Discussions By Condition: I cannot get a diagnosis.

Fatigue,loss of balance, tingling

Posted In: I cannot get a diagnosis. 26 Replies
  • Posted By: Anonymous
  • December 25, 2006
  • 10:13 PM

I am a 24 y/o m with fatigue, loss of balance, and intermittent tingling in both of my feet at the same time. I've had metabolic panels, cbc, thyroid tests, mri/mra of the head, ct of the head, eeg, transcranial ultrasound, multitude of hearing tests from the ENT doctor. So far, my head is clear, no lab results were conclusive, (meaning no diabetes, thyroid issues) and no problems with my inner ear. I was wondering if anyone out there has heard of any conditions that could cause these symptoms that involve the neck. This has been going on for about one year, and my neck has not felt quite right but I can't really say I'm having pain there, or that it's stiff. Any help would be appreciated!

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26 Replies:

  • I'm a 29 year old female, and I have been suffering similar symptoms for about a year. Too many doctors, no diagnosis. Is anyone around you feeling the same way? I have began to wonder about enviromental causes myself...but who knows. I have another Dr's app't, new Dr. in January, I am hoping this one works out for the better. I went to a neuro specialist myself, due to the tingling, and they didn't find anything. What rattles me is that I have never had any of these sensations before in my life, which I keep telling the Dr's. This just doesn't seem normal to me...I can sympathize with you, this is very frustrating, and it's hard to deal with life when you are living through a health mystery, and Dr's are seemingly useless...I don't know what to tell you, but it's good to hear I am not alone. I can tell you that I was tested for mono, lime disease, thyroid, diabetes, liver function, and sent to the neuro...If you come up with a diagnosis, post it...
    Anonymous 42789 Replies
    • December 26, 2006
    • 03:07 AM
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  • Are you having balance problems also? How about any skin problems such as facial swelling? I"m going to the cardiologist soon to see if he's got any ideas.I'm hoping it's not an autoimmune thing, aka sarcoidosis, amyloidosis, etc but at this point I just want to know. If we don't find something soon I'm gonna get a whole new crew of doctors. Noone else around me has these symptoms, and I've never had them either. I'm not in a risk factor for HIV, syphyllis, or such (have been with my wife five years) but those are also possibilities with these symptoms. If you find anything out post it and I'll do the same.
    Anonymous 42789 Replies
    • December 26, 2006
    • 06:25 AM
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  • Have you been checked for celiac disease? It can cause numerous neurologic symptoms without GI symptoms. My daughter had severe migraines, dizziness, neck pain and fatigue that plagued her. Turned out she was celiac and ALL symptoms disappeared after going gluten free.I have since learned that many celiacs suffer form neurologic symtpoms for years prior to being diagnosed because celiac is not investigated - simply because they dont have GI symptoms.
    Anonymous 42789 Replies
    • December 26, 2006
    • 08:44 AM
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  • Can celiac come on at any time in one's life?
    Anonymous 42789 Replies
    • December 26, 2006
    • 06:05 PM
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  • Sounds like you may have an autoimmune disorder.
    Anonymous 42789 Replies
    • December 27, 2006
    • 07:29 AM
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  • Can celiac come on at any time in one's life?Yes, but its most common onset is at puberty, after an unrelated infection, or during a period of stress (job loss, death in the family, money problems). It starts off minor and gets worse, and it usually takes 12-14 years to diagnose because the symptoms can vary so much from case to case (This also makes it difficult to pinpoint exactly when it starts).I never had the tingling but I did have the dizziness and fatigue and muscles in my neck and legs mostly just not "feeling right."
