Discussions By Condition: I cannot get a diagnosis.

Fibromyalgia and Chronic Fatigue Syndrome Are They Related?

Posted In: I cannot get a diagnosis. 25 Replies
  • Posted By: mommy cat
  • August 23, 2007
  • 10:13 PM

Fibromyalgia is very closely related to Chronic Fatigue Syndrome (CFS), the main difference being that with CFS, the predominant symptom is fatigue; with fibromyalgia, it is pain. Fibromyalgia is a rheumatic disorder that most commonly affects the neck, lower back, shoulders, back of the head, upper thighs, elbows, buttocks, knees and the upper chest. It is important to remember, however, that the achy, burning pains of the disease can strike any part of the body. The pain and stiffness is typically worse in the morning and is often accompanied by insomnia, headaches, depression, brain fog, incoordination, digestive disorders, dizziness, panic attacks and skin rashes. The immune system of an affected person is often hypersensitive and allergies to environmental and dietary factors are common. Symptoms can be aggravated by allergies, overexertion, lack of sleep and acute infections.

Hope this helps some of you clear the confusion or encourages some of you to look at the possibility of these two diseases as an explanation for your symptoms.
As Always...Trying to Help...IHS...mommy cat:)

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25 Replies:

  • Chronic Fatigue Syndrome (CFS), also known as Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS), Fibromyalgia Syndrome (FMS), Multiple Chemical Sensitivity (MCS), and Gulf War Syndrome (GWS) share many of the same symptoms, as described below, and often occur together, but they differ greatly in the methods used for their diagnosis and treatment. Which of these diagnoses a person receives usually depends on the type of specialist he or she sees. CFS is most likely to be diagnosed by internists or infectious disease specialists, FMS by rheumatologists, and MCS by occupational and environmental medicine physicians. Gulf War Syndrome is seen mostly by military and VA physicians but--even though the top 10 symptoms they report are all common to CFS, FMS and MCS--they call them "unexplained" and refuse to even screen for any of these disorders.
    mommy cat 1654 Replies
    • August 24, 2007
    • 02:36 PM
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  • CFS is defined by the US Centers for Disease Control "for research purposes" as persistent or relapsing fatigue lasting greater than six months that is unexplained by any other physical disorder. This fatigue also must occur in combination with at least four of the following: 1) short term memory loss, 2) sore throat, 3) tender lymph nodes in neck or armpit, 4) muscle pain, 5) joint pain without swelling or redness, 6) headaches, 7) unrefreshing sleep, or 8) "malaise" that lasts more than 24 hours after exercise. CFS may develop at any age but usually starts in mid-life, often in conjunction with a flu-like illness, and is diagnosed more frequently in women. Numerous biochemical abnormalities have been identified in CFS patients but none as yet are considered diagnostic. Many treatments are available, mostly for specific symptoms or deficiencies, but outcomes vary and no cure is known. Avoiding stressors of all kinds is primary.
    mommy cat 1654 Replies
    • August 24, 2007
    • 02:37 PM
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  • FMS is defined by chronic muscle and joint pain anywhere along the spine and on both sides of both the upper and lower body. This pain is usually associated with disrupted sleep, chronic fatigue, cognitive problems, and many other variable symptoms. According to the American College of Rheumatology, FMS affects about 3% of the adult U.S. population and, like CFS and MCS, is much more common in women. The diagnosis is confirmed with a brief physical exam that involves the testing of 18 pressure (or tender) points. As with CFS and MCS, the onset of FMS may be gradual or sudden. Sudden onset is usually associated with physical injury or trauma, such as a car accident or difficult childbirth, although FMS also may be initiated by infections or chemical and drug exposures. Treatments focus on relieving pain, avoiding stress, improving sleep and correcting hormonal imbalances. Outcomes vary and no cure-all is known
    mommy cat 1654 Replies
    • August 24, 2007
    • 02:38 PM
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  • CFS, FMS and MCS occur together in approximately 1/3 to 2/3 of all cases, according to the first study of this overlap* done in 1994. The MCS overlap was perfectly symmetrical, with up to 67% of both CFS and FMS patients reporting a worsening of symptoms following exposure to air pollution, cigarette smoke, solvent fumes or perfumes. The FMS overlap also appears symmetrical, with 67% of both MCS and CFS patients reporting muscle weakness and 63% to 77% complaining of muscle and joint pain. And despite using an older (1988) and narrower definition of CFS, the study found CFS in 70% of FMS and 30% of MCS patients. (Only two CFS symptoms were significantly more common in FMS than MCS: painful lymph nodes and post-exertional fatigue.) This extensive overlap highlights the need to screen patients for all three disorders whenever any one is suspected.
