Discussions By Condition: I cannot get a diagnosis.

Female, 31, with 2 month long fever, no diagnosis

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: tjames423
  • July 9, 2010
  • 11:45 PM

I am a 31 year old female who, up until about 2 months ago, has been relatively healthy. I am including all available details of my illness below in an effort to find some answers. Thanks for taking the time to help!!

I have always had normal blood pressure and only get sick occasionally, usually with something that is going around my school since I am a teacher. I have no known medical conditions other than seasonal allergies. I am allergic to penicillin and very sensitive to steroids. I have a strong family history of autoimmune diseases (mother has Multiple Sclerosis, maternal uncle has Rheumatoid Arthritis, cousin has markers for scleroderma). There is also a family history of Polycystic kidney disease (maternal grandmother and uncle), and diabetes (both parents, both maternal grandparents, paternal grandmother). There is also a family history of cancer (paternal grandparents) and thyroid problems (mother and maternal grandmother)

May 18, 2010 After several days of extreme fatigue, sore throat, fever, headache, and stomach issues, I went to my doctor. At the doctors office I had a fever of 101.6. A strep test on tonsil swab was negative and I was diagnosed with an unknown virus and told to rest for a few days.

May 26 ,2010 The symptoms continued with no change from the week before, so I returned to the doctor. At the doctors office, I had a fever and my blood pressure was a little high. Since I have had mono twice (which is unusual), the doctor ordered blood work including CBC and mono test. All blood work was normal and the mono test showed a past infection but no current infection. The doctor again diagnosed a continual viral infection. Due to concern about family history, the doctor asked me to return for additional lab work after my fever went away.

June 8, 2010 Although I continued to feel fatigued, the fever was gone for several days and I returned to the doctor to have blood work. ANA w/reflex was negative. Rheumatoid factor was 7.1, which is normal. TSH was .505 which is normal although it is on the lower side of normal. Complete metabolic panel was normal, CBC with differential/ platelet was normal. The only abnormality was CRP which was 17. The doctor told me to get some rest and suggested rechecking CRP in 1 month. She also asked me to come back in the following week for fasting insulin, B12, and folic acid.

June 17, 2010 Fasting insulin, B12, folic acid were all normal. The doctor suggested that I might have been suffering from exhaustion, and suggested continued rest. The practice that I’ve been going to is closing for financial reasons and my doctor suggested that I follow up with another doctor to check CRP in July.

July 9, 2010 I have continued having a low grade fever (between 100-101 daily), headaches, and extreme fatigue. My lips are always super dry and chapped no matter how much water I drink. I am leaving for vacation this weekend so I went to a doctor’s care, hoping that maybe this time I have an infection. At the doctor’s office I had a fever of 101.1 and my blood pressure was a little high. The doctor did another CBC today and checked my urine. On the CBC my RDW was low (11.6) and my MPV is low (8.0). I looked at last months CBC and saw that my RDW was 12.9 and no MRV was listed. Today my urine test came back normal as did the rest of the CBC No CRP was done today. The doctor diagnosed me with an unknown virus and told me to get lots of rest and fluids. He also suggested I follow up after vacation for more blood work.

I am so frustrated because I have done very little except rest for the past 6 weeks or so, and I am no better than I was in the beginning. Any advice is appreciated!

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8 Replies:

  • I forgot to mention that I also have had symptoms of Reynaud's phenomenon for several years...my hands and feet turn white, purple, and red and stay cold much of the time. I don't know if this is important but I thought I'd share.
    tjames423 2 Replies Flag this Response
  • Did they test for cytomegalovirus? (Similar to Mono)
    Anonymous 42789 Replies Flag this Response
  • I don't think that I've been tested for CMS. I looked it up and it does sound a lot like what I've been experiencing, so I will ask my doctor about it. My only concern is that my symptoms seem to be lasting longer than the typical CMV course. The fevers are kind of on and off at this point, but seem to get worse after any slightly strenuous activity. Any other suggestions to take to my doctor?
    tjames423 2 Replies Flag this Response
  • You may be in the early stages of chronic fatigue immunity dysfunction syndrome CFIDS . So your doctor has given you the best advice you could of been given.. rest up. (if you dont do that you may actually get a lot worst if im correct). It is way too early at this point for anyone thou to diagnose CFIDS. The having mono twice shows that you probably have some kind of predisposition to getting CFIDS. 10% of those who get mono end up with CFIDS and in CFIDS patients reoccuring mono isnt uncommon. there is a connection between Reynauds and CFIDS.. many with CFIDS get Reynauds. It isnt uncommon for CFIDS patients to have a lot of autoimmune issues in their families. A common presentation of early CFIDS is what seems to be virus's.. viral onset. I have CFIDS and that is how mine started... doctors kept on telling me that i was getting virus's (thou they couldnt say what virus, this happened to me about 7 times over 9mths, before i took a real turn for the worst). Over time I got this happening more and more till I developed permanent CFIDS 9mths later (ended up bedridden for a further 9 mths..dont worry as if it is CFIDS and if you take it easy..hopefully you will be not end up that bad). What i realise now was that each of those "unknown" viruses were actually flares of CFIDS (slow onset). i really hope im wrong.. http://wwcoco.com/cfids/bernesx.html If it does turn out to be CFIDS (you wont know for a few more months).. a good support group is the "not craxy forums" ................. If it is CFIDS, they just discovered a virus which may be the cause of it (its been found that 95% have the virus).. so hopefully this virus testing will be out in the very near future.
    taniaaust1 2267 Replies Flag this Response
  • The fevers are kind of on and off at this point, but seem to get worse after any slightly strenuous activity. Id missed seeing this other post of yours. That symptom is screaming of CFIDS.. CFIDS symptoms worsen after excertion and is the defining symptom of it in most of the definations of it about the world. :( http://sacfs.asn.au/download/consensus_overview_me_cfs.pdf I think is one of the best places to find out about the illness you may have if it goes on (this consensus document was compiled by medical experts and patient groups on the illness about the world). . (note..there are different subgroups of this.. and you may not fit into some of the "watered' down subgroups of it in which some have throw psych. patients into the mix, hoping to make this serious illness go away (governments and insurance companies dont like this illness as it puts so many onto disability pensions etc).. if you read studies of it, you need to make sure you are in the same subgroup to know if whatever study you are reading applies for your case. So pay attention to what definations of it about the world fit your case best. This link above.. if you have this illness, should be close to the subgroup you may END UP finding yourself in (from how its starting for you, i think its early days and your symptoms will probably get worst) ... and is an medically recognised very well known world wide defination in itself of this very political illness). Ive got my fingers crossed for you, hoping im wrong.
    taniaaust1 2267 Replies Flag this Response
  • Tjames423

    Did you get better or where you diagnosed with CFIDS?
    Anonymous 1 Replies Flag this Response
  • Yes, any updates? I'm a 29-year-old female, generally healthy except seasonal allergies and an adult-onset severe egg allergy that started about a year ago. I've had a low (101 and lower) fever with fatigue daily for 2 months. It started with severe head and neck pain, both of which are milder now and come and go. My immunoglobulin M is high but CBC, autoimmune tests, and tests for a variety of viruses are normal. Neither primary dr nor infectious disease dr can come up with a diagnosis.
    Anonymous 1 Replies Flag this Response
  • Check for mold!!!!! At your school and home! I'm going through the same thing and determined it was mold at school.
    Anonymous 1 Replies
    • August 22, 2015
    • 03:56 AM
    • 0
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