomplishing something with my life.

Ben

-Ben

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12 Replies:

  • I'm a twenty three year old male and I have all problems and no solutions. Ive been to see several doctors, but few seem really very interested in finding out what is wrong with me, and why my symptoms are accelerating. I have a healthy diet, and despite my problems I still exercise . I smoke marijuana semi-regularly (1-2 times a week); I find that it alleviates the pain in my joints; I drink alcohol in larger quantities about once a month (more than 8 drinks); mostly I will just have a glass of wine with dinner. I've had chlamidia once, but was treated for it. My family has a history of Chron's and other IBD, as well as rheumatoid arthritis. I've been diagnosed with Fibromyalgia (the course of which was determined by pressing thumbs on various parts of my body). I'll list my symptoms here, in the hopes that someone can give me some ideas: - persistent (over several months), but sporadic diarrhea - sometimes excrutiatingly painful, but never bloody (some blood has appeared on toilet paper however). - chronic fatigue (over the course of several years, probably two) - chronic joint and muscle pain (I used to be a marathon runner, but last year I wasn't even able to walk, the pain was so unbearable. I had to use crutches for three months. Sometimes I have very painful muscle spasms in my legs as well, which can reduce me to tears.) - Depression, euphoria (the highs and lows are not intense enough to be classified as bipolar ) I was on mood stabilizers which only reduced my quality of life, so I just deal with it by knowing it has nothing to do with my life being bad, but with something wrong in my head (the power of rationalization). - impulsiveness - I have done some out of character things, especially after drinking (fights, promiscuity, etc), but these urges often occur from day to day, they are just easier to suppress. - skin rashes (molluscum, which was treated two years ago, regular ringworm infections and now I have tiny red bumps that appear randomly all over my body - on my chest, arms, legs, etc. They are few and seem to come and go, but I've had them for some time and they itch. My doctors have dismissed them, but I'm pretty sure having a permanent rash isn't normal. - itching in genital area (it only happens every once in a while - once or twice a week, but the itching doesn't feel like normal itching, it persists even after adjustments and scratching - sorry for the mental image). - poor immune system- I get pink eye, the flu, colds, pretty much anything and everything I come in contact with. As a teen I had strep yearly. (My sister gets strep every month. She also has a large range of 'undiagnosable' symptoms) - I get white skin lines in my mouth (not on my gums) - they are dead skin, and often come off - they are intensified by high acid food and drinks as well as alcohol, so I avoid mouthwashes and other abrasive materials. I haven't had them again for a while. I've been struggling with these problems as they have gotten worse. I had to drop out of University in my third year just to deal with them. But what concerns me is that in my first year, I didn't have any of them. The doctors I have seen have told me I have fibro, ADD, and some minor form of bipolar disorder. They told me the treatment is diet and exercise, but these don't seem to buffer my physical symptoms. Please help so I can get back to accomplishing something with my life. Ben -Ben Have you had your vitamin D levels tested?
    Pollyz 1 Replies Flag this Response
  • That sucks to be so affected that you had to drop out of collage but doctors arent caring much! i too had to drop out of teritary studies and my diploma due to my health (CFS). i dont know if you realise it but fibromyaliga has other conditions it often coexists with eg headaches/migraines, Raynaud's and irritable bowel syndrome (IBS) etc. i suspect from what you said that you have the IBS with it. Chronic fatigue is all part of fibromyaligia too (thou not what they base the diagnoses on). One thing with fibromyaligia is that a quarter of fibro patients end up with CFS (CFS is different to "chronic fatigue) and 50-75% CFS patients have Fibromyaliga. These are strongly overlapping disorders. If you develop CFS.. you may find that you have a ton of different symptoms with it, rashes and poor immune system are often a part of CFS. Fibro and CFS can run in families!. The fact that exercise helps the pain in your joints and doesnt make it worst.. points to that you probably havent got CFS (thou you may be heading a little that way with the low immunity). im curious to hear about your sisters symptoms and wonder if she could have CFS.. things like post excertional fatigue, regular sore throats, poor sleep or feeling tired after a goods night sleep all point towards CFS rather than fibro. (note that fibro patients also often suffer from Insomina).