    mommy cat 1654 Replies
    • August 24, 2007
    • 02:40 PM
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  • Thank you Em for this information. I think it may be very helpful to some people. Other illness that may occur with FM or CFS Common Name: Dysregulation Spectrum Syndrome-Defined as:A common biophysical syndrome characterized by endocrine dysregulation and dysfunction.Cervical Stenosis, Chiari MalformationEndometriosis, Gastrointestinal Disorders, Irritable Bowel Syndrome, Irritable Bladder, Lupus, Lyme Disease, Migraine Headaches, Multiple Chemical Sensitivity, Multiple Sclerosis, Myofascial Pain Syndrome ,Osteoporosis, Raynaud’s Syndrome, Reflex Sympathetic Dystrophy, Restless Legs Syndrome, Rheumatoid Arthritis ,Sjogren’s Disease, Sleep Disorders,Temporomandibular Joint Pain (TMJ),Thyroid Disease, Central Sensitivity Syndrome
    mommy cat 1654 Replies
    • August 26, 2007
    • 02:16 PM
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  • I feel they are closely related - brother and sister Lyme.I am finding the lyme signal (vibration frequency signal) in many people, both young and old. I am now including this evaluation on many people I test with a computer for health challenges. Also including virus, bacteria, yeast and four major types of parasites as they can occur at the same time with Lyme or be there due to the Lyme lowering the immune systems ability to fight off these types of "bugs". I think in traditional care, FM and CFS are the garbage top covers that exist so the health pros do not have to explore further and find the real cause(s). Here is your label, goodbye, not much we can do.
    Anonymous 42789 Replies
    • August 26, 2007
    • 08:41 PM
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  • I feel they are closely related - brother and sister Lyme.I am finding the lyme signal (vibration frequency signal) in many people, both young and old. I am now including this evaluation on many people I test with a computer for health challenges. Also including virus, bacteria, yeast and four major types of parasites as they can occur at the same time with Lyme or be there due to the Lyme lowering the immune systems ability to fight off these types of "bugs". I think in traditional care, FM and CFS are the garbage top covers that exist so the health pros do not have to explore further and find the real cause(s). Here is your label, goodbye, not much we can do.Thanks Ralph :)Some days I feel like I am about to quit from this message board- it is great to have you around.If you could let us know about those parasites, the 4 actual types- it would be greatly appreciated. I know parasites are a huge factor- but certaintly could not get as much info. For some reason, I am finding how vaccinated people have less resistance to parasites than their unvaccinated parents. Parasites, sugar intolerance, yeast and Vitamin B complex intolerance come together in many cases.I hope you have a great week!Best,Frui.
    Eatafruit78 960 Replies
    • August 26, 2007
    • 08:50 PM
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  • Ralph I agree!! Mainstream medicine is way off the mark here.I tested negative for lyme but have NOT been tested by Bowen or IGeneX. When I muscle tested for Bioset, I tested weak for IgG but not IgM. I myself believe you. Much of the diseases and symptoms that are seen today are, infact, untreated Lyme.The best part is, my symptoms have resolved and I am on my way back to work for the first time in over a year!:) Thanks for posting, you're great!!Sincerely,mommy cat
    mommy cat 1654 Replies
    • August 26, 2007
    • 10:34 PM
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  • I feel they are closely related - brother and sister Lyme.I am finding the lyme signal (vibration frequency signal) in many people, both young and old. I am now including this evaluation on many people I test with a computer for health challenges. Also including virus, bacteria, yeast and four major types of parasites as they can occur at the same time with Lyme or be there due to the Lyme lowering the immune systems ability to fight off these types of "bugs". I think in traditional care, FM and CFS are the garbage top covers that exist so the health pros do not have to explore further and find the real cause(s). Here is your label, goodbye, not much we can do.Ralph, what do you think of this Dr.? Here is his site. http://www.painreleaseclinic.com/index.html. He reminds me of what it would be like to meet Einstein!Thanks in advance!!!