    Azaral 152 Replies
    • December 27, 2006
    • 00:00 PM
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  • Hi all unregistered, First, I wish that all the unregistered would register, it would make replying more personal that way! Having said that: I would like you all to check out an auto-immune disorder called: Pernicious Anemia. In the search box at this site, put in: pernicioius anemia and look at all the info, symptoms and see if it fits you. I know you all have CBC's that comes back normal, with pernicious anemia, you can have symptoms of: weakness, fatigue, upset stomach, rapid hearbeat, vision distortion, breathlessness, headaches-that continue to get worse with time and will start to have a constant headache that will be there 24/7m, numbness and tingling in the arms and legs, loss of balance, memory loss, extreme mood changes, and many more. The thing that you have to remember is that these symptoms can be their a long time before it shows up on any CBC (complete blood count). Pernicious anemia is caused by your body no longer able to process vitamin B-12 from the foods that you eat...without vitamin B-12 you can not make red blood cells..and over time you will become anemic. I suggest that you ask your doctor to do a blood test called: vitamin B-12 cascade. If this comes back as low vitamin B-12 level...them have him do another blood test to see if you have antibodies against your intrinsic factor..if this comes back positive...you have pernicious anemia. The good news is: It is very treatable if caught early! The bad news is: If it isn't..damaging effects in the brain, spinal cord, may/may not be fixable! If you have pernicious anemia..you will need to have injections of vitamin B-12 for the rest of your life, which sounds bad, but consider the alternative of: brain damage, neurological damage, and dementia, and in rare cases..even death. I hope that all of you will take this seriously and check it out. TAKE CARE..GOOD LUCK...SKEETER.:)
    skeeter 42 Replies
    • December 27, 2006
    • 08:21 PM
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  • O.k, so I'm the 29 year old who posted second. I was tested for celiacs, came back negative. My most recent test was for thyroid, and acid reflux. They put me on meds for acid reflux, but I am still feeling odd. I get mostly the tighness in the muscle feeling, and tingling in the hands, elbows, sometimes feet. I occaiosnally get dizy, lose balance. I think I am growing so used to feeling this way it has become the norm. I also feel quite fatigued, and will get headaches that last for about a day. I have that other appointment in January, and I am going to request diabetes, Helicopter Pylori, and HIV again. I had HIV at 4 months, and it was negative, but I just want to be sure. I have done alot of research and some of it is just scary. I sometimes feel like what is going on is infectious, because it seems like everyone around me, and where I live is suffering from bugs and viruses constantly. There is a yahoo group called aunknownstdviralillness that I found recently where persons are desrcribing a virus they believe they are transmitting to their families and others around them. They talk about fatigue, stomach illness, headaches, dry mouth and eyes, etc..I hope this is not what is happening to me, or you. Some of these people even went to the Mayo clinic, which I have considered, seeing as though I have been sick for a year now..but they were not successful their either, and spent lots of money with no results. At this point I am going to keep going to Drs. If I am infecting people, it's my responsibilty to keep looking. Dr's tell me that I'm fine, and need to move on. Moving on means I go to work and interact with people, and my family. I did this, and I feel like I made them sick, and yet they still think I'm imaging things. I have wished that I was for a while now. But I don't think so. If the next drs app't does not work, I may try Herpes drugs. I don't have any symptoms of herpes exactly, but there a large number of illnesses/viruses in that family, pox, shingles, herpes zoster, measles, mono, etc..I read on another site a person who had similar symptoms, and they were prescribed herpes meds, and they improved. That'll be my last ditch effort..Or I guess I will have to live with this, or it will become so widespread, it will have to come to light....Anyway, I will keep posted. i want to remain annoyomous at this point. But I will remain, 29, female, undiagnosed, NY....
    Anonymous 42789 Replies
    • December 28, 2006
    • 02:22 AM
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  • Hi. A couple of things to try: Find a good chiropractor - pinched nerves can cause the tingling sensations and tight muscles. Also, you may need to be on anti-depression medication (such as Zoloft). Depression can cause tingling and muscle pain, stiffness.Believe it or not, you could also be allergic to the tap water (from chemicals in the water and possibly the metal in the pipes). Try purified bottled water (Dasani is a good one, I believe) and see if this helps. If you have any old dental work (fillings, metal crowns), these can eventually oxidize into nickel which I personally am VERY allergic to. I had these fillings/crowns replaced with porcelain as I had developed sores on my tongue and gastric problems. These have since disappeared completely.Gastric reflux can cause problems, as well. Try otc Cimetidine and see if that helps. Be sure you are not dehydrated. This can cause headaches. Try getting adequate sleep and don't push yourself. Rest if you get tired. Be kinder to yourself and realize that right now you need extra tlc. Stay away from chocolate and processed meats, as these are headache triggers. Hang in there, and I hope you are healed soon. I will pray for you.
