Discussions By Condition: I cannot get a diagnosis.

frequent urination

Posted In: I cannot get a diagnosis. 12 Replies
  • Posted By: Anonymous
  • October 31, 2006
  • 01:53 AM

I am having a bit of an embarassing problem lately; I've been urinating far too often and can't seem to hold anything in anymore. And I'm only 23. Intially it only happened around my cycle (often 2 to 3 days before it began), but now I seem to have it all the time. This has been going on for a litttle over 2 years now. Sometimes I urinate a lot, and sometimes I urinate a little bit.

At first my doctor thought it was an urinary tract infection. My mom made me go in for treatment even though I tried to tell her that I normally experienced an increase during my cycle. The doctor thought it was an UTI so he gave me an antibiotic. That's when I started to have the problem more frequently.

I'm not sure if the medience had anything to do with the increase or not. Whatever the cause, I often need to go to the bathroom every 2 to 3 hours, esp. at night and sometimes even more frequently around my cycle.

Everyone says this sounds like diabetes. In fact that's what my mom thought I had when she first noticed the problem. However I never have glucose in my urine and my blood sugar is always normal. I do though have white blood cells present in my urine. Which makes it seem like an infection of some sort.... except that it has lasted 2 years.

I'm not sure if there's any other troubling syptoms. I do tend to be thristy a lot, but that's because I simply don't tolerant heat very well. I also have an ice pica. I realize that these are all syptoms of diabetes, but keep in mind that I always test negative for that disorder. Also I've always had these two since I was a child whereas the frequent urination started happening more recently. I can't think of anything else that might be related; thrist and that pica only come to mind because it all has to come out in the end sometime (so to speak).


Recently I went to an urologist. He felt I had an overactive bladder (since I was emypting my bladder completely each time) and put me on Santara (or whatever it's called). While that helped intially, I've found that its effectiveness is slowly decreasing. I can go days without it and not notice a difference (which can be good or bad since sometimes I don't have an increase in urination and other times I do). It has never helped around my cycles. Also my doctor never explained to me why I would have WBCs in my urine.

I'm at the end of my ropes. I am losing a lot of sleep because of this, and it's embarassing having to be excused once every hour or two to use the bathroom during the day.

Other information:

Gender: female

Age: 23 yrs

Current Mediences: Adderal (?? mg once a day-- been taking for 6 years), Effector (75 mg once a day-- switched from 30 mg of Prozac 3 years ago)

Medical Conditions: asthma (not currently on medication for it), attention deficent disorder/ attention deficent hyperactivity disorder introverted type, depression (in remission??)

Allergies: shellfish, pollen, mold, dust, mildrew, cleaning products

Family Medical Problems:
high chlestrol (father et al)
high blood pressure (father et al)
thyroid disease (paternal grandmother, aunt-- both had thyriod cancer)
asthma (mother, cousin, self)
kidney disease (paternal grandfather)
diabetes (paternal grandmother, uncle-- both type 2 and were diagnosed at around age 55; mom said it had more to do with their age, so it doesn't seem to be too common in the family)
alcoholism (two great uncles?-- I don't drink though)
heart problems (maternal grandmother, uncle-- both died from a heart condition)

Past Problems:
allergies (various times)
growth problems (up to age 13)
fractured femur (age 8)
asthma (various times-- syptoms present since age 3 but not diagnoised until age 13)
yeast infections (various times between age 13 to age 14-- common until switched to tampons on advice of doctor)
hearing comprehension problems (various times)



Let me know if you need any other medical information or have any questions. Thank you for taking the time to read this.

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12 Replies:

  • Hello,I don't know if this is going to help you, but I have a similar problem. This happens to me only during day. I can sleep the whole night without needing to go to the bathroom. What I've noticed is that when i am driving it happens to me quite often, and it is really preventing me from driving. I don't know whether it is because of the position when sitting, but I am starting to think that it is related to a phycological problem (because of anxiety). Imagine me when I am stuck in a traffic jam, which is quite often living in Madrid, and when I am in a meeting (in these situations the mobile phone is a good excuse). Why don't you try to go to relaxation classes, may be it could help!Hope you find the cause of your problem,
    Anonymous 42789 Replies
    • October 31, 2006
    • 08:04 AM
    • 0
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  • Hi,This probably isn't the problem but I feel I have to mention this...For years my mother was always running to the toilet. She couldn't go anywhere without needing to "go".Later on they found out that she had interstitial cystitis.http://kidney.niddk.nih.gov/kudiseases/pubs/interstitialcystitis/. which can become worse around period time. They say you get pain but she didn't get that to begin with. By the time they did discover it the bladder was so small it had to be removed. I believe in the UK it is not that well known.It might be worth looking into.Kind Regards.
    aliviel27 6 Replies
    • October 31, 2006
    • 08:32 AM
    • 0
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  • It is worth measuring just how much urine you are passing. If the volume is great and it is not just down to frequency, then you need to investigate why. One possible reason is that you may drink a lot because your medication is making you feel thirsty (this is actually a very common reason). Another possibility is that some of the medication is acting as a diuretic and is making you genuinely thirsty. An alternative to the diabetes you mentioned is diabetes insipidus. This has nothing to do with the sugar balance but is down to a low level in a hormone which prevents water loss. Your medication might be affecting this or it might be a separate problem. If it is none of these, then it sounds like an infection of sorts or perhaps cystitis. If you are passing a large volume of urine, then I would doubt it is psychological. The only psychological aspect might be that you are drinking too much water. Hope you get it sorted.
    Anonymous 42789 Replies
    • October 31, 2006
    • 11:07 AM
    • 0
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  • Hello,I don't know if this is going to help you, but I have a similar problem. This happens to me only during day. I can sleep the whole night without needing to go to the bathroom. What I've noticed is that when i am driving it happens to me quite often, and it is really preventing me from driving. I don't know whether it is because of the position when sitting, but I am starting to think that it is related to a phycological problem (because of anxiety). Imagine me when I am stuck in a traffic jam, which is quite often living in Madrid, and when I am in a meeting (in these situations the mobile phone is a good excuse). Why don't you try to go to relaxation classes, may be it could help!Hope you find the cause of your problem,Thank you for responding. I don't think it's a psychological problem because I've already had thearpy for anxiety when I was treated for depression. While I still feel anxious at times, it's not out of control.I'd hate to be trapped in any European city during a traffic jam-- their streets are not really built for traffic if my memory is correct. ;) No wonder they walk everywhere. Hi,This probably isn't the problem but I feel I have to mention this...For years my mother was always running to the toilet. She couldn't go anywhere without needing to "go".Later on they found out that she had interstitial cystitis.http://kidney.niddk.nih.gov/kudiseases/pubs/interstitialcystitis/. which can become worse around period time. They say you get pain but she didn't get that to begin with. By the time they did discover it the bladder was so small it had to be removed. I believe in the UK it is not that well known.It might be worth looking into.Kind Regards.That could be it. I do have many of the risk factours for it. However my urologist said that it normally happens to people in their 30s or 40s, not in their 20s. Plus diagnois is normally done from elimnating everything else including over-active bladder. I've always gotten pain during my cycle, but that's common in my family. My aunt used to be bed-ridden during hers before she had children. She most certainly does not have cystitis.I hope this is not the problem, but thank you for suggesting it. I was starting to feel like I was the only one thinking it after reading about it a few weeks ago.It is worth measuring just how much urine you are passing. If the volume is great and it is not just down to frequency, then you need to investigate why. I think it's a little of both. I normally produce a lot during urination, and this is done relatively frequently.One possible reason is that you may drink a lot because your medication is making you feel thirsty (this is actually a very common reason). Another possibility is that some of the medication is acting as a diuretic and is making you genuinely thirsty. I've been on all of my medications for a number of years now, so that's not likely. I guess Effector could be causing it since the increase occured a year later; however from what I remeber about drug side effects, those sorts of things tend to happen within the first 6 to 8 weeks. I did not have this sort of problem when I was switched to it or anything remotely like it (except around my cycle which was common even when I was on Prozac).Another problem is that I still urinate a lot even after drinking very little water. For instance this weekend I only drank a total of 4 cupfuls of water (2 each day), yet I had to go to the bathroom about 10 times both days. An alternative to the diabetes you mentioned is diabetes insipidus. This has nothing to do with the sugar balance but is down to a low level in a hormone which prevents water loss. Your medication might be affecting this or it might be a separate problem. Diabetes insipidus certainly fits the symptoms, including my weird dislike of room-temperature