    taniaaust1 2267 Replies Flag this Response
  • I saw your post when I was looking for symptoms similar to mine. I have had skin rash since I was 16 (am now 38) Diagnosed as dermatitis herptaformaris (skin reaction to gluten in wheat/rye/barley and oats) so I am celiac, also diagnosed with FMS 10yrs ago and many depression and anxiety meds, once I adopted a gluten free diet I began experiencing major problems with acidic foods and quickly developed intolerances to all foods containing Salicylates (a natural chemical in most fruits and vegetables protecting them from bugs/disease). See if "Salicylate sensitivity" matches any of your problems. I'm a twenty three year old male and I have all problems and no solutions.Ive been to see several doctors, but few seem really very interested in finding out what is wrong with me, and why my symptoms are accelerating. I have a healthy diet, and despite my problems I still exercise . I smoke marijuana semi-regularly (1-2 times a week); I find that it alleviates the pain in my joints; I drink alcohol in larger quantities about once a month (more than 8 drinks); mostly I will just have a glass of wine with dinner. I've had chlamidia once, but was treated for it. My family has a history of Chron's and other IBD, as well as rheumatoid arthritis. I've been diagnosed with Fibromyalgia (the course of which was determined by pressing thumbs on various parts of my body).I'll list my symptoms here, in the hopes that someone can give me some ideas:- persistent (over several months), but sporadic diarrhea - sometimes excrutiatingly painful, but never bloody (some blood has appeared on toilet paper however).- chronic fatigue (over the course of several years, probably two)- chronic joint and muscle pain (I used to be a marathon runner, but last year I wasn't even able to walk, the pain was so unbearable. I had to use crutches for three months. Sometimes I have very painful muscle spasms in my legs as well, which can reduce me to tears.)- Depression, euphoria (the highs and lows are not intense enough to be classified as bipolar ) I was on mood stabilizers which only reduced my quality of life, so I just deal with it by knowing it has nothing to do with my life being bad, but with something wrong in my head (the power of rationalization).- impulsiveness - I have done some out of character things, especially after drinking (fights, promiscuity, etc), but these urges often occur from day to day, they are just easier to suppress. - skin rashes (molluscum, which was treated two years ago, regular ringworm infections and now I have tiny red bumps that appear randomly all over my body - on my chest, arms, legs, etc. They are few and seem to come and go, but I've had them for some time and they itch. My doctors have dismissed them, but I'm pretty sure having a permanent rash isn't normal. - itching in genital area (it only happens every once in a while - once or twice a week, but the itching doesn't feel like normal itching, it persists even after adjustments and scratching - sorry for the mental image). - poor immune system - I get pink eye, the flu, colds, pretty much anything and everything I come in contact with. As a teen I had strep yearly. (My sister gets strep every month. She also has a large range of 'undiagnosable' symptoms)- I get white skin lines in my mouth (not on my gums) - they are dead skin, and often come off - they are intensified by high acid food and drinks as well as alcohol, so I avoid mouthwashes and other abrasive materials. I haven't had them again for a while. I've been struggling with these problems as they have gotten worse. I had to drop out of University in my third year just to deal with them. But what concerns me is that in my first year, I didn't have any of them. The doctors I have seen have told me I have fibro, ADD, and some minor form of bipolar disorder. They told me the treatment is diet and exercise, but these don't seem to buffer my physical symptoms. Please help so I can get back to accomplishing something with my life.Ben-Ben
    Anonymous 42789 Replies Flag this Response
  • Just to be sure, seek out a Lyme-literate doctor (there are not many, trust me) and get a genuine Lyme disease test performed - one where they test for ALL strains AND co-infections such as erlychia etc. Fibromyalgia is the chief misdiagnosis of Lyme disease. Seriously - check it out!
    Anonymous 42789 Replies Flag this Response
  • I saw your post when I was looking for symptoms similar to mine. I have had skin rash since I was 16 (am now 38) Diagnosed as dermatitis herptaformaris (skin reaction to gluten in wheat/rye/barley and oats) so I am celiac, also diagnosed with FMS 10yrs ago and many depression and anxiety meds, once I adopted a gluten free diet I began experiencing major problems with acidic foods and quickly developed intolerances to all foods containing Salicylates (a natural chemical in most fruits and vegetables protecting them from bugs/disease). See if "Salicylate sensitivity" matches any of your problems.Ben,I am sorry that you and your sister are suffering so. since you listed your sister - assume you live still in same household? some problems physically occur with molds, mildew, fungus in the home or if the home has been treated with certain chemicals. These can cause physical symptoms and then depression can devleop due to chronic nature or feeling of helplessness which can then cause more physical problems. I hope you find your answers.
