Discussions By Condition: I cannot get a diagnosis.

Fever over 100 for almost 8 years.

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: mamaa4444
  • September 25, 2013
  • 06:05 AM

I have so many issues I don't know where to begin, I don't often like talking about it because I feel like a hypochondriac. I'm only 28 but since high school I have has creaky painful joints, i always have a headache, memory issues, a heart murmur, at age 24 I had my first surgery for my sinuses I had a tumor/massive polyp that went from my left maxillary sinus into my nose and down the back of my throat until it hung below my uvula. My ENT said that ALL of my sinuses were 100% oppacified in the CT-scans with growths,
I had CSF leaks.
can't sweat
dizzy spells
After three surgeries I thought my troubles were over then the reoccurring tonsillitis lead to the fourth surgery and again I thought all would be fine, yet here I am, ALWAYS feeling sick, with yet another **** fever which I have had almost every day for 8 years now.

I'm a mom of three and just want to feel good enough to get out of bed with out tears running down my face.
I don't do drugs, or smoke, or anything 100% sober (but my mother may not have been when she was preg with me)
I'm a vegetarian that tried to eat all organic, in the last three weeks, I stopped eating gluten 100%.
I've been to several doctors that simply scratch their head, a few years ago I tested negative with a blood-test for arthritis yet my body still hurts all the time with audible creeks and pops in my shoulders.

Any ideas? Please help! THANK YOU

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1 Replies:

  • Has the possibility of Ehler Danlos syndrome been suggested?It would explain the fevers,joint issues, csf leaks and murmur.
    rozellelily 21 Replies
    • October 16, 2013
    • 05:40 AM
    • 0
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