water and of eating ice. I wonder why my doctor didn't suggest testing for it. I guess if there was something present suggesting it in my urine sample, he would have wanted to. Maybe there's nothing to look for in urine samples with this diabetes. I don't know.If it is none of these, then it sounds like an infection of sorts or perhaps cystitis. Would an infection last for two-and-half years like that? I had recievced antibiotics for other infections during that time (for strept, staph, and various others), so I find it hard to believe that it could have lasted this long. I guess chronic cystitis could be a possibility.If you are passing a large volume of urine, then I would doubt it is psychological. The only psychological aspect might be that you are drinking too much water. Me too. I may feel thristy a lot of the time, but my water intake is about the same as it used to be before this became a problem. Unless I count the ice pica-- I have been eating more ice lately than I've used to. It's when I do include it that I say my water intake has increased. Hope you get it sorted.Thank you for the response. It has been helpful. I'll have to ask him about these things at my next appointment.
    Anonymous 42789 Replies
    • November 1, 2006
    • 02:10 AM
    • 0
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  • AEF, the water has to be coming from somewhere. You have to incude the ice in that. Incidentally, ice pica has been asociated with a low iron level in the blood. In your case I imagine it is because you are feeling thirsty for whatever reason. A side effect of Effexor (I think you mean that) is a dry mouth so it might be that.The question is: are you passing a lot of urine because you are drinking a lot or are you drinking a lot because you are passing a lot of urine? You should measure the volume over a day (you only need a bucket!) and you should check out how dark the urine is (your doctor will probably ask you this since it determines whether your kidneys are working well). The doctor will need to know for sure if you are passing a lot of urine genuinely or whether it is the frequency that is the real problem. If you are passing a lot then it needs to be investigated and I imagine he will recommend a water deprivation test (which is how you would identify diabetes insipidus). An infection can certainly last a couple of years and it doesn't have to be a bacterial infection. I am not saying it is that though. Once again, good luck on getting it sorted!
    Anonymous 42789 Replies
    • November 1, 2006
    • 10:19 AM
    • 0
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  • Hi. I just recently saw a show on Mystery Diagnoses on the Discovery Channel, and in one of the cases, the woman had symptoms almost identical to yours. It turns out that she was lacking a certain hormone that allowed her kidneys to process water. This meant that all the water she srank was just going right through and she wasd slowly being poisoned by the toxins. The way they diagnosed this was by putting her on "water deprivation therapy", where she would not have any water in 24 hours. She subsequently lost 4 pounds of water mass in four hours, indicating that water was not being retained. The solution to her problem was hormone replacement therapy. I wish you good luck with everything, and I hope this helps.
    Anonymous 42789 Replies
    • November 1, 2006
    • 01:21 PM
    • 0
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  • AEF, the water has to be coming from somewhere. You have to incude the ice in that. I know. It's just hard to remeber to do that all the time. I eat about two cups a day, so that ups my water intake by 2 for a total of about 8 or 10 large cupfuls. This is not in reference to the measurement as the cups I drink out of are much larger.Incidentally, ice pica has been asociated with a low iron level in the blood. In your case I imagine it is because you are feeling thirsty for whatever reason. I don't have anything wrong with the iron levels in my blood; I had blood work done just a few weeks ago, and nothing was out of the ordinary (besides not having a titer for hepatitis B-- need to get another round of vaccinations for that). A side effect of Effexor (I think you mean that) is a dry mouth so it might be that.The question is: are you passing a lot of urine because you are drinking a lot or are you drinking a lot because you are passing a lot of urine? Yeah I always want to call Effexor "Effector." Stupid me. The sad thing is that nurses seem to think that is what the drug's called because they never say anything about it. :PDry mouth is also a side effect of Adderal. I haven't really had that reaction in the past with either med. The effects I did have with Effexor when being introduced to it were withdrawl (from Prozac) and brief relapse of depression, headaches, fatique, nausness, and digestive disturbances. All of them went away within 2 to 3 weeks. Still I guess it's possible that's causing this. Maybe I should try going without it for a few days.You should measure the volume over a day (you only need a bucket!) and you should check out how dark the urine is (your doctor will probably ask you this since it determines whether your kidneys are working well). If this is any indication, I've had to go to the bathroom 15 times just by noon today.The urine is normally fairly clear looking, but sometimes it's yellowish. To me it looks diluted However my mom says it's normal looking (she's a nurse). The urologist didn't say anything in regards to this.Lately I've also had trouble starting too, which I think is indicative of a kidney problem.... or is an effect of Santara. This didn't start until after I began taking that medience.The doctor will need to know for sure if you are passing a lot of urine genuinely or whether it is the frequency that is the real problem. Well according to him, it's both. That's why he's trying me on Santara. Then again it could be either. I'm not completely satistified with how this is coming along, and that's why I'm here afterall. ;) So I'll try to do what you suggest for a day. It's going to be hard though to remeber to use a bucket instead. Am I allowed to drink water during this?If you are passing a lot then it needs to be investigated and I imagine he will recommend a water deprivation test (which is how you would identify diabetes insipidus). Yeah I read that on their site. Doctor