Discussions By Condition: I cannot get a diagnosis.

Frequent Syncope for the last 14 years

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: SyncopalGal
  • November 10, 2007
  • 02:12 AM

I have been having the same syncopal and near-syncopal episodes for 14 years. I start out by getting dizzy and lightheaded, my muscles (whichever are holding up my weight) spasm, and sometimes I lose consciousness completely and fall. These episodes range from one or two a week to 5 or 6 per day and seem to have no pattern.

At the age of 14 I had a full cardiac workup and nothing was found. I was also tested for Epilepsy and was negative. I went through highschool and college just dealing with the episodes because the doctors had no idea what was going on.

Eventually I joined the military and even in their full exam of me, they found nothing wrong.

Recently I gave birth to my son and realized the danger of possibly having an episode with him in my arms. I went back to the doctors and this time they did an MRI and found two soft tissue masses in my brain. I was referred to an ENT who confirmed it with a CT scan and sent me 5 hours away to a surgeon to discuss removal. We were certain we'd hit the nail on the head.

I arrived at the surgeon only to hear him say the masses were not causing my symptoms and I have an electrical problem in my brain.

In addition to the syncope, I have frequent headaches which may or may not be a symptom of a larger condition.

So here I am, 14 years after the first episode and still no answers! Does this ring a bell to anyone? I am frustrated and tired of being dizzy and losing consciousness!!

Please help!!

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2 Replies:

  • I was told I have syncope-neurocardiogenic syncope. It turned out to be basilar migraines.
    Anonymous 42789 Replies Flag this Response
  • I have episodes where i go unconscious or near unconscious.. my issue is POTS. Postural orthostatic tachycardia syndrome (POTS)... consider this esp. if you find you are sensitive to heat. (there is good info on wikipedia including how to test, on this). http://www.youtube.com/watch?v=NN3PB6N6oGY (part one of a 3 part "Mystery Diagnoses" series on POTs)
    taniaaust1 2267 Replies Flag this Response
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