Discussions By Condition: I cannot get a diagnosis.

fish odor syndrome

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Anonymous
  • March 26, 2007
  • 04:17 PM

how can i get rid of it? how did i get it can someone help me?

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3 Replies:

  • Hi, I assume you know the name for this condition. It is triethylminuria. I think I spelled it correctly. It is a very rare condition, but there is info out there. Good luck.
    Anonymous 42789 Replies Flag this Response
  • how can i get rid of it? Avoiding ingestion of lecithin and choline containing foods such as fish, eggs, liver, etc. can help.how did i get it By having parents that gave you a defective demethylation mechanism or a deficiency of trimethylamine oxidase in your liver. can someone help me? Not really, but you can help yourself. hth, Caladan
    Caladan 87 Replies Flag this Response
  • how can i get rid of it? how did i get it can someone help me?You can go to the National Library of Medicine, the National Institute of Health; Office of Rare Disease Research and find information about this disorder. I am currently doing an Informative speech for college on this subject. http://ghr.nlm.nih.gov/condition=trimethylaminuriahttp://rarediseases.info.nih.govIn my findings, a strict diet of no fish, eggs, letchin will help reduce the odor. Small doses of antibiotics can help eliminate the smell. Last but not least; finding a genetic doctor to help.It's inherited by both your parents. They both have 1 mutated (bad) gene; which combined together.I have a question for you, does or how does this disorder affect your social life?
    Anonymous 42789 Replies
    • October 11, 2009
    • 10:19 PM
    • 0
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