    Anonymous 42789 Replies
    • August 27, 2007
    • 07:19 AM
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  • Thank you Em for this information. I think it may be very helpful to some people. Other illness that may occur with FM or CFS Common Name: Dysregulation Spectrum Syndrome-Defined as:A common biophysical syndrome characterized by endocrine dysregulation and dysfunction.Cervical Stenosis, Chiari MalformationEndometriosis, Gastrointestinal Disorders, Irritable Bowel Syndrome, Irritable Bladder, Lupus, Lyme Disease, Migraine Headaches, Multiple Chemical Sensitivity, Multiple Sclerosis, Myofascial Pain Syndrome ,Osteoporosis, Raynaud’s Syndrome, Reflex Sympathetic Dystrophy, Restless Legs Syndrome, Rheumatoid Arthritis ,Sjogren’s Disease, Sleep Disorders,Temporomandibular Joint Pain (TMJ),Thyroid Disease, Central Sensitivity Syndrome Don't forget Hypermobility syndrome and Ehlers Danlos syndromes. Both are often misdiagnosed or under diagnosed usually as CFS and fibromyalgia.
    Anonymous 42789 Replies
    • August 27, 2007
    • 05:35 PM
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  • Midge...Thanks for that info. Those are two I hadn't found.Often times syndromes are actually symptoms of a bigger picture. I have Raynaud's but it is actually a symptom of CFS. stay well...best wishes...mommy cat:)
    mommy cat 1654 Replies
    • August 27, 2007
    • 07:14 PM
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  • Dear jersey...I'm writing this thread for you. Hope you find the info and answers you seek Please be well....mommy cat:)
    mommy cat 1654 Replies
    • September 3, 2007
    • 08:44 PM
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  • http://www.lymeisairborne.com/ Here is a very interesting article....my belief is that Lyme is not airborne...it's just handed down...generation to generation...we all have it. The symptom list is vast If you present with this goup, we call it FibromyalgiaIf you present with this group, we call it CFSIf you present with this group, oh, that is diabetesand this group over here...oh that is Alzheimer's....oh wait, you are only 20? Then you are having "short-term memory loss"...If you were 70, I could write Alz on your diagnosis sheet...but not at age 20...sorry It is all so ridiculous once you see the whole picture... Lyme is caused by mycoplasma...just like all the rest of the dis-eases that exist and even all of the new emerging ones... Think about it people...west nile, SARS, ebola, hanta viruses....where are they all coming from? They did not exist 100 years ago...***l, they didn't exist 30 years ago. They are being created....that is why we have so many new diseases...named after all the doctors who figure out a group of symptoms and put their name to it... Parkinson's, Cruztfeldt-Jacob, Epstein-Barr, Guillian Barr, Raynaud's, ect... Whatever your illness, rest assured that mycoplasma in one form or another is responsible for it...don't believe me? GET TESTED!!PCR testing is available world wide. Stay informed....Stay VERY informed...mommy cat:)
    mommy cat 1654 Replies
    • September 3, 2007
    • 10:42 PM
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  • Hi MommyCat & Ralph I couldn't agree with you more!!! Check out lymenet.org, its based in NJ for a reason. Raynauds, is believed to be caused by hypercoagulation, cause by Lyme and friends. I have found enzymes to help to help with this. Cayenne pepper helps raise the body temp. Lyme can be airborne as ticks climb trees, unsuspecting person walks under tree, tick jumps/falls on person, lodges in scalp, my neighbor had this happen mowing his lawn. Its just not breatheably airborne, yet. MommyCat """Think about it people...west nile, SARS, ebola, hanta viruses....where are they all coming from? They did not exist 100 years ago...***l, they didn't exist 30 years ago.They are being created....that is why we have so many new diseases...named after all the doctors who figure out a group of symptoms and put their name to it...""" I Agree!!! Research "PLUM ISLAND" and you will see you are right! I believe its all got to do with big pharma.There is no money in curing people, but theres lots to be made, by managing a few symptoms. Why else do they keep pushing antidepressants on people, who weren't depressed to start with? And when one stops working they add another, at a higher price. Those come with side affects, that no one thinks abt...so the dr then wants to add another pill.I had enough of that when my dr tried to add the third antidepressant. The circulartory drug wasn't working with my raynauds cause it wasn't a natural substance causeing the problem. They don't want to treat with abx for fear of creating superbugs?? They already created them, in lyme and more. I knew long ago, I felt better after I had been on abx for chronic broncitis, there was something more going on. The sad thing, is alot of people belive there drs when they say there is no Lyme/Coinfections in certain areas of the country.Some are happy to be dx'd with Fibro or Cfs, because they have been through a lot to get that, that they look no further.Thanks so much for helping get the word out. Check out lymenet.org, when you have a chance. Take care.~~ Jersey Lymie
