I am sorry to post a laundry list of things, but I have a hard time conveying myself to doctors and, due to lack of insurance and concern from the medical professions at my school's health center, I want to see if anyone out there can confirm this is probably fibromyalgia (which is the diagnosis based on blood tests and the fact I have trigger points (I have more than those listed on the info sites though). The malar makes me think lupus. Is it possible to have lupus and test negative? Tremors, really bad headaches and brainshock sensations make me think possible MS. I just know I want to find answers, be it I give up and deal with possibly having fibromyalgia, or perhaps I finally get a diagnosis that can allow me to treat these things accordingly. I basically can say that I'm overall more sensitive to any sort of stimuli than most of my peers. I had something (which at the time I considered a spiritual awakening) a weird point where I started feeling energy fluxes, started seeing things (colors, static), and my symptoms began to progress and wane (less frequent, more severe). I originally believed I experienced a Kundalini awakening, but now I just think I started getting sicker.
Bad rash/hives (no known cause, migratory - intensly itchy and on my hands/arms mostly) (2004/2005)
Malar Rash (2004) - typical butterfly pattern on face. Blush-like. Permanent.
Folliculitis like rash on 2 separate occasions (surrounding a pregnancy scare) (2004)
It's possible that the prednisone from the hives may have helped this some? (2004)
Trigger points everywhere. Extremely sensitive. (2004/2005)
Extreme fatigue. (2004 to present)
Further: Brain goes to sleep while i'm awake. Almost like narcolepsy at times. Hard to shake the fatigue when active
Burning pain in muscles. (2007 to present)
Restless legs (2005 to present)
IBS/Constipation (since high school)
Hair Loss (gotten really bad during season changes last two years)
Dry skin (always)
Thyroid testing comes back normal (full panel normal last year.)
2 Negative ANA tests? (retest)
1 possible lyme positive (retest)
Brain shocks. Zap sensations in head at random points Since 2006
Full body twitch (since I don't know... present)
Hypoglycemia (since HS)
Shoulder tightness (since 2005)
vaginal itching (last 6 months - treated for BV, but not obvious signs. No yeast. BAD ITCHING)
Always tired/never fully rested (since 2004)
Weird rash in 2002 (torso, no pain or itch, never officially diagnosed)
Poor memory/cognition (lose keys in plain view, forget what I'm doing)
Hard to remain focused on tasks (especially when the above is in play - gotten very bad since 2010)
Lower back/hip tired/painful doing household tasks, like washing dishes or cleaning (2011-pres)
Joint pain (especially knees) has increased in last year. Hurts to walk some days.
2 SEVERE burning headaches that have woken me in the night (since 2011) - 8-9 pain scale
2 weird "flu-like" attacks. Fever, chills, PAIN ALL OVER, then fine a few hours later, albeit shellshocked (since 2009)
Weight gain ;) (Fatigue and pain kind of deter my wanting to get too active)
Muscle weakness since 2010. I struggle to open jars and carry things (used to be very strong)
Eyes are light-sensitive
Always can see things (colors, snow, CEV type stuff)
Increased sweating in last few years
Cyclic eye irritation (around period) redness/pain
Bladder doesn't feel like it fully empties every time
Random diarrhea without obvious cause
gassy all the time (especially bad the last few years)
random "room spinning" feeling
lightheaded a lot
TMJ (hurts to chew sometimes, brush teeth (jaws get tired)
Also to note: Some EDS type signs: touch tongue to tip of nose, very flat feet, hyperflexive in several joints (though they are stiff and painful most of the time), stretchy skin in some places. There are lots of other random things that happen, but things seem to be progressively worse. I am not on any medication for the symptoms other than Synthroid for hypothyroidism (had since I was 3/4 years old), and Wellbutrin and Celexa for severe anxiety and moderate depression. Major symptoms typically come in flares, usually in relation to my period or if I'm under a lot of stress. I was given a diagnosis of Fibromyalgia in 2005 when my knees started bothering and I began experiencing fatigue. I already had the butterfly pattern, but ANA was negative at the time. Normal CBC. HIV negative. Normal thyroid panel. I hurt a lot, but I've learned to deal with it. Take Advil if I have a bad headache and that's about it. I think my doctors think I'm making things up, but my medical history can prove otherwise. The main thing that really bothers me is the fatigue and the way my mind is affected (terrible memory, reasoning diminished, tired, attention span diminished). I could hid my own Easter eggs on a bad day. I'm 29 years old and feel like I'm nearing 70. I've been having trouble since I was 21 years old. If this is really fibromyalgia, I'll just give it up and continue living with it. However, due to the progressive nature and the fact I don't necessarily have the same type of pain as fibro patients seem to have (based on what I've read online), I want to rule out any other cause so that I don't get worse to a point of no return.
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