    Anonymous 42789 Replies
    • December 28, 2006
    • 09:21 PM
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  • try looking at me or cfs this has same symptons
    Anonymous 42789 Replies
    • December 28, 2006
    • 09:36 PM
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  • Hi,I posted the first thread on this forum, just wondering, what is me? CFS i know about but I've never heard of me. Thanks everyone for your posts and support.
    Anonymous 42789 Replies
    • December 28, 2006
    • 11:30 PM
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  • Yea, what is ME? Just to mention I also have been tested for Fibromyalgia, endrmetriosis, had a healthy pap smear..I would agree that trying to live normally does help, and anti-depressents help a bit too, I did try them. The dr's at the time said my mono spot was high for Ig level, which is the recent not current level(Mono tests for long and short term I guess). They said anti-deperessents would help, and they did a bit, but caused dry mouth and dizzy spells, which they can do. I'm just not depressed enough to take them. My life is more or less normal, same computer tech job three years running, same boyfriend a year, good family, etc, nothing to really be depressed about. I must say that the worst symtpms have subsided, the dizziness and what I called the twinkling. It was like twinkilng feeling inside...I have a hard time describing it, but it would come in waves. That has stopped, thank god. I just can still feel whatever it is inside..This is the only way I can describe it. I have good days, and bad days. I keep expecting it to go away and not come back, but they all of a sudden the pins and needles, muscle aches, tiredness, fatigue, stomach gargling, and it's back, just not as bad as in the beginning. Very weird...I have been doing research instead of spending too much time and money at Dr's, joined the gym, etc..I'll keep this up till I figure this out, it's the responsible thing to do. I hear a lot of people on these sites say they feel like they are going crazy, or their families or Dr's think they are crazy..I feel for them, I really do....I hope everyone gets answers.
    Anonymous 42789 Replies
    • December 29, 2006
    • 01:10 AM
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  • ME is the same thing as chronic fatigue syndrome.
    Anonymous 42789 Replies
    • December 31, 2006
    • 07:24 PM
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  • To the 29 y/o female that posted second on this thread...Have you been checked for the b-12 deficiency yet? (i'm the original poster)I've been reading up on it and actually have quite a few more symptoms that point towards this disorder than I had even noticed. I've always had an elevated heart rate, around 100, even when I was in the army and ran every day. I have white spots on the outside of my forearms, and if I have any alchohol, I feel terrible the next day. I'm going back to my primary this week to get these tests done, because my symptoms are textbook for this. I'll let you know how it turns out. Have you found anything else yet?
    Anonymous 42789 Replies
    • January 2, 2007
    • 07:25 AM
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  • I am inclined to agree with the person that suggested a Chiropractor. Sometimes the simplest solutions are the right ones!!! Being that you are experiencing loss of balance, tingling and fatigue- but no intestinal, cardiac, fever, etc., it's a good possibility you have a pinched or impinged nerve. Tingling/numbness are cardinal signs of this and it usually quite simple to fix. Do you have a Chiropractor? I'm a massage therapist, however I worked in Chiropractors offices a few times in my past and a lot of people at some point in their life- get a pinched nerve. Are you stressed? Tight muscles can pull on tendons/ligaments and ocassionally a nerve can be caught up in this action. Talk with a Chiropractor or an Osteopath if you prefer, tell them your symptoms and see what happens from that point. If it is a pinched nerve, you may want to consider getting a massage once in a while to help keep your muscles from getting that tense again!:rolleyes: Fatigue may be from lack of oxygen that goes with it (from muscle contracture). Also just not feeling right and worrying or PAIN can ZAP YOUR ENERGY!!! I know when I'd start feeling parasthesia (tingling) that I had from an old auto accident, mine would go down my arm and up across my cheekbone- an adjustment was what did the trick. I would feel better afterwards AND HAVE MORE ENERGY!!! Good Luck:)
    1111healer 106 Replies
    • January 2, 2007
    • 08:01 AM
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  • Thanks for the suggestions everyone.. To healer 1111, my next stop actually is the chiropracter. I'm a respiratory therapist, and oftentimes they are dismissed as "not real medicine" but I have family that swears by them. I'm going to finish with the barrage of tests my primary has ordered, but I'm losing confidence in medicine completely(and I work in it). As soon as I figure it out I'll post the solution.