    Anonymous 42789 Replies
    • September 5, 2007
    • 00:48 PM
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  • Dear Jersey...I'm trying to get the word out...thanks for the back up!! Big pharma is a HUGE part of it...***l, there's a med for everything and anything...and more meds to combat the side effects of thre meds you are on... George Merck's (from Merck Pharmaceuticals) researchers isolated the dna portion of the brucella bacterium...no cell wall. Combined it with fungus (myco) and hence created mycoplasmas. They are responsible for all of our DIS-EASE...All of the number one killers in the world...diabetes,stroke,heart dis-ease, cancer and the list goes on and on. I'm aware of Plum Island as well, Thank You...it had come up in our research/quest for the truth behind our illnesses. Thank you for helping me try to reach the masses. Please write again...and be well....mommy cat:)
    mommy cat 1654 Replies
    • September 6, 2007
    • 00:21 AM
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  • Here's another Lyme page...linked to Plum Island...have a looksee...www.samento.com.ec/sciencelib/4lyme/Townsendhowens.htmlmommy cat
    Anonymous 42789 Replies
    • September 6, 2007
    • 01:00 AM
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  • HI Mommy Cat, You are most welcomed to what ever help/ info I can add. It is my hope, people will see the truth them selves, and not allow thier suffering to go for yrs, before looking into other reasons as to why they are so ill and nothing seems to help them. Take care.~~JerseyThe link no longer works for this news article, but I left it in case any one wants to search it out.Fibro Drug Article, its all abt the MONEY!!http://news.yahoo.com/s/nm/20070107/ts_nm/drugs_fibromyalgia_dc_1 By Lewis Krauskopf Sun Jan 7,2007. 11:03 AM ETDrugs nearing approval for mysterious pain condition NEW YORK (Reuters) - Not all doctors are sure about the pain and fatigue condition known as fibromyalgia, but drug companies are racing to win U.S. regulatory approval to serve this potentially lucrative market. The sometimes-debilitating disorder afflicts an estimated 2 percent to 4 percent of Americans, mainly women.But diagnosing fibromyalgia is not easy because its cause remains unknown and its symptoms, which also include depression, can overlap with other conditions.With no test to confirm fibromyalgia, doctors rely on patient complaints of symptoms and subjective responses to physical exams. As a result, some physicians are wary of viewing it as a distinct ailment.Still, a who's who of pharmaceutical companies -- including Pfizer Inc., Eli Lilly & Co., Forest Laboratories Inc. and Wyeth -- are looking to seize on a market now dominated by older anti-depressants as well as painkillers and other drugs."What they're thinking is: This has a huge, untapped, unmet need," said Maria Marzilli, an associate analyst with market research firm Decision Resources.Decision Resources expects sales for drugs used for fibromyalgia to roughly triple to at least $1 billion by 2014.The companies are vying for the first clearance by the U.S.Food and Drug Administration for a fibromyalgia treatment, which could occur as soon as 2008.Doctors can prescribe medicines for fibromyalgia even though the drugs are not cleared specifically for it. However, without FDA approval, companies cannot promote the drugs as treatments for that condition.Therefore, even though doctors already may be prescribing Pfizer's Lyrica and Lilly's Cymbalta for fibromyalgia, positive clinical data and U.S. regulatory approval for that use could jump-start sales."This is a nice way to tack on $200 to $300 million more in sales," Marzilli said.VALIDATIONAn FDA approval could also quell doubts about the disorder's legitimacy, while paving the way for companies to promote medicines specifically for fibromyalgia. To be sure, doctors and consumers will hear more about the condition as the drug makers rev up their powerful marketing engines, possibly sparking more widespread diagnosis."If the FDA approved a drug for fibromyalgia, that would really give the field validity," said Richard Harris, a molecular biologist and research