Discussions By Condition: I cannot get a diagnosis.

feeling very frustrated

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: rctriplefresh5
  • November 7, 2009
  • 08:57 PM

ok i actually posted this exact thread on another board a year ago, but i still have found no solution to my problems so ill post it on this site.

so i have been having a lot of symptoms, and i had suspected i had a brain tumor. i went to my neurologist and got an mri w/wo contrast done. it came back that i had a probable 2mm pituitary microadenoma. anyway my neurologist didnt seem concerned, and told me to get my hormones checked and either take meds, or do nothing for it. I FEEL SUPER UNHEALTHY so i decided to go to a neuro surgeon, he told me the tumor is not causing these symptoms, and i need to see a phychiatrist for imagining these symptoms. he said ishould get my hormones checked as well, and he would not operate. I am a 19 year old male and i have the following symptoms-

low testosterone(got it checked)
headaches0not terrible but frequently
poor eye sight, double vision, blurry vision, sometimes see black **** i nthe air,
stomach issues(been having these for years)
focus, memory and basic feeling of being alive is gone
muscle and joint soreness
dizzyness
insomnia
feel pressure in the back right side of my head
i sometimes feel a beating there if i touch my head in that spot
i also freqently have chest pain
high cholesterals.
also sometimes feel like my head will shake
muscles getting weaker(im very into lifting weights)
so the doctor and neurosurgeon said that the probable 2mm microadenoma is not a sign or cause of these symmptoms and its just a coincidence that i found that in my mri, and we should just leave it there and monitor it.

im very suspicious of this, and just want to feel healthy again. i also have another question. since my testosterone is low i was thinking of getting tesosterone injections from the urologist if my prolactin is low etc. if istart trt will my tumor enlarge? the neurosurgeon said no but he was a not nice guy to be completely honest guys.

now, according to the doctors my tesosterone is in the normal range, however im a 20 year old amle, suppsoedly in the prime of my lfie, and when igot tested i was at 270 on a scale of 240-890. now we know this test is used for all adults, so to be 30 pounds within the bottom of the scale is crap. i went a seconmd time and got 420 as my result, which still is kind of low. (these were done at age 19) the endo says my hormones are normal etc. i had gptten a response on another forum, that a lot of doctors call microadenomas inmcedental if theyre small ,and they dont consider that location of the tumors csan be jsut as improtant as the tumors actual size also. I know this is the reason i have al;l these symptoms, im just not sure what i can do about it? im just tired of being 20, and getting weaker, and weaker. also i have a cloudy feeling in my head all the time. i am getting A'S in school, but i have trouble comprehending stuff. i am a great test taker but have no logic.

