Discussions By Condition: I cannot get a diagnosis.

fibromyalgia? anyone else with it?

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: tinkerbelllover
  • February 2, 2011
  • 06:37 AM

hello there.
i have been referred to a rheumotlogist to see about things like fibromyalgia, anybody who has this? chatting with you would be great to try and see if my symptoms are consistent with yours.
thank you!

Reply Flag this Discussion

6 Replies:

  • I don't know if I have fibromyalgia or something else yet, but my rheumatologist appt is tuesday and I know they are checking for that. What are your symptoms? Mine are aching and burning pain absolutely everywhere (not all at the same time), tingling in hands and feet, headache, fatigue, not always able to focus, and then there are a few that I'm not sure if they are related or not. They are seeing double, seeing flashing dots and rectangles, sometimes when I am reading the words will look blue or purple instead of black, and I black out when I stand up alot. Good luck to you! :)
    Anonymous 42789 Replies
    • February 6, 2011
    • 04:36 AM
    • 0
    Flag this Response
  • I don't know if I have fibromyalgia or something else yet, but my rheumatologist appt is tuesday and I know they are checking for that. What are your symptoms? Mine are aching and burning pain absolutely everywhere (not all at the same time), tingling in hands and feet, headache, fatigue, not always able to focus, and then there are a few that I'm not sure if they are related or not. They are seeing double, seeing flashing dots and rectangles, sometimes when I am reading the words will look blue or purple instead of black, and I black out when I stand up alot. Good luck to you! :) i just went to my rheumatologist today and she is testing me for arthirtis and lupus. the symptoms i am having are muscle pains and joint pain/stiffness, headaches, i think im losing my hair but idk, my eyes have circles around them and sometimes are swollen, and above all this i am always always tired!good luck to you too; i hope you get better soon! :D
    tinkerbelllover 7 Replies
    • February 8, 2011
    • 02:39 AM
    • 0
    Flag this Response
  • hello there.i have been referred to a rheumotlogist to see about things like fibromyalgia, anybody who has this? chatting with you would be great to try and see if my symptoms are consistent with yours. thank you!Hi everyone. I'm new to the site but I feel like I'm reading about myself. I too have the symptoms you are describing. I have the body aches most of the time now, it started out with the evenings first, the aching and the low grade fever, but my left side esp. my hip hurting going all the way down my leg and into my feet leaving it partially numb yet feeling like someone was sticking me with a pin. After about two weeks it started on the right side of my body but not as bad as the left. After a few weeks the aching etc. started earlier every day. I am now to the point that it starts about an hour or so after I'm up. I saw the rheum. two days ago. I had been told by my other docs(for over a year) (I waited slightly over 6 Months for this appt. with rheum.) that with the family history and my symptoms to expect a diag. of Lupus and sjogrens syndrome (my mother had these) already had a tentative diag. of fibromyagia. Guess what, rheum. said NO autoimmune disorder, but part of it is a severe Vit. D defiency. I'm not sure what to do with this piece of info. I can't imagine that all of this pain is from a vitamin def. I will try to continue to keep an open mind but it is very hard. I just wanted you to know I have done the tests etc. and am stll awaiting the next visit with the doctor. All I can say is I do know how hard it is to keep going, and sometimes the thing that helps most is to know someone else does feel your pain and understand. Good Luck to all and I remain hopeful that soon everyone will have an answer. Disney Girl
    Anonymous 42789 Replies
    • February 10, 2011
    • 03:41 PM
    • 0
    Flag this Response
  • Hi tinder, ive had fibromyaligia. Fibro will make you tired and give you pains all over the place.. eg hurt in one place one day and may hurt in a different place the next, with bad fibro, you may hurt all over. It also causes pain flare ups with better and worst days (often called "fibro flares'). You may find your brain also affected some "fibro fog". There are 16-18 different fibro tender points, which some specialists check to work out if its fibro or not.. http://www.fibro-myalgia.com/tenderpoints.html This may help you to work out if its probably fibro or not. The Fibromyaliga can often coexist with other things eg migraines, IBS. 25% of ones with fibro or more, end up developing CFS. Anyone with Fibro should research CFS/ME so they are aware if they start to develop this serious illness. Exercise often helps fibro but if you develop CFS/ME and are just then having the fibro as a part of that, exercise may make you a lot worst...
    taniaaust1 2267 Replies
    • February 12, 2011
    • 07:23 AM
    • 0
    Flag this Response
  • Try a Magnesium supplement. A rheumatologist is one of the first doctors i went to and all she gave me was some mild muscle relaxer which made me feel worse. I'm in the process of getting diagnosed with Gitelman's syndrome (lose Mg, K, and Na) which invertly causes some people to have issues with B, D, zinc and Ca. When i started supplementing Magnesium my fibromyalgia and bursitis pretty much went away. I still need to get rid of the hundred knots left behind, but the pain is so much better! I could hardly stand and now i'm walking everyday.
    Anonymous 42789 Replies
    • February 12, 2011
    • 01:26 PM
    • 0
    Flag this Response
  • Hi tinder, ive had fibromyaligia. Fibro will make you tired and give you pains all over the place.. eg hurt in one place one day and may hurt in a different place the next, with bad fibro, you may hurt all over. It also causes pain flare ups with better and worst days (often called "fibro flares'). You may find your brain also affected some "fibro fog". There are 16-18 different fibro tender points, which some specialists check to work out if its fibro or not.. http://www.fibro-myalgia.com/tenderpoints.html This may help you to work out if its probably fibro or not. The Fibromyaliga can often coexist with other things eg migraines, IBS.25% of ones with fibro or more, end up developing CFS. Anyone with Fibro should research CFS/ME so they are aware if they start to develop this serious illness. Exercise often helps fibro but if you develop CFS/ME and are just then having the fibro as a part of that, exercise may make you a lot worst... hey there! thank you so much for all your input. yeah all my blood test for things are coming back negative and no doctor will diagnose me but that makes it all the more frustrating! :mad:
    tinkerbelllover 7 Replies
    • February 19, 2011
    • 04:19 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.