Im so desperate to get this sorted out as it is wrecking my life! Please help if you have any ideas. Im on the verge of having to give up work which I love so Im really desperate.
I started getting pain in my hands and feet about 8 months after having a baby, feels like extreme extreme fatigue but ONLY in my hands and feet like Im wearing socks and gloves of pain. They feel slightly swollen, the skin feels tight and they feel slow to move but there is nothing to see so any swelling must be very mild.
I was diagnosed with ME/CFS a few years ago but they have since discovered I have pernicious anaemia and have said that the CFS was an incorrect diagnosis and since having the B12 jabs I have lost all the symptoms I had with those, but this pain in hands and feet has stayed. I fear doctors see this old diagnosis and just put it down to this all the time but when I read the symptoms of it, it just doesnt seem to fit for me.
I have had an MRI on my spine, loads of blood tests, nerve conduction tests and seen 2 neurologists and a rhuematologist. None have been able to suggest anything because it is so restricted to just my hands and feet. When really bad it sometimes rises towards elbows and knees but this is rare. It doesnt seem to be affected by activity/rest and I dont have periods of remission, its constant and has been for over 1 year.
If you have any suggests Id love to hear them - thanks for reading (sorry it turned out so long!)