Discussions By Condition: I cannot get a diagnosis.

Fibromyalgia?????

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Anonymous
  • November 16, 2006
  • 06:54 PM

I am a 29 year-old female with several different problems. 2 years ago I was laid off from my job and as a result I began to have tingling fingers on my left hand, swollen lymph nodes around my throat, and bowel problems. A couple of months later I was called back to work, but the symptoms did not disappear. Then exactly 1 year later I was laid off again. This time I developed an itchy, burning rash around my mouth, nose and on my eyelids, sore neck, sore left elbow, depression, stress, headaches, colds nonstop, forgetfullnes, moody, very tired all the time, sore neck, tingling and burning sensations on my upper back, and now before my period I get sore lumpy breast , menstral cramps, and swollen joints (knees & elbows).

I sought the help of an herbalist who told me I had parasites and my body was toxic, my hormones were out of balance, and I was stressed out. He put me on a diet, made me do a whole body cleanse, and gave me several other herbs to help my organs. The rash disappeared, I got back my energy, and I felt much better. I went off of the herbs because they were so expensive. Now my fogginess thinking and moodiness are slowly beginning to come back and joint pain has worsened. Also, on my left fore arm, my skin will hurt when I barely touch it. It is like I have a sunburn. It only last for one day and then disappears and might come back in a month or two. Just yesterday the inside of my elbow hurt when I bent my arm. When I touched it, it felt like a hard knot. Last night it had moved up to my shoulder and I could barely lift my arm over my head. This morning it was gone. I don't have sleeping problems and I'm not tired all the time, I just don't have an interest to do anything fun. I have done a thyroid blood test twice and it was normal. I went to a Gastroenterologist who said that I have IBS and no parasites. Recently my reg doctor said it was from stress. I am now beginning to take Lexapro (for stress and dep). I have an appointment to see an endrocrynologist and a neurologist. This keeps getting more and more expensive, so I don't want to go overboard with the testing if I don't have to. My reg doc is 100% sure that it is not Fibromyalgia. I'm not for sure that it is just stress. I'm sssttresssing out over this. I don't understand why it could not be Fibromyalgia. If you have ever been diagnosed with Fibromyalgia please respond and tell me if you think I have the beginning stages of it. I desperate.

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7 Replies:

  • I have fibromyalgia and don't believe your symptoms track along the same lines. Except for the fogginess and aching the rest of it just doesn't seem to me like fibro. With rash and traveling pain, it seems more like some other type of thing. With fibro you would have the same pains in the same places, with different amounts of severity. You'd also be having lots of sleeping problems. Sorry I can't help you more than that.
    Anonymous 42789 Replies
    • November 18, 2006
    • 03:00 AM
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  • Ive suffered from Fibromyalgia in the past for a correct diagnosis of that.. You need to have so many (it may be something like 16) out of the 18 FM tender points when they are pressed. So FM is easy to diagnose in a doctor who knows how to diagnose it. IF you have also "post excertional fatigue" (abnormal tiredness coming on after you've done things) and have had this problem ongoing for more than 6 mths.. it may be possible that you could have CFS, that can cause a lot of the things you mentioned above and stress can trigger major CFS eposides and bring on more symptoms from rashes to sensitivities (eg to touch), brain fog. PMT and IBS are both common in ones who have CFS.
    taniaaust1 2267 Replies
    • November 18, 2006
    • 10:40 AM
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  • IBS and CFS and other fibro-like symptoms can be caused by a food allergy/intolerence and a food allergy can develop seemingly out of nowehere during a period of stress or illness (like losing a job!) I recommend seeing an allergenist and having the typical allergy blood panel. Could be mold, milk, corn, wheat, or any number of fairly typical things causing an a-typical reaction!
    Azaral 152 Replies
    • November 18, 2006
    • 02:32 PM
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  • IBS and CFS and other fibro-like symptoms can be caused by a food allergy/intolerence and a food allergy can develop seemingly out of nowehere during a period of stress or illness (like losing a job!) I recommend seeing an allergenist and having the typical allergy blood panel. Could be mold, milk, corn, wheat, or any number of fairly typical things causing an a-typical reaction! If one has truely got CFS it will not be cured by eliminating food allergies. With prolonged CFS food allergies and intollerances DO usually develop but eliminating all of these dont bring cure of the illness. i know this as i know many with CFS due to my involvement in many CFS support groups..and many many there have been on elimination diets and also had blood tests and also muscle testing done to test foods, and have removed all foods they are intollerant too. Thou that can help CFS.. it is only rare ones that fully recover just by doing that. IF JUST ELIMINATING FOODS CURES CFS, THAT PROBABLY MEANS THE PERSON DIDNT HAVE CFS TO START WITH....but rather was misdiagnosed with it when it fact they just had problems (allergies and intollerances) with food................................................................. i do thou think Azaral's advice to see food allergist was good advice as food allergies can cause some strange symptoms....
    taniaaust1 2267 Replies
    • November 18, 2006
    • 02:55 PM
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  • I'm curious then, do the doctors even try to say what causes CFS? I was diagnosed with CFS and other things but they said there was no real treatment, only rest. The amount of rest I was needing totally stopped me from living a normal life, so I didn't accept that conclusion and kept looking for a cause. I still have fatigue issues now and then, because eliminating foods isn't as easy as it should be (poor labeling laws) and mistakes happen, causing relapse.What treatments and causes have been ID'd for CFS? If its anything like my gluten intolerence, the support groups probably know more than most doctors :)
    Azaral 152 Replies
    • November 18, 2006
    • 05:34 PM
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  • I'm curious then, do the doctors even try to say what causes CFS? I was diagnosed with CFS and other things but they said there was no real treatment, only rest. The amount of rest I was needing totally stopped me from living a normal life, so I didn't accept that conclusion and kept looking for a cause. I still have fatigue issues now and then, because eliminating foods isn't as easy as it should be (poor labeling laws) and mistakes happen, causing relapse. What treatments and causes have been ID'd for CFS? If its anything like my gluten intolerence, the support groups probably know more than most doctors :) There's still a heap of theories out about what causes CFS but it is known now that with CFS, (along with a lot of other finds they now know about it), that there is problems with the mitrochondria of the cells. Mitochrondria are the powerhouses of cells, where energy is produced. What causes this problem thou still isnt known. http://www.immunesupport.com/library/showarticle.cfm?ID=2966 .. that is just one of the many problems found in CFS. Often the CFS support groups know a ton more about this illness than GPs.. who often actually give false info on the illness due to their lack of knowledge of it. It isnt taught about it AT ALL in medical school. Due to this I truely suggest that for anyone who could have CFS.. to seek out a doctor who specialises in this illness, it is only those who usually are very accurate with info on it due to having seen many CFS patients over the years. (to find a doctor who specialises in it.. contact your local CFS/ME support group and ask there). CFS must be one of the highest most wrongly diagnosed illnesses just due to this lack of knowledge of it. In a study that was done.. the average time it had taken CFS people to get a correct diagnoses of this illness was 7 yrs!!! Even the CDC in America..hasnt fully gotten their act together yet as far as CFS is concerned (at their site i found written some stuff on it which most CFS suffers would completely disagree with.. .. at least now they are actually recognising that CFS actually exists!!!! thou they were at least 20 yrs too slow at coming to that conclusion). If you have one food allergy and have CFS.. in all likelyhood you would have others so do try to find all these out and avoid eatting any foods which you have food intollences with. CFS also affects the digestive system.. so if someone didnt start out with food intollerences, over time they are very likely to be getting them. There is no cure for CFS but the individual symptoms can often be treated, so hence each person with CFS will be being treated differently. One thing i myself think its extremely important to treat.. is any deficiencies one with CFS has. * This is why seeing someone who specialises in CFS is so important..as often only they know what things to test and look for. With CFS there is often many common CFS deficiencies eg D3 (treated by taking D3 supplementation), glutathonione and cysteine deficiency (sometimes treated by taking iso-whey) etc
    taniaaust1 2267 Replies
    • November 19, 2006
    • 02:37 AM
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  • I cannot speak to the theory about Fibromyalgia, but I do see some important things which you have omitted that would help people to help you.First of all you had some symptom relief when your herbalist put you on a diet. What was the diet? Did you eliminate some foods that you are now eating again? And if so what were these foods? And also, did you keep your bottles of herbs. What were the herbs? It may be that you were buying an expensive formula from a manufacturer that you could get cheaper elsewhere. It amazes me how much some herb/vitamin companies charge for herbs/vitamins. I'm not saying there isn't a difference in quality of herbs, but desperation often pays a higher price. On the other hand, if you think herbs and vitamins are expensive consider pharmaceuticals. It's rare you will ever spend over a $100.00 on a bottle of vitamins or herbs, but really think about this: if you neglect your health you may end up spending that much money or more on pharmaceuticals, because although some pharmaceuticals have gotten cheaper, some are immensely expensive--much more expensive then most herbs and vitamins.Did you ever go back to the practitioner and tell him/her that things were working, but you couldn't afford the cost? Maybe he or she could make other suggestions. Sometimes there is not just one path to a cure. But if that is not possible, if you had these bottles of herbs you might be able to take them to another alternative practitioner or search about yourself and see if you can find a cheaper and comparable formula. Does this make sense? I mean if you were actually being helped then why not continue down the same road with what was working? Gosh, it sounded like you were getting better, why did you give up? And why are you considering more expensive avenues when you were seeing progress with what you had. I am not saying you shouldn't see a doctor or get tested, but it seems so strange that you'd abandon something that was working.It seems that stress may play a factor, but consider this: onset of diseaase is not always concurrent with the cause. Often there is a delay. And maybe something about being unemployed exacerbates your condition. For instance, maybe with less income you are not eating as well as you should. One other questions. What did you do in your job and how long did you work there? Sometimes workplace exposure to chemicals can show up months or years later. Because of so many symptoms you have to look at that as a possible cause. In other words don't leave any stone unturned. Why did the herbalist think you were toxic? Was he/she using this term loosely, or were you exposed to chemicals in your environment that would have made you sick. I am not a health practitioner, but having gone to an acupuncturist for over ten years I have heard a lot about the "liver" in terms of health. It sort of means a different thing in Chinese medicine than it does in Western Medicine, but liver cleans our bodies of toxins and if it is taxed than the body does not get clean and the toxins back up and cause problems in other areas of our bodies. Skin rashes, pain, brain fog, female problems can all be signs of liver problems--and I am not speaking about Western ideas of liver problems--although there is overlap--I am speaking to Eastern medicine. Also what were the bowel problems? Something very curious and this is a real long-shot, but I was reading recently that some people have sensitivities to soy products that cause joint pain and swollen joints, and severe bowel problems including bleeding. Now I am not suggesting that soy is the cause of all your problems, but you might want to take a look at diet and see if you might not have a food sensitivity. Really chances are you may have more than one. Rashes, joint pain, bowel problems, tiredness and possibly your other symptoms can be signs of food intolerances. And the fact that your symptoms did improve with diet is a real pointer in this direction. But it may not be all that is going on. That you have colds nonstop indicates to me something going on with immunity. Again diet is important here. Do you supplement with Vitamin C and other antioxidants. Also, Vit C can help prevent fatigue.You may want to investigate candidiasis as well. It can cause all kinds of problems in addition to some of those which you name.
    Anonymous 42789 Replies
    • November 27, 2006
    • 03:29 AM
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