Discussions By Condition: I cannot get a diagnosis.

Flat Red Patches, Dizziness, Fatigue, Joint Pain, and Cold Extremities. Please Help!!

Posted In: I cannot get a diagnosis. 11 Replies
  • Posted By: Anonymous
  • November 5, 2006
  • 04:51 PM

Hello, I have been suffering with the following symptoms for the past 2 years;

-Joint Pain
-Flat Red Bumps/Patches throughout my skin
-Cold Extremities
-Purple Extremities in the hot or cold
-Faitguie
-Nausea/Cramping
-Dizziness
-Headaches

None of my doctors have been able to give me a diagnosis

If you can help me with any information at all it would be greatly appreciated. Thank you!

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11 Replies:

  • Anybody want to take a stab at it?
    Anonymous 42789 Replies
    • November 6, 2006
    • 08:41 PM
    • 0
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  • have they checked you for lupus??????
    zionlion 8 Replies
    • November 8, 2006
    • 02:44 AM
    • 0
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  • not just you. i had weight loss, terrible skin, neuropathy in both arms along with swelling in the morning. also, i was bruising. i had a skin biopsy and labs drawn for what i knew would be Lupus. if not Lupus, I was convinced i had some autoimmune disease. i wanted to rule out drug induced lupus too. all my labs were perfect. skin biopsy results detected just a general inflammatory response (nonspecific). i tried steroid cream and doxicycline for skin. nothin'.... i think at this point it may be nutritional. i am fairly sure this medication is related, even though the company denies. i am on adderall (legal crack). i am discontinuing medication currently. it worked initially but now it is terrible. i have a history of drug abuse and found myself eating the adderall like PEZ candy. i have started provigil for ADHD- works fairly well. maybe try a multi-vit.- you may be deficient in B and VitK if you are bruising??? try the simple stuff first. a multi- vit. will not hurt you. my, why couldn't just have a simple diagnosis. mental illness was my biggest fear- i thought if i ever have mental illness,,,just shoot me. well- here i am crazy as a loon.
    Anonymous 42789 Replies
    • November 8, 2006
    • 04:23 AM
    • 0
    Flag this Response
  • not just you. i had weight loss, terrible skin, neuropathy in both arms along with swelling in the morning. also, i was bruising. i had a skin biopsy and labs drawn for what i knew would be Lupus. if not Lupus, I was convinced i had some autoimmune disease. i wanted to rule out drug induced lupus too. all my labs were perfect. skin biopsy results detected just a general inflammatory response (nonspecific). i tried steroid cream and doxicycline for skin. nothin'.... i think at this point it may be nutritional. i am fairly sure this medication is related, even though the company denies. i am on adderall (legal crack). i am discontinuing medication currently. it worked initially but now it is terrible. i have a history of drug abuse and found myself eating the adderall like PEZ candy. i have started provigil for ADHD- works fairly well. maybe try a multi-vit.- you may be deficient in B and VitK if you are bruising??? try the simple stuff first. a multi- vit. will not hurt you. my, why couldn't just have a simple diagnosis. mental illness was my biggest fear- i thought if i ever have mental illness,,,just shoot me. well- here i am crazy as a loon.
    Anonymous 42789 Replies
    • November 8, 2006
    • 04:25 AM
    • 0
    Flag this Response
  • Im with Zionlion on that one, I think lupus or sjorgren's syndrome.I have had a lot of the same symptoms (and many more) for the past 10 years and cannot get a formal dx. Thank God I have a wonderful dr. who teats me anyway, by symptoms.
    Anonymous 42789 Replies
    • November 8, 2006
    • 07:10 PM
    • 0
    Flag this Response
  • Thank you guys very much for your advice!!!They checked my ANA (Antinuclear Antibody) that was postitve. But my Antinuclear Antibody that goes along with lupus was negitive. The thing is I have ALL of the symptoms that go along with lupus; even the butterfly rash, and low grade fever at the start. This is the confussing part. My doctor still thinks that since im still young lupus might possibly develop (or another autoimmune dissorder) later in my life.I have something called Celiac Disease that sometimes causes people to develop a deficiency in their B vitamins. So it probably wouldn't hurt to try to take maybe a mutli vitamin or a B.Thank you again! =)
    Anonymous 42789 Replies
    • November 9, 2006
    • 02:59 AM
    • 0
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  • I agree that it could be Systemic Lupus Erythematosus. The ANA panel is the most common test to show Lupus activity. Until you find out what it is, I would avoid the sun as much as possible, wear sunblock if you have to be out, and get as much rest as possible. Keeping stress at bay will also help the immune system rebound if it is Lupus. A Lupus diagnosis used to mean a lifetime of disability, but now people are able to live full lives as they manage the disease with medication and lifestyle changes. I was diagnosed in 1987 and am managing well. Good luck to you and I hope you feel better soon!http://www.lupus.org/newsite/index.htmlSherry : )
    Anonymous 42789 Replies Flag this Response
  • Mastocytosis??? can cause the symptoms you have. It often affects skin but can affect one internally and in other places as well. http://www.emedicine.com/derm/images/1048885-1057932-103.jpg The spots can be one or many, large or small.. red or reddish brown. It can be picked up by biopsy of one of the lesions..looking for excess of mast cells. Most doctors havent even heard of this illness (it's quite rare but it is thought it may be more common then the statistics say as most patients go undiagnosed. (my uncle has the systemic form of it).
    taniaaust1 2267 Replies Flag this Response
  • Has your thyroid been checked? A thyroid problem can show symptoms even when tests are what doctors see as normal, because the ranges are to high. Ask to have these tests results or take these as soon as you can: TSHT4T3Anti-TpoAnti-Tg Try not to lock your symptoms to lupus. There are a number of autoimmune diseases ( I think about 100 of them if I remember correctly) that could be causing your problems. Also, it is not uncommon to have more then one autoimmune problem either. It can take 10+ years before you get a diagnose. Kiera
    Anonymous 42789 Replies Flag this Response
  • Agree with lyme but Blaze did not say you must find a specialized dr for this, not an infectious disease dr. ok they are not right: Look at that!http://www.ct.gov/ag/cwp/view.asp?a=2795&q=414284Join Lymenet to find support and ask for a doctor near your place!!!Normal if you don't remember a tick bite!30% do.Fannie
    Fannou 111 Replies Flag this Response
  • With the mention of cold/purple extremities, has anyone mentioned Raynaud's syndrome?
    Anonymous 42789 Replies
    • November 15, 2009
    • 02:31 AM
    • 0
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