has you go 8 hours at a hospital without water to see if you lose a lot of water and become dehydrated. Then if you do become seriously dehydrated, they put you on some hormone to see what type of diabetes insipidus you have (one kind doesn't respond to hormone treatment).An infection can certainly last a couple of years and it doesn't have to be a bacterial infection. I am not saying it is that though. You mean a viral infection? That would explain why the antibiotics had no effect. What viruses come to mind? Once again, good luck on getting it sorted!And again, thank you for your response. :) It certainly gives me a lot to ask my urologist at my next appointment.Hi. I just recently saw a show on Mystery Diagnoses on the Discovery Channel, and in one of the cases, the woman had symptoms almost identical to yours. It turns out that she was lacking a certain hormone that allowed her kidneys to process water. This meant that all the water she srank was just going right through and she wasd slowly being poisoned by the toxins. The way they diagnosed this was by putting her on "water deprivation therapy", where she would not have any water in 24 hours. She subsequently lost 4 pounds of water mass in four hours, indicating that water was not being retained. The solution to her problem was hormone replacement therapy. I wish you good luck with everything, and I hope this helps.It sounds like she had diabetes insipidus since that either is caused by a defiency of anti-diuretic hormone (the hormone that lets you conserve water) or a defiency of the kidneys to respond to the hormone (the kidneys are involved with water retention). According to their site and to kenn;6104, diabetes insipidus is diagnoised thru a water deprivation test too. This test determines fluid retention, and those with the disorder become seriously dehydrated. Though 8 hours appears to be the standard length of the test...The scary thing is that one form (there are 4 forms apparently) can cause water toxicity even when you are treated. In this form only the frequent urination is improved, so people with it have to moniter how much they drink each day.At least that's the diabetes insipidus website said. I looked up info after reading the responses yesterday.I like "Mytsery Diagnois" too. ;) I wish I saw this epsiode. I bet she was ready to slap the next doctor who suggested she had sugar diabetes. :P Seriously that's the first thing all the doctors I've been to suggest, and it's annoying because there's NEVER any glucose in my urine. The closest thing was when I had a trace amount of ketones present (I hadn't been eating a lot that week).Anyways thanks for bringing this up. :)
    Anonymous 42789 Replies
    • November 1, 2006
    • 08:21 PM
    • 0
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  • AEF, if the urine is dark it is usually a good sign because it means the kidneys are concentrating it. You should drink (and crunch ice if you must!!) normally when you are collecting the urine. The normal daily volume is about 1.5 litres. It is worth pointing out that the secretion of ADH can be inhibited by certain substances (alcohol is the prime example, but also some medicines - Lithium springs to mind) and diabetes insipidus as a 'true disease' is quite rare. You can also upset the water balance by eating or drinking diuretics. It might be worth looking at your diet (if you have made any changes to it) and trying to find out more about the effects of your medication. Finally, I was actually thinking of a fungal infection rather than a viral one. Antibiotics would in fact be likely to make this even worse! Good luck again!
    Anonymous 42789 Replies
    • November 1, 2006
    • 09:13 PM
    • 0
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  • I have all the exact same symptoms. i was experiencing frequent urination, like every 2 hours to the minute. i went to the urologist and was just prescribed a lot of antibiotics for a uti. it helped a little bit but in my urine samples there was no change. just abnormal amounts of wbcs and skin cells. i stopped taking the antibiotics after a while because they were expensive and really not doing anything.recently the frequent urination has gotten worse and making my life ***l so i have made a doctors appointment for a diabetes test as i have a few of those symptoms.. the main difference is that im not urinating a lot. im 18 and have been experiencing all this for about 4 years :( im also going to ask my doctor about overactive bladder disorder. if you find out more about your condition please let me know and i will do the same. goodluck.
    Anonymous 42789 Replies
    • February 3, 2010
    • 06:42 AM
    • 0
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  • You should talk to your urologist about having a cystoscopy done, with this they will be able to test how much your bladder can or cant hold or can see if there is anything wrong inside your bladder that is causing this frequent urination. If they don't find anything you could talk to your urologist about bladder incontinence, you could try going on a medication called oxybutanin or some other medication like that, it is to help strengthen your bladder, however you cant just experiment with days on it and days off, you need to take it every single day for a couple months to notice the difference! talk to your urologist more!
    Anonymous 42789 Replies Flag this Response
  • The main cause is fungi or mold allergy. Its acting like an infection but all its starts in our sinuses. You must have a clean almost empty room, ionizated air, and sinus flush with antifungal when felling worst. Belive me I suffer for a long time with this simptoms. Strange that doctors didn't recognize this .
    Anonymous 42789 Replies Flag this Response
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  • I have exactly the same symptoms and I've noticed the polyuria it's worse after antibiotic treatment and arround my cycle. I've been tested for a lot of things except diabetes insipidus and fungal infection. I also have vitamins and minerals deficiency (B12, D, Iron, Magnesium). I cannot take any antibiotics because the urination is making me very weak, I have to stay in bed all the time, I'm powerless, I have shortness of breath. Did you find out what was causing your problem? Thank you.
    Anonymous 42789 Replies Flag this Response
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