    Anonymous 42789 Replies
    • January 3, 2007
    • 05:00 AM
    • 0
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  • I have just been diagnosed with perniscious anemia. I have Fatigue, I get crabby and dizzy. I have restless leg, I had what i thought was thrush in my mouth for a year and a half. I had dry mouth and got 12 cavities in one year. My eyes are dry, I put tide in my fabric softener dispenser 4 times in two days and just couldn't get it right. I have been getting three B12 shots a week, and one iron injection per week, since my first transfusions. I'm starting to feel a bit of life in my body, but I think its going to be a long recovery. the restless leg (all over my body) and thrush cleared up 24 hours after my first blood transfusion. Other things are coming back slowly. I had weight loss surgery 5 years ago and my primary Dr refused to give me the B12 shots that my surgeon said I needed monthly. It took 4 years for my b12 to be depleted enough to cause the severe anemia, and another year for her to discover it. Your symptoms sound like mine! Have it checked.
    Anonymous 42789 Replies
    • February 2, 2007
    • 06:22 AM
    • 0
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  • Hi, I too, have pernicious anemia. But, before I say anymore...Please, register...with a nickname, first name, or whatever...I don't like chatting with someone with no name. Thank You. I have had pernicious anemia (PA) since early 2001. Here is a website you will find very interesting: www.pernicious-anaemia-society.org When there...click onto forums...there is 2 main forums: "MY STORY" and "GENERAL DISCUSSION"... you will see many people their like you. The members are from all over the world. Lots of very nice people their to chat to (including me) and we are all willing to help...if you want. So, please, register there...you will be glad that you did! TAKE CARE...SKEETER. :)
    skeeter 42 Replies
    • February 2, 2007
    • 08:13 PM
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  • Hi, I too, have pernicious anemia. But, before I say anymore...Please, register...with a nickname, first name, or whatever...I don't like chatting with someone with no name. Thank You. I have had pernicious anemia (PA) since early 2001. Here is a website you will find very interesting: www.pernicious-anaemia-society.org When there...click onto forums...there is 2 main forums: "MY STORY" and "GENERAL DISCUSSION"... you will see many people their like you. The members are from all over the world. Lots of very nice people their to chat to (including me) and we are all willing to help...if you want. So, please, register there...you will be glad that you did! TAKE CARE...SKEETER. :) I was wondering if you knew if a foot drop could be caused by PA. Also, can neuropathic pain be caused by PA? I started having lower back pain 4 months ago. It radiated down my right leg. I also have tingling down my leg. The dr have not been able to find a cause for my pain. I started having balance problems a few weeks ago, along with urinary retention, tingling to my mid back, tingling to my hands and feet and fatigue. I have had an MRI to rule out MS and it was normal. This week, I developed a foot drop. I had a vit B12 level drawn yesterday. My neuro said she didn't think it was PA, but that it was easy to rule out. My neuro is stumped about what it could be. I am going to see another neuro on Monday and I am having a nerve conduction test on Tuesday. I would appreciate any feedback you could give me.
    poppymom 3 Replies
    • February 3, 2007
    • 04:16 AM
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  • Hi Poppymom, Pernicious anemia...symptoms are: Weakness, fatigue, upset stomach, abnormal rapid heartbeat (tachycardia), jaundice, brain fog (difficult thinking), headaches...that last longer and longer until they are their 24/7, heightened sensitivity to hearing, smell, and taste; breathlessness. Neurological symptoms: Numbness and tingling of the arms and more commonly the legs, difficulