Discussions By Condition: I cannot get a diagnosis.

Flank pain & Dehydration/body fluid regulation

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Baby00Blues
  • July 1, 2007
  • 05:56 PM

Please help!! Back in mid March, I went to the ER bc of horrible flank pain. I truly thought I was passing kidney stones. They tested my urine for an infection and for an ectopic pregnancy (neg on both). They tested by blood for any irregularities (neg). After sitting in the ER for 4 hrs, the pain was gone.

Basically, I have flank pain that escalates into flank pain with finger tip pain with body aches. When this happens, I drink water, and IT ALL GOES AWAY. At first, it would take about 8 oz of water to get me to normal but now its up to about 32 oz. And I wake up in the middle of the night with pain so I have to urinate & then drink more water to get me back to normal. I do not have a fever but I feel hot all the time. A few days ago, I got my first migraine headache - it started on a Tues with pressure (no pain) & vision disturbances and at 11 pm that night, it hit HARD with pain, vomiting, nausea, etc...

I saw a urinologist for the kidney pain. He had no idea what this was. He set up an ultrasound for the kidneys but the US came back normal. Right back to square one!

I thought that it might be pancreatitis but I do not have any abdominal pain. They drew blood for the amylase lipase test on Fri but I won't have the results back til Monday.

Then I also thought it might be Addison's disease but I don't have the tanned skin with white spots, the darkening of freckles/scars/breast nipples, and I don't feel cold all the time - I actually feel HOT all the time.

The reason why I thought it could be AD is bc back in Jan, I tested my hormone levels. I am in my mid 30s but I was concerned about hair loss that had started about a year earlier. The saliva tests showed that I was low in cortisone levels and progesterone. The dr put me on hormone replacement therapy for progesterone. The HRT threw my body into havoc - now I had a laundry list of problems! Over a 3 mo time span, I weaned myself off of the HRT. Also, within that 3 mo time span, my thyroid levels were checked and they all came back normal too.

I also had my cholesterol tested (all normal) and tests for diabetes (neg).

I am back to my family practice dr but he does not know what this is - he wants to just go from test to test ruling things out. Is there a better way?

Thanks,

Brenda

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4 Replies:

  • I don't know how much help this will be, but I saw medical mysteries case on Discovery Health (I think). The young lady in the story had severe body pain that would subside when she drank water. If I remember correctly she wasn't urinating very much for the amout of water she was taking in. I am sorry I don't remember what her diagnosis was but you may want to check on their website and see if you can get more information on that case and maybe find out who the doctor was. Good Luck
    Anonymous 42789 Replies Flag this Response
  • Anyone out their with Addison's Disease that could share their experience?
    Anonymous 42789 Replies Flag this Response
  • I searched through the recent episodes but didn't see it so I sent an email to them. Hopefully I'll be able to find it - thank you so much for finding it as it sounds very similar to what is going on with me! I don't know how much help this will be, but I saw medical mysteries case on Discovery Health (I think). The young lady in the story had severe body pain that would subside when she drank water. If I remember correctly she wasn't urinating very much for the amout of water she was taking in. I am sorry I don't remember what her diagnosis was but you may want to check on their website and see if you can get more information on that case and maybe find out who the doctor was. Good Luck
    Baby00Blues 2 Replies Flag this Response
  • I have addison's disease, over two years now. Its horrible and NO one understands. My family and friends just don't get it. When I have an addisonian crisis and need to go to the hospital their comment is here we go again, get her a shot and she'll be fine. Which is true, but they have no idea how i feel leading up to that or for several days following. The flank pain and leg cramps are so unbearable that it limits me to a life of no activity. I used to ski, hike and always on the go. Now I'm so afraid of getting hurt and needing a stress dose that its not even worth trying anymore. And YES depression has set in because of it. A simple trip to the dentist puts me down for at least 2 days, I have to rearrange my life just to go to the dentist, why wouldn't it depress a person. You have my total sympathy if you are battle addison's, It's not very common to hear of anyone, other than JFK, that has it. Good luck, I hope yu have a great support team.
    Anonymous 42789 Replies Flag this Response
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