Discussions By Condition: I cannot get a diagnosis.

female low testosterone, really lost and need help, please!

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: kernowbird86
  • December 15, 2010
  • 09:54 PM

for over 7 years now i have been back and forth to the doctors for these 4 main reasons ...
constant low mood, ive forgotten what its like to be happy :(
always tired, and i just want to shut down all the time, its such an effort to do anything,
the sex drive, or complete lack of it, which obviously doesn't help with the low mood, because i feel like im not normal, which upsets me more, i used to love sex but now i cant even think of it, and being in a long term relationship obviously causes problems, when i do let him have his way, i am completely dry and it's painful, and i cant orgasm.
I have various muscle and joint problems, i spent over £300 on a chiropractor with no result and more recently a physiotherapist through my doctor who soon gave up on me and sent me back for more basic blood tests, thyroid, diabetes, liver etc... all of which are fine as usual,
they give me the same old blood test every time i go there just to be told im fine, as if this is all in my head! its been so long now ive even started questioning myself, whether all this is normal, but i believe you know in yourself when something's not right, like your not firing on all cylinders!
in general, i feel like an 80 year old,

so i gave up trying and decided the only thing i can really try and treat is my libido (also to save my relationship) and i know there are all sorts of viagra type things out there, and i came across ****y goat weed which is said to "boost your testosterone" which i read is what controls you your libido,
i researched further to find many sites with lists of symptoms for low testosterone, all of which i tick, every last symptom! it was such a relief to think i may have found the reason for these years of problems!
So back to the doctors i went, made an appointment with someone who specialises in female sexual health, and turns out she had no clue to the role testosterone plays amongst women, let alone the signs, i even took along printouts of research which she had no interest in looking at, so i asked her if she could just arrange for me to have my testosterone tested, which she did.
I phoned her today for my results ...
she told me they are normal, so i asked for what the actual level is and she told me 0.3, i then asked what the normal range is and was told it is 0.3 - 1.7, so i am right at the bottom! i asked if this could be the possible cause for my problems and she told me she didn't think so because i am within the normal range! what is normal?? I am 24 years old so surely it shouldn't be right at the bottom, i think age must come into consideration on this scale, am i wrong? i asked her if thats that then? im normal? she said "yep, goodbye"
i was in tears after the call, i felt so dismissed, as always, i just dont know where to turn now, i feel like ending my 7 year relationship because i feel so sorry for my boyfriend putting up with this for so long, but then that still leaves me the same, confused and just getting more and more depressed over the situation :(
im so sorry for the essay, but this means so much to me, you wouldn't believe, i wanted to tell my story in detail because i am so desperate for just someone to understand, and tell me im not crazy, any help at all would be greatly appreciated, anything :( please
thank you so much in advance, for even taking the time to read this :(
Naomi

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7 Replies:

