Discussions By Condition: I cannot get a diagnosis.

Fevers, Blood Counts... what is going on?

Posted In: I cannot get a diagnosis. 13 Replies
  • Posted By: carli_justin
  • October 26, 2007
  • 04:11 PM

First of all, I want to thank you for reading this. I am a 22 year old female with the following diagnosed conditions:

hypothyroidism- age 8
polycystic ovarian syndrome- age 17 (confirmed by laparoscopy)
non-alcoholic fatty liver disease- age 20 (confirmed by laparoscopy)

However, what I'm going through currently is far more distressing than what I've gone through in my childhood years. Beginning the middle of September 2007, I started having daily fevers (worsens with activity, even walking around). I felt like I had the flu and was diagnosed with a sinus infection, but I don't feel it was accurate (other doc gave me zithromax for it). I've had sinus infections before and I've always caught little things like strep throat, mononucleosis (age 14), colds, and flus. I felt achy and extremely tired.

I started seeing an endocrinologist around that time and she immediately noticed my fever. She told me to take a few days off work to recouperate (I'm a teacher), which I did. I never really started feeling better and by the time I saw her in the beginning of Oct., the fever hadn't gone away. She did some blood tests and my WBC count was elevated as well as my platelets. She said she was concerned about how frequently I was sick and did a blood culture. The culture came out negative for bacteria and she then said she wanted me to track my fevers @ 4 and 8 p.m. daily. Meanwhile, the achy bones and fatigue have only gotten worse to the point where I'm having a hard time keeping up with house work. I have also started having muscle spasms (and I haven't been doing virtually ANYTHING but resting) and a few days ago while resting, my heart was POUNDING. It feels like my body is so sick, yet no one seems to know what's going on. I am even having night sweats (to the point where my clothes are damp) about every other night, especially on evenings when I haven't been resting the majority of the day. The fever, sweating, hot flashes, etc. get worse with any kind of work.

My mom called the doctor because she's very concerned and she set me up with an appointment with an oncologist. I go in on Halloween. I was in the ER 2 days ago for weird, STRONG heart beats, but my doc just said "Don't worry anymore, we'll get this figured out." They chalked it up to anxiety, but my heart is still beating really hard, fast at rest. She told me to take a week off work until I see the oncologist because I have absolutely no energy unless I just lay on the couch all day. Also, I can't take anything for the fevers/achiness because they want me to track my symptoms and temperatures, plus it will hurt my liver even more.

I don't know if this is related at all, but I've only probably had 2 periods without hormones since I began menstruating at age 10. I've also been telling the docs about my abdominal pain since I can remember. And, after looking at blood work that was done on me as a kid, my LDH was always really really low and my alkaline levels were high. In a few urine samples I have "too many WBC's to count", but no doctor has ever tried to help me. I have also had a high WBC count in the recent year. All the docs just chalked it up to an "infection", then sent me home w/ antibiotics.

I am at my wits end. I've had to quit college (last semester before my Bachelor's degree too!) and I'm missing a lot of work. All the sites I look at point to cell problems resulting in the bone marrow. I'm just curious if anyone has ever gone through this. Some days (after much resting) I feel alright, but then the next day I'm in bed all day. Any advice is really appreciated.

Thanks for reading again... I know it was a book.

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13 Replies:

