I found some people who understand what I'm going through.
I've been having problems for about 6.5 years now. Prior to that I was a healthy woman who was overweight and had unknown fertility problems. I did develop pre-eclampsia with my first pregnancy (36 years old) and my blood pressure has been slightly high since them. I then lost 3 pregnancies, two early miscarriages and then an ecoptic pregnancy. At 39/40 I was pregnant and had many complications related to that pregnancy. My son was born in the spring of 2000 when I was 40 and things pretty much went back to normal health wise.
I have been overweight since I was a teen but very active and my weight did not prevent me from doing any activities. My hobbies are camping, hiking, backpacking, gem stone hunting, canoeing and nature studies. I spent my summers as a park naturalist doing nature hikes and programs. Rest of the year I trained teachers. I started scaling back on work when my first child was born and took some planned time off after my second child's birth. We also relocated from the East Coast to the mid-west soon after his birth and a year or so before I started having problems.
About 6.5 years ago I started gaining weight, 100+ pounds in just over a year. In addition I felt "blah" and tired all the time. Sort of like you feel just after you had the 'flu or other serious virus. After a couple of months of that I went to see a doctor. At the time my son was just over a year old and I was still breastfeeding him. This idiot doctor's opinion was that I was too old to have a newborn, I needed to wean him, put both kids in daycare and go back to work. I never went back to him.
The symptoms continued and others started. I went to see the next doctor who listened to half the symptoms and said "I know what it is, it must be your thyroid." Tested and it was normal. His decision was that I was seeking attention. I did convince him to run a Lyme's test, he said that no-one in this state has ever had Lyme's (which I knew wasn't true) and it couldn't be that. I said that I had been a park naturalist in the last 10 years with co-workers who did get Lyme's Disease. Plus we had been camping recently in states that had deer ticks. That test was also normal. He no longer listened to my symptoms and I would spend an hour or more in the waiting room (with my kids) and then go back to the exam room and he would spend less than 3 impatient minutes with me. I changed doctors.
In addition to the other symptoms, I was now having trouble with my menstral cycle, it was getting shorter, I was having extreme pain with ovulation and horrible, horrible mood swings for a week before my period started... which isn't good when you are having periods every 21 days. The new doc said "must be your thyroid", she did tests, everything was normal, the thyroid was higher but still in the normal range. She decided it was age and depression. So I went on anti-depressants. Now joint pain was joining the lineup of symptoms. She said it was just the depression. No matter waht happened, it was depression. She did send me to a dermatologist when my hair was falling out. The dermatologist examined my scalp and said "yep, it's falling out." Then said it was female pattern baldness and would just get worse. She that the 80% of the hair on my arms and legs and more than 50% of my eyebrows that I had lost was just cyclic and would grow back. She blamed age and genetics.
Sometime in there I developed asthma. Started an inhaled steriod for that and gained 26 pounds in 2 weeks.
I switched doctors again. This doctor tried to find out what was going on. She actually did tests other than just thyroid (which level was again higher but still in the normal range.) She sent me for a sleep study and I have severe sleep apnea. I noticed a huge improvement in my sleepiness level but the fatigue was the same. Now I had joint pains in my back, hips and knees. Every step I took was extremely painful. She did x-rays and sent me off to a physical therapist. After 3 months of PT and only mild improvement, I also started seeing a chriopractor. Still no answers and the doctor admitted she was stumped.
I then went to see a naturopathic MD who specializes in weight loss. He looked over my list of symptoms and said he wanted to do a trial of thyroid meds. Within 3 days I felt better than I had before.
I am still having gyn troubles but all the docs want to diagnosis me with PCOS, but since they have never done any hormone panels to really check and a reproductive endo on the east coast who treated me for infertility said I didnt' have, I dont' think they are right. Plus until I was over 40, my cycles were extremely predictible and I never missed a period except for pregnancy. Basically I keep getting large and painful ovarian cysts and they watch them by u/s and they've all dissolved on their own.
This summer I've started having problems again and right now something is going on that is causing an embarrasing gas problem and soem chest tightness. I see my doc tomorrow and hopefully he can find out what is going on.
After reading all the stuff here, I am going to contact a NAET provider and see how much that will cost. We have incurred so many medical bills that it took us almost into bankruptcy so money is a deciding factor in new treatments.
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