  • Hi there :) .. things as far as testosterone arent that simple and you may need to see someone who specialises in that area... normal doctors do not specialise in hormones. I myself do have what ive been told non existant testosterone levels and have had testoserone implant due to that. My diagnoses had to come from a specialist (in my case a very smart gyno who knew a lot about the female hormones including testosterone in females). On my tests thou.. my testosterone appears in the normal range.. but that according to specialist needs to be substracted from a level of something else on the tests and ends up leaving me with zero free?/available testosterone. (sorry im trying to remember.. i cant remember now exactly what test result the other testosterone had to be substracted from to get the true level of testosterone available). Your normal doctors knowing not enough about hormones.. may well miss you actually having no available? testosterone (i wish i could remember the right terms). You need to go to a specialist. Testosterone will boost your sex drive!!! or at least give you extra sensitivity during sex so you'll be really enjoying it all heaps again. (my specialist treats lots of females with this issue with testosterone implants and gets excellent results).best luck at getting a specialist who is aware of the importance of testosterone in females (not all are aware its important but the results for themselves show it is)
    taniaaust1 2267 Replies
    • December 16, 2010
    • 10:21 AM
    • 0
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  • Hi there :) .. things as far as testosterone arent that simple and you may need to see someone who specialises in that area... normal doctors do not specialise in hormones. I myself do have what ive been told non existant testosterone levels and have had testoserone implant due to that. My diagnoses had to come from a specialist (in my case a very smart gyno who knew a lot about the female hormones including testosterone in females). On my tests thou.. my testosterone appears in the normal range.. but that according to specialist needs to be substracted from a level of something else on the tests and ends up leaving me with zero free?/available testosterone. (sorry im trying to remember.. i cant remember now exactly what test result the other testosterone had to be substracted from to get the true level of testosterone available). Your normal doctors knowing not enough about hormones.. may well miss you actually having no available? testosterone (i wish i could remember the right terms). You need to go to a specialist. Testosterone will boost your sex drive!!! or at least give you extra sensitivity during sex so you'll be really enjoying it all heaps again. (my specialist treats lots of females with this issue with testosterone implants and gets excellent results).best luck at getting a specialist who is aware of the importance of testosterone in females (not all are aware its important but the results for themselves show it is)Thank you so much for the response :) i really appreciate this, may i ask if you had similar symptoms to that i have? im a so sure this is it, everything points to this and it makes so much sense, even just the basic test i had showed how low my testosterone is, the problem i am facing and the reason im so fustrated is that i need to be refered by my doctor to see a specialist :( but she wont refer me because it says on paper that im in the normal range! its so upsetting, i feel so close the answers ive been searching for, for so many years, but its like im screaming in a soundproof box, nobody wants to listen, let alone help me :( what process did you go through to get where you are now? how did you get help?Thanku so much, Naomi
    kernowbird86 8 Replies
    • December 16, 2010
    • 11:27 PM
    • 0
    Flag this Response
  • Hi there :) .. things as far as testosterone arent that simple and you may need to see someone who specialises in that area... normal doctors do not specialise in hormones. I myself do have what ive been told non existant testosterone levels and have had testoserone implant due to that. My diagnoses had to come from a specialist (in my case a very smart gyno who knew a lot about the female hormones including testosterone in females). On my tests thou.. my testosterone appears in the normal range.. but that according to specialist needs to be substracted from a level of something else on the tests and ends up leaving me with zero free?/available testosterone. (sorry im trying to remember.. i cant remember now exactly what test result the other testosterone had to be substracted from to get the true level of testosterone available). Your normal doctors knowing not enough about hormones.. may well miss you actually having no available? testosterone (i wish i could remember the right terms). You need to go to a specialist. Testosterone will boost your sex drive!!! or at least give you extra sensitivity during sex so you'll be really enjoying it all heaps again. (my specialist treats lots of females with this issue with testosterone implants and gets excellent results).best luck at getting a specialist who is aware of the importance of testosterone in females (not all are aware its important but the results for themselves show it is)Thank you so much for the response :) i really appreciate this, may i ask if you had similar symptoms to that i have? im a so sure this is it, everything points to this and it makes so much sense, even just the basic test i had showed how low my testosterone is, the problem i am facing and the reason im so fustrated is that i need to be refered by my doctor to see a specialist :( but she wont refer me because it says on paper that im in the normal range! its so upsetting, i feel so close the answers ive been searching for, for so many years, but its like im screaming in a soundproof box, nobody wants to listen, let alone help me :( what process did you go through to get where you are now? how did you get help?Thanku so much, Naomi
    kernowbird86 8 Replies
    • December 16, 2010
    • 11:38 PM
    • 0
    Flag this Response