investigator at the University of Michigan who recently published a data review of fibromyalgia.In most cases, the companies are conducting clinical trials in fibromyalgia for drugs already approved for other conditions. Lilly, Forest and Wyeth have said they are testing anti-depressants that regulate two brain transmitters, serotonin and norepinephrine. Pfizer is testing a drug cleared for epileptic seizures and neuropathic pain.As classified by the American College of Rheumatology in 1990, a fibromyalgia diagnosis involves a patient feeling muscle tenderness in at least 11 of 18 predetermined sites on the body, with the pain spread throughout the body.Fibromyalgia patients also tend to tire easily, struggle to sleep and have trouble remembering things, a problem referred to as "fibro fog."But patients often receive other diagnoses before their doctors decide they have fibromyalgia. Lynne Matallana, founder and president of the Orange, California-based National Fibromyalgia Association, was an advertising executive and avid skier and bicyclist in the early 1990s until she began experiencing widespread pain and fatigue that left her bedridden. She said she had seen 37 doctors and received diagnoses of lupus, rheumatoid arthritis and depression before a physician finally identified her condition as fibromyalgia. "It's devastating because it is totally life-altering, and many, many, many people find themselves in this situation," Matallana said. She added that she gradually improved through exercise, meditation and medication. REVIEW RESULTS In their review, Harris and a colleague at the University of Michigan reported evidence of increased neurological responses to pain, indicating that the central nervous system of a fibromyalgia patient processes pain differently. Traumatic events -- such as a car accident -- may trigger the condition. Matallana said her fibromyalgia flared up after she underwent surgery for another ailment. "I think that some physicians do believe that fibromyalgia isn't a real condition, and our job to spread the word that there are objective findings that these people are in pain," Harris said. But Dr. Scott Zashin, a rheumatologist in private practice in Dallas, says fibromyalgia is one of the more common conditions he sees. Zashin says he usually tries to get fibromyalgia patients to exercise more or get more rest before turning to medication. "These patients seem to have an increased sensitivity to pain," Zashin said. "Something in their makeup makes them experience pain differently."
    Anonymous 42789 Replies
    • September 6, 2007
    • 09:22 AM
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  • Dear Jersey Lymie...Unfortuanetly, it is ALWAYS about the money. I've learned that Big Pharma was involved from the beginning. George Merck's researchers(of Merck Pharmaceuticals) were the ones who "isolated the dna portion" of the brucella bacterium in crystalline form.Now, they make remedies and pills for all of the diseases they created in Plum Island and other bio labs. Mycoplasmas are man made and they are everwhere. They are responsible for your Lyme, my CFS, my mother and aunt's Fibromyalgia and breast cancer as well as my neighbor's diabetes ect. Noone wants to believe any of it because of the absolute horror it entails.I can't blame themPeople are ill, they need NAET/Bioset therapy in order to be well again.I hope you are looking into it as well, Jersey Girl...you need it too!!Best regards...mommy cat
    mommy cat 1654 Replies
    • September 9, 2007
    • 02:05 PM
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  • I believe its all got to do with big pharma.There is no money in curing people, but theres lots to be made, by managing a few symptoms That is the American way. The cure? Abolish global capitalism or move to Canada, where health care is not corrupted by market principles; where producers tell consumers what to buy and consumers usually cannot forego the purchase if the product if the price is too high.
    Dr. Brent Royal 24 Replies
    • September 10, 2007
    • 03:32 PM
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  • All my health problems went totally downhill after three bouts of viral infections, one was the stomach flu, then bronchitis, then another bout of bronchitis all in 3 months, then my problems started. I have a feeling that post viral syndrome or a virus unleased my problem. I think viruses can trigger fibro or CFS in many. One in particular the ebstein barr virus. I wish things had an easy diagnosis. I feel like I truly amd just dying much of the time.:(
    burninghead 37 Replies
    • September 10, 2007
    • 03:50 PM
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