  • I hope someone reads this soon. I could really use some advice.
    Anonymous 42789 Replies
    • October 28, 2007
    • 06:19 PM
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  • I've gotten a few more answers in the past few days after seeing an oncologist. She did more blood work and my WBC count was high again as well as my platelets. She ordered a CT scan today of my torso area and although she didn't not find lymphoma (thank god!), she did find a dilated and thickened right colon. I'm still having the fevers, aches, headaches, and all the other symptoms I was having, but I didn't really even think about diarrhea/constipation just because I thought that was normal. I have diarrhea a lot and then I'll get constipated, like REALLY constipated.So, now I'm having a colonoscopy in 3 weeks and not looking forward to it, but hopefully they can figure out what's going on with me. I also have high neutrophils and low monocytes, so maybe that can help some of you clue into what might be going on with me.Anyone have any ideas? I've been playing the waiting game quite a while and frankly, I feel terrible! Please help!
    carli_justin 8 Replies
    • November 2, 2007
    • 01:04 AM
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  • Has your thyroid been checked? That can influence the heart beat. Anything going around at school that you may have caught?
    Monsterlove 2921 Replies
    • November 2, 2007
    • 04:41 AM
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  • They will most likely find inflammation in your colon. It can be caused by diverticulitis, Crohns, Ulcerative Colitis and a number of other things. Both autoimmune and infectious Hypothyroidism is seen with alot of diseases, and you white blood counts can be up caused by inflammation in both the colon and thyroid. Your platlets could also be elevated because of iron deficiency. You might not be aware of any bleeding in your colon and it can be causing iron deficiency. Hope this helps... Kiera
    Anonymous 42789 Replies
    • November 2, 2007
    • 07:36 AM
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  • But why do you have WBC's in your urine? Fever and tachycardia can also be present with a urinary tract infection. Could you go see a urologist?
    rad-skw 1605 Replies
    • November 2, 2007
    • 11:56 AM
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  • Just a guess but there is the possibility of Brucellosis.The clues for me are the long term twice daily fevers, high white cell count, bowel problems.Have you had any contact with live stock? have you visited Greece or other South East Eurpean countries. Or the Middle East where it is also prevalent. Drinking unpasteurised milk can be a risk factor.It is very rare in the US now-a-days so Doctors will not be concidering it.
    chrismia 159 Replies
    • November 2, 2007
    • 03:42 PM
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  • PCOS is sometimes associated with Turner Syndrome, which can affect the heart. I believe it can also predispose people to infection.
    aquila 1263 Replies
    • November 2, 2007
    • 04:24 PM
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  • I also have had a bone marrow biopsy, fully body CAT, GI ultrasound, upper Gi endoscopy and a colonoscopy. So I wanted to tell you do not be afraid of the colonoscopy. You will be put to sleep and won't feel a thing. You won't even know it happened. It is a piece of cake. The bone marrow biopsy is the hardest thing to go through and you've already done that.Various conditions of the colon can have an impact on your bloodwork. Don't be afraid. You are on course for finding an answer.
    Anonymous 42789 Replies
    • November 3, 2007
    • 03:42 AM
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  • Again, thanks everyone for the replies. They checked my thyroid again a few days ago and it as a little low. Hasn't been low in years so she upped my dosage. I haven't drank any unpasterized milk or been around livestock (or out of the state in years for that matter, I live in MT). I've been complaining of bouts of debilitating abdominal pain for about 3 years, but all doctors just took x-rays and noted that I was really constipated. These fevers and headaches are KILLING me. I feel horrible.Could it be colon cancer? I've been reading up on it and I have virtually every symptom. I can't go on like this much longer; my house is a mess and I have to work otherwise I can't pay medical bills. I feel terrible and it's only getting worse as time goes on.
    carli_justin 8 Replies
    • November 3, 2007
    • 04:21 AM
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  • But why do you have WBC's in your urine? Fever and tachycardia can also be present with a urinary tract infection. Could you go see a urologist?Now that I think of it, the WBCs in my urine were a few months ago and they put me on antibiotics because they thought I had a UTI. The last urine samples have been ok. My mistake.They have been testing my urine almost weekly so if this was all a UTI, I would have hoped they would have found it by now.They've also done two blood cultures and both came out negative for bacteria in my blood.
    carli_justin 8 Replies
    • November 3, 2007
    • 04:25 AM
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  • Just a guess but there is the possibility of Brucellosis.The clues for me are the long term twice daily fevers, high white cell count, bowel problems.Have you had any contact with live stock? have you visited Greece or other South East Eurpean countries. Or the Middle East where it is also prevalent. Drinking unpasteurised milk can be a risk factor.It is very rare in the US now-a-days so Doctors will not be concidering it.Unfortunately, the blood culture ruled this out. I know it's weird for me to want Brucellosis, but honestly.... I just want a ***n answer! I'm 22 years old and I'm in a terrible place in my life right now. I can feel something is seriously wrong with me and it's just frustrating that it is so hard to find.
    carli_justin 8 Replies
    • November 3, 2007
    • 04:28 AM
    • 0
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  • PCOS is sometimes associated with Turner Syndrome, which can affect the heart. I believe it can also predispose people to infection.Interesting thought, but after researching this I know I don't have Turner Syndrome. I menstrate with progesterone alone (which means I'm producing estrogen), I am short, but I don't have the elbow deformity, short arms, or the metacarpal deformity. I also have large breasts and normal spaced nipples.The heart thing was just like the hard heart beat I get when I have a really high fever. With all the symptoms I had been having, I didn't want to ignore it. But, the doc said it is probably from being so sick and feverish all the time.
    carli_justin 8 Replies
    • November 3, 2007
    • 04:38 AM
    • 0
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  • Hi. probably u r ok by now.. any dx ?Infective endocarditis ?
    SANDHYAR 2 Replies
    • September 22, 2011
    • 04:36 PM
    • 0
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