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  • ok i actually posted this exact thread on another board a year ago, but i still have found no solution to my problems so ill post it on this site.so i have been having a lot of symptoms, and i had suspected i had a brain tumor. i went to my neurologist and got an mri w/wo contrast done. it came back that i had a probable 2mm pituitary microadenoma. anyway my neurologist didnt seem concerned, and told me to get my hormones checked and either take meds, or do nothing for it. I FEEL SUPER UNHEALTHY so i decided to go to a neuro surgeon, he told me the tumor is not causing these symptoms, and i need to see a phychiatrist for imagining these symptoms. he said ishould get my hormones checked as well, and he would not operate. I am a 19 year old male and i have the following symptoms- low testosterone(got it checked) headaches0not terrible but frequently poor eye sight, double vision, blurry vision, sometimes see black **** i nthe air, stomach issues(been having these for years) focus, memory and basic feeling of being alive is gone muscle and joint soreness dizzyness insomnia feel pressure in the back right side of my head i sometimes feel a beating there if i touch my head in that spot i also freqently have chest pain high cholesterals. also sometimes feel like my head will shake muscles getting weaker(im very into lifting weights)so the doctor and neurosurgeon said that the probable 2mm microadenoma is not a sign or cause of these symmptoms and its just a coincidence that i found that in my mri, and we should just leave it there and monitor it. im very suspicious of this, and just want to feel healthy again. i also have another question. since my testosterone is low i was thinking of getting tesosterone injections from the urologist if my prolactin is low etc. if istart trt will my tumor enlarge? the neurosurgeon said no but he was a not nice guy to be completely honest guys.now, according to the doctors my tesosterone is in the normal range, however im a 20 year old amle, suppsoedly in the prime of my lfie, and when igot tested i was at 270 on a scale of 240-890. now we know this test is used for all adults, so to be 30 pounds within the bottom of the scale is crap. i went a seconmd time and got 420 as my result, which still is kind of low. (these were done at age 19) the endo says my hormones are normal etc. i had gptten a response on another forum, that a lot of doctors call microadenomas inmcedental if theyre small ,and they dont consider that location of the tumors csan be jsut as improtant as the tumors actual size also. I know this is the reason i have al;l these symptoms, im just not sure what i can do about it? im just tired of being 20, and getting weaker, and weaker. also i have a cloudy feeling in my head all the time. i am getting A'S in school, but i have trouble comprehending stuff. i am a great test taker but have no logic.????????????????
    rctriplefresh5 2 Replies
    • November 10, 2009
    • 01:34 AM
    • 0
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  • Hi there. I feel so bad for you being so young and sick, and nobody taking you seroiusly...I've been having symptoms since I was 17, so I know how it is. I think the brain surgeon should be the one scheduling the psych. appointment...for himself, I'm sure he was a total ***k, and I'm sorry to say this, but your doctor sounds like a complete moron, too; trust me, I've seen more than my fair share of jerky and or complete idiot doctors; it amazes me how anyone can go through that many years of school and still lack intelligence, and common sense. Anyway, it sounds like you need a second opinion; tumors on the brain aren't normal, no matter how small they are, and while they can be a "incidental finding", doctor's speak for "we found this, but we're not gonna do anything about it because we weren't looking for it in the first place." or "it's not big enough for us to worry about, whether it's causing symptoms for you or not .", they can be very dangerous to be left alone; something the majority should have learned in medical school...granted, not all of them are like that, just the ones who don't know what that mass between their ears is for, or the ones who care more about their fancy sports cars, etc. instead of us, the patients; the reason why they have a job in the first place. As for your low testosterone, well, I'm a female, so I don't know how you're feeling with low testosterone, but I have high testosterone, and no insurance, so naturally, I'm not on any treatments for it either, so you're not alone with that. Oh, while you're searching for answers, you should go to the mystery diagnosis website and look in the featured diseases section and just scroll through the lists of shows and you might come across something that resembles what you're going through...as for me, I've went to the website, and I've found that I could have possible undiagnosed Non-classic Congenital Adrenal Hyperplasia for 9 years, something that I have yet to be tested for due to lack of insurance, and while I don't have all the symptoms, I have enough for it to be considered at my next appointment, so there's a good chance that you might be able to find out what might be happening to you, too. Don't give up. You're still young and you will get your answers, just keep trying. And as for the boards, they can be hit and miss; as you found out a year ago. Sometimes it's like that here too, but usually everyone is good about answering questions; so be patient and you'll get a reply, and if you ever need to talk, my email is jamie2653@yahoo.com. Take care, and I hope you get well soon.
    Anonymous 42789 Replies
    • November 10, 2009
    • 04:07 AM
    • 0
    Flag this Response
  • Hi there. I feel so bad for you being so young and sick, and nobody taking you seroiusly...I've been having symptoms since I was 17, so I know how it is. I think the brain surgeon should be the one scheduling the psych. appointment...for himself, I'm sure he was a total ***k, and I'm sorry to say this, but your doctor sounds like a complete moron, too; trust me, I've seen more than my fair share of jerky and or complete idiot doctors; it amazes me how anyone can go through that many years of school and still lack intelligence, and common sense. Anyway, it sounds like you need a second opinion; tumors on the brain aren't normal, no matter how small they are, and while they can be a "incidental finding", doctor's speak for "we found this, but we're not gonna do anything about it because we weren't looking for it in the first place." or "it's not big enough for us to worry about, whether it's causing symptoms for you or not .", they can be very dangerous to be left alone; something the majority should have learned in medical school...granted, not all of them are like that, just the ones who don't know what that mass between their ears is for, or the ones who care more about their fancy sports cars, etc. instead of us, the patients; the reason why they have a job in the first place. As for your low testosterone, well, I'm a female, so I don't know how you're feeling with low testosterone, but I have high testosterone, and no insurance, so naturally, I'm not on any treatments for it either, so you're not alone with that. Oh, while you're searching for answers, you should go to the mystery diagnosis website and look in the featured diseases section and just scroll through the lists of shows and you might come across something that resembles what you're going through...as for me, I've went to the website, and I've found that I could have possible undiagnosed Non-classic Congenital Adrenal Hyperplasia for 9 years, something that I have yet to be tested for due to lack of insurance, and while I don't have all the symptoms, I have enough for it to be considered at my next appointment, so there's a good chance that you might be able to find out what might be happening to you, too. Don't give up. You're still young and you will get your answers, just keep trying. And as for the boards, they can be hit and miss; as you found out a year ago. Sometimes it's like that here too, but usually everyone is good about answering questions; so be patient and you'll get a reply, and if you ever need to talk, my email is jamie2653@yahoo.com. Take care, and I hope you get well soon.no offense to anybody on this site, but noone know whats going on with me here? am i doomed to live in misery for the next 60 years of my miserable life.sighs.
    rctriplefresh5 2 Replies
    • November 23, 2009
    • 11:21 PM
    • 0
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