Around four years ago, for no apparent reason, I started to feel tired. Not the usual tiredness after a day's work, but more of a fatigue. It has gradually got worse over the last few years (and more specifically over the past few months). I have a "background" tiredness which is always with me whatever I do and what I would say is normal tiredness on top of that when I've been working. The normal tiredness disappears with a good night's sleep (I get around 8 hours a night), but the background tiredness remains. I have no delayed fatigue associated with exertion.
At a similar time to the fatigue, I developed problems with my circulation and have constantly cold hands and feet unless the weather is really hot or the central heating in my house is up high. I also started to experience weakness in my legs when climbing stairs.
I was "diagnosed" after a few months of symptoms with chronic fatigue syndrome. This diagnosis has recently been overturned by my new doctor, although he hasn't given me a new diagnosis yet. He said that the absence of post-exertional fatigue and a specific infection before the fatigue began were contraindications for CFS.
A couple of years back I started experiencing episodes of pins and needles, mainly in my arms and hands, at night. It wakes me up. I tend to go for months without this occurring and then it will happen several nights a week.
In January I started to feel dizzy - things look like they're moving when they're not and sometimes I feel like I'm moving when I'm not. This dizziness is constant at the moment and gets worse when I'm very tired or stressed. It makes me feel spaced out. I've also started to get occasional shaking in my hands, particularly my right hand. I used to - and still do - get internal shakiness when I'm really hungry, but this seems to be separate and I can actually see my hand shaking.
I recently saw an ENT who specialises in balance problems. He reckons that the dizziness is migraine associated vertigo and is unconnected to all my other problems. He reckoned the spaced out feeling is depersonalisation disorder, which was really odd because I just thought feeling spaced out was because I'm exhausted and dizzy. My own doctor doesn't agree with his diagnosis, but again couldn't say what she thought it was. The specialist advised dietary changes - normal stuff for migraines, which I did say I already did because I've had migraines for years (of the common variety). I still had to listen to a nurse telling me to cut out red wine, chocolate etc. etc. It was all a bit bizarre.
Where on earth do I go from here? I'm getting increasingly exhausted, the dizziness is interfering with my work and the shaking and pins and needles are just annoying.
Sorry for the long post! Any ideas gratefully appreciated.
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