Discussions By Condition: I cannot get a diagnosis.

fatigued child with tingling feet

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: Anonymous
  • February 4, 2009
  • 03:53 PM

am at a constant battle with myself as a mother because my gut tells me that something is not right and that there is something I can do to give my daughter a higher quality life but doctor can't seem to nail it....
She is 4.5 years old and her biggest issue is that her feet and hands continue to go "wrinkly" (that is her explanation, i am assuming they are falling asleep she just doesn't have the words and I want her to use her words so i don't correct her!) There does not seem to be a pattern for when it happens, it happens both sitting and standing. She also cant walk up 2 flights of stairs without ending up whining and crying that her legs are tired, or play the Wii (video game) with out complaining her arms are tired after only 10 minutes. We played soccer in the summer and she cried almost every game, and i think it was out of frustration as she may of felt physically tired or sore. Same thing with riding a bike, however skating has been going well this year, she lasts 45 minutes on skates.
a bit of history...
her dad is some sort of North american indian but i am unsure of what as her was adopted.
she battles anemia as an infant, and this should be re checked is what i am thinking now.
she is extremely far sighted and wears glasses to correct.
she has battled constipation issues, and is a very nervous anxious child, and since we have worked on that her constipation issues have disappeared completely. She takes a L-theanine supplement for calmness. She also has had (what i thought were) several yeast infections, which her pediatrician says is not yeast and that someone her age cant get a yeast infection.
I recently had her B12 checked and her levels were 423. Fromresearch i think she should have her methylmolonic acid and homocysteine levels tested but her pediatrician says anything above 133 is normal...
i worry that i should just let it go and let her be a kid and let the doctors help someone else, i feel like i am being a pain in someones butt....what would you do or what am i or t he doctors missing????

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10 Replies:

  • Ask about celiac disease. Numbness in hands and feet & fatigue & constipation can be caused by celiac: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/index.htm
    aquila 1263 Replies
    • February 4, 2009
    • 05:00 PM
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  • Thanks aquila, I will ask if she has been tested for that....funny that the ped did not ask about it with her iron levels low earlier in life, one of my kids was tested for that i think with the iron issues but i am not sure which one, i will ask and our next visit...thanks for your reply...i appreciate it!
    Anonymous 42789 Replies
    • February 4, 2009
    • 05:20 PM
    • 1
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  • It could be lyme disease too. It is getting common. Does she have any skin problems ?
    carla 12345 18 Replies
    • February 4, 2009
    • 05:24 PM
    • 0
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  • am at a constant battle with myself as a mother because my gut tells me that something is not right and that there is something I can do to give my daughter a higher quality life but doctor can't seem to nail it....She is 4.5 years old and her biggest issue is that her feet and hands continue to go "wrinkly" (that is her explanation, i am assuming they are falling asleep she just doesn't have the words and I want her to use her words so i don't correct her!) There does not seem to be a pattern for when it happens, it happens both sitting and standing. She also cant walk up 2 flights of stairs without ending up whining and crying that her legs are tired, or play the Wii (video game) with out complaining her arms are tired after only 10 minutes. We played soccer in the summer and she cried almost every game, and i think it was out of frustration as she may of felt physically tired or sore. Same thing with riding a bike, however skating has been going well this year, she lasts 45 minutes on skates. a bit of history...her dad is some sort of North american indian but i am unsure of what as her was adopted.she battles anemia as an infant, and this should be re checked is what i am thinking now.she is extremely far sighted and wears glasses to correct.she has battled constipation issues, and is a very nervous anxious child, and since we have worked on that her constipation issues have disappeared completely. She takes a L-theanine supplement for calmness. She also has had (what i thought were) several yeast infections, which her pediatrician says is not yeast and that someone her age cant get a yeast infection. I recently had her B12 checked and her levels were 423. Fromresearch i think she should have her methylmolonic acid and homocysteine levels tested but her pediatrician says anything above 133 is normal...i worry that i should just let it go and let her be a kid and let the doctors help someone else, i feel like i am being a pain in someones butt....what would you do or what am i or t he doctors missing???? Your pediatrician is very misinformed on B12. Please get on the b12 misdiagnosis thread - it may be helpful if you post there. 423 is low normal and she is experiencing symptoms directly related to B12 deficiency. Please get her on a good children's chewable probiotic to help with the yeast infections. Yes, a young child can get yeast problems, especially if they have been prescribed antibiotics. This will also help with her constipation, as will a couple of dried plums taken in the evening after her dinner. IMO, I'd find another pediatrician who can better evaluate her condition. She should have her D levels checked as well as further testing on her anemia. What is her diet like? Is she a picky eater? Best wishesDOM
    acuann 3080 Replies
    • February 4, 2009
    • 05:48 PM
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  • not really on the skin conditions....chapped lips and kankers are common but that is about it.... she often has the yeast issues as i mentioned but also often reacts to soaps in the form of a sore and red vulva at birth she has mild baby acne and i should of mentioned a severe reaction to penicillin once, so docs said she was allergic.... i also had her live blood cells read and her eyes read by an eyeridoligist(sp?) and am waiting for those conclusions.... and for the B12 see that angers me...i place my trust in someone and who do you believe now a days.... How much B12 can she take? should i give a supplement for it like a b12 folate sublingual or just a multi vitamin? the b12 subli. at my local health store is 1000 and that is obviously for avegetarian adult not a child.... i do have a childrens probiotic (capsule with powder in side)that i put in her yogurt and she likes...i have not used it in a while i was unsure if this is something i could give on a regular basis, or just use following the course of antibiotics..which she has not had now in a long time!! thanks thanks and thanks for all who have responded or will respond...seeing your thoughts and advice are very helpful to me.
    Anonymous 42789 Replies
    • February 4, 2009
    • 09:10 PM
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  • as for her diet it is fine ..well i think! lol she eats a balanced diet rich in whole grain and loads of fruits and veggies...hitting the vit D subject she does not drink milk, she hates it, she only drinks water and loads of it....tap water too so maybe something is wrong with that? some mornings she is sooo thirsty and hungry she wants nothing to do with getting dressed she watnts to go the kitchen, she also sleeps with a cup in her room and it is gone by morning....
    Anonymous 42789 Replies
    • February 4, 2009
    • 10:09 PM
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  • I would take her to a developmental children's specialist. Has she been screened for diabetes? Glands/thyroid...heart? Is she overweight? It could also be genetic, but I would begin with the developmental doctor.
    Monsterlove 2921 Replies
    • February 5, 2009
    • 00:22 AM
    • 0
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  • i am not sure what a developmental docotor is? is that a term used in the US? or maybe just something i have not heard of? She is actually underweight, well in the 40th percentile for weight and 90th for height, for what she eats i would think she would be heavier... yes she was screened for diabetes due to her excessive thirst....I should also mention she is quite accident prone she also reacted severely to her last DPT-hib shot and was excluded from taking the remaining immunizations form the minister of health. Here in canada its a a big hoopla if you dont take them, they even suspend from school in grade school if your not properly excused from the government.
    Anonymous 42789 Replies
    • February 5, 2009
    • 00:30 AM
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  • It could be the tap water.I wouldn't let my kids drink it without filtering.You wouldn't believe how much junk is in it . Try using a bottled one or a filter.It is good advice about the vit B.
    carla 12345 18 Replies
    • February 5, 2009
    • 09:05 AM
    • 0
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  • Did you find out what she has? My child has the same exact symptoms!
    Anonymous 42789 Replies
    • December 18, 2009
    • 10:24 PM
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