    Anonymous 42789 Replies Flag this Response
  • I'm a twenty three year old male and I have all problems and no solutions.Ive been to see several doctors, but few seem really very interested in finding out what is wrong with me, and why my symptoms are accelerating. I have a healthy diet, and despite my problems I still exercise . I smoke marijuana semi-regularly (1-2 times a week); I find that it alleviates the pain in my joints; I drink alcohol in larger quantities about once a month (more than 8 drinks); mostly I will just have a glass of wine with dinner. I've had chlamidia once, but was treated for it. My family has a history of Chron's and other IBD, as well as rheumatoid arthritis. I've been diagnosed with Fibromyalgia (the course of which was determined by pressing thumbs on various parts of my body).I'll list my symptoms here, in the hopes that someone can give me some ideas:- persistent (over several months), but sporadic diarrhea - sometimes excrutiatingly painful, but never bloody (some blood has appeared on toilet paper however).- chronic fatigue (over the course of several years, probably two)- chronic joint and muscle pain (I used to be a marathon runner, but last year I wasn't even able to walk, the pain was so unbearable. I had to use crutches for three months. Sometimes I have very painful muscle spasms in my legs as well, which can reduce me to tears.)- Depression, euphoria (the highs and lows are not intense enough to be classified as bipolar ) I was on mood stabilizers which only reduced my quality of life, so I just deal with it by knowing it has nothing to do with my life being bad, but with something wrong in my head (the power of rationalization).- impulsiveness - I have done some out of character things, especially after drinking (fights, promiscuity, etc), but these urges often occur from day to day, they are just easier to suppress. - skin rashes (molluscum, which was treated two years ago, regular ringworm infections and now I have tiny red bumps that appear randomly all over my body - on my chest, arms, legs, etc. They are few and seem to come and go, but I've had them for some time and they itch. My doctors have dismissed them, but I'm pretty sure having a permanent rash isn't normal. - itching in genital area (it only happens every once in a while - once or twice a week, but the itching doesn't feel like normal itching, it persists even after adjustments and scratching - sorry for the mental image). - poor immune system - I get pink eye, the flu, colds, pretty much anything and everything I come in contact with. As a teen I had strep yearly. (My sister gets strep every month. She also has a large range of 'undiagnosable' symptoms)- I get white skin lines in my mouth (not on my gums) - they are dead skin, and often come off - they are intensified by high acid food and drinks as well as alcohol, so I avoid mouthwashes and other abrasive materials. I haven't had them again for a while. I've been struggling with these problems as they have gotten worse. I had to drop out of University in my third year just to deal with them. But what concerns me is that in my first year, I didn't have any of them. The doctors I have seen have told me I have fibro, ADD, and some minor form of bipolar disorder. They told me the treatment is diet and exercise, but these don't seem to buffer my physical symptoms. Please help so I can get back to accomplishing something with my life.Ben-BenBen,Talk to a rheumatologist. Some of what you are describing sound like lupus symptoms. I'd start there and if that failed to result in a diagnosis, I speak with an endochronologist.
    Anonymous 42789 Replies Flag this Response
  • I'm a twenty three year old male and I have all problems and no solutions. Please help so I can get back to accomplishing something with my life. Ben -Ben Ben, go to the "Could it be B12?" bulletin board at wrongdiagnosis for the chronic fatigue/fibromyalgia and bone pain symptoms, which all have to do with undermethylation and a probable need for methyl B12 (although other B vitamins are involved as well). You can get a lot of help there.
    madanthony 1087 Replies Flag this Response
  • Check for hemocromatosis. Try to insist on a genetic test for it - not just ferritin iron level. Haemoglobin only test will not give you the answer, either.
    Anonymous 42789 Replies Flag this Response
  • **hugs you** I'm really sorry you're going through this. I do agree with the unregistered poster who spoke about celiac disease. I have this and I have experienced the painful diarrhea, the digestive problems, the fatigue, the brain fog, the er....personal itching and the muscle pain that you have/are. Something is causing your body to react severely. It could be an infection such as Lyme Disease but also look into gluten intolerance, leaky gut syndrome and/or parasitic infection. Bless you. Jaime
    awakeningspirit 10 Replies Flag this Response
  • I suggest you get tested for Lyme Disease as well. In the meantime, have your doctor prescribe oral antifungals. Go with fluconazole, which will kill the skin fungus and may help with the Lyme Disease as well.
    Anonymous 8 Replies Flag this Response
  • Ben,Sounds like Lupus to me.The joint pain, the skin probs, the mouth probs, the GI symptoms, etc. are all part of lupus. Everyone is affected differently, but lupus can affect all organs as the immune system overreacts. The fact that you get sick all the time is also a big clue.What many people don't know is that part of lupus is also have psychiatric problems. Bouts of psychosis, strange behavior, personality changes, memory loss (fugues) and other mental health issues are common- especially at the onset and before medication is controlling other symptoms. Unfortunately doctors seems to forget that lupus can affect the brain too! I have had similar problems and have been diagnosed with fibromyalgia and lupus. 9 years ago the fibro began (and yes fibro has many other symptoms other than just the muscle and nerve pain) but then there was a point a couple of years ago that I knew something else was going on. Everything in my body had something wrong with it and I was always sick (from the time I woke up vomiting like I was pregnant until the time I went to bed and couldn't sleep because of the pain of muscle spasms) and those were the days I could get out of bed. This is when they figured out I also had lupus. (I also have hypothyroidism, chronic migraines and chronic fatigue- but apparently these diseases go together a lot. Your current diagnosis' may be correct but drs are still missing something.)Hopefully you don't have lupus, but I would look into it. Good luck :)
    Anonymous 42789 Replies Flag this Response
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  • Evo: You should do all the tests for lupus and Lyme as suggested, and in the meantime, cut out drinking and smoking. These will make your immune system weaker. Have your doc put you on fluconazole immediately for a couple of months to see if that helps. For your skin problems, I suggest you get some Derman's Anti-Fungal cream. I works wonders and is effective on many problems besides fungal infections. Check in here regularly. We want to know how it's going and the test results. (Make sure your doctor sends the Lyme disease tests to Igene lab in Palo Alto, CA.)
    Anonymous 8 Replies Flag this Response
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