  • Hi there :) .. things as far as testosterone arent that simple and you may need to see someone who specialises in that area... normal doctors do not specialise in hormones. I myself do have what ive been told non existant testosterone levels and have had testoserone implant due to that. My diagnoses had to come from a specialist (in my case a very smart gyno who knew a lot about the female hormones including testosterone in females). On my tests thou.. my testosterone appears in the normal range.. but that according to specialist needs to be substracted from a level of something else on the tests and ends up leaving me with zero free?/available testosterone. (sorry im trying to remember.. i cant remember now exactly what test result the other testosterone had to be substracted from to get the true level of testosterone available). Your normal doctors knowing not enough about hormones.. may well miss you actually having no available? testosterone (i wish i could remember the right terms). You need to go to a specialist. Testosterone will boost your sex drive!!! or at least give you extra sensitivity during sex so you'll be really enjoying it all heaps again. (my specialist treats lots of females with this issue with testosterone implants and gets excellent results).best luck at getting a specialist who is aware of the importance of testosterone in females (not all are aware its important but the results for themselves show it is)im sorry, i tried posting this reply 3 times yesterday but i never shows up! Thank you so much for the response :) i really appreciate this, may i ask if you had similar symptoms to that i have? im a so sure this is it, everything points to this and it makes so much sense, even just the basic test i had showed how low my testosterone is, the problem i am facing and the reason im so fustrated is that i need to be refered by my doctor to see a specialist :( but she wont refer me because it says on paper that im in the normal range! its so upsetting, i feel so close the answers ive been searching for, for so many years, but its like im screaming in a soundproof box, nobody wants to listen, let alone help me :( what process did you go through to get where you are now? how did you get help?Thanku so much, Naomi
    kernowbird86 8 Replies
    • December 17, 2010
    • 07:15 PM
    • 0
    Flag this Response
  • im sorry, i tried posting this reply 3 times yesterday but i never shows up! Thank you so much for the response :) i really appreciate this, may i ask if you had similar symptoms to that i have? im a so sure this is it, everything points to this and it makes so much sense, even just the basic test i had showed how low my testosterone is, the problem i am facing and the reason im so fustrated is that i need to be refered by my doctor to see a specialist :( but she wont refer me because it says on paper that im in the normal range! its so upsetting, i feel so close the answers ive been searching for, for so many years, but its like im screaming in a soundproof box, nobody wants to listen, let alone help me :( what process did you go through to get where you are now? how did you get help?Thanku so much, Naomi
    kernowbird86 8 Replies
    • December 17, 2010
    • 07:16 PM
    • 0
    Flag this Response
  • Hi there :) .. things as far as testosterone arent that simple and you may need to see someone who specialises in that area... normal doctors do not specialise in hormones. I myself do have what ive been told non existant testosterone levels and have had testoserone implant due to that. My diagnoses had to come from a specialist (in my case a very smart gyno who knew a lot about the female hormones including testosterone in females). On my tests thou.. my testosterone appears in the normal range.. but that according to specialist needs to be substracted from a level of something else on the tests and ends up leaving me with zero free?/available testosterone. (sorry im trying to remember.. i cant remember now exactly what test result the other testosterone had to be substracted from to get the true level of testosterone available). Your normal doctors knowing not enough about hormones.. may well miss you actually having no available? testosterone (i wish i could remember the right terms). You need to go to a specialist. Testosterone will boost your sex drive!!! or at least give you extra sensitivity during sex so you'll be really enjoying it all heaps again. (my specialist treats lots of females with this issue with testosterone implants and gets excellent results). best luck at getting a specialist who is aware of the importance of testosterone in females (not all are aware its important but the results for themselves show it is) this is now my 7th attempt to reply! fingers crossed!!Thank you so much for the response :) i really appreciate this, may i ask if you had similar symptoms to that i have? im a so sure this is it, everything points to this and it makes so much sense, even just the basic test i had showed how low my testosterone is, the problem i am facing and the reason im so fustrated is that i need to be refered by my doctor to see a specialist :( but she wont refer me because it says on paper that im in the normal range! its so upsetting, i feel so close the answers ive been searching for, for so many years, but its like im screaming in a soundproof box, nobody wants to listen, let alone help me :( what process did you go through to get where you are now? how did you get help?Thanku so much, Naomi
    kernowbird86 8 Replies
    • December 17, 2010
    • 08:07 PM
    • 0
    Flag this Response
  • Hi there :) .. things as far as testosterone arent that simple and you may need to see someone who specialises in that area... normal doctors do not specialise in hormones. I myself do have what ive been told non existant testosterone levels and have had testoserone implant due to that. My diagnoses had to come from a specialist (in my case a very smart gyno who knew a lot about the female hormones including testosterone in females). On my tests thou.. my testosterone appears in the normal range.. but that according to specialist needs to be substracted from a level of something else on the tests and ends up leaving me with zero free?/available testosterone. (sorry im trying to remember.. i cant remember now exactly what test result the other testosterone had to be substracted from to get the true level of testosterone available). Your normal doctors knowing not enough about hormones.. may well miss you actually having no available? testosterone (i wish i could remember the right terms). You need to go to a specialist. Testosterone will boost your sex drive!!! or at least give you extra sensitivity during sex so you'll be really enjoying it all heaps again. (my specialist treats lots of females with this issue with testosterone implants and gets excellent results).best luck at getting a specialist who is aware of the importance of testosterone in females (not all are aware its important but the results for themselves show it is)this is my 8th attempt to respond now! hope it works!Thank you so much for the response :) i really appreciate this, may i ask if you had similar symptoms to that i have? im a so sure this is it, everything points to this and it makes so much sense, even just the basic test i had showed how low my testosterone is, the problem i am facing and the reason im so fustrated is that i need to be refered by my doctor to see a specialist :( but she wont refer me because it says on paper that im in the normal range! its so upsetting, i feel so close the answers ive been searching for, for so many years, but its like im screaming in a soundproof box, nobody wants to listen, let alone help me :( what process did you go through to get where you are now? how did you get help?Thanku so much, Naomi
    kernowbird86 8 Replies
    • December 18, 2010
    • 04:40 PM
    • 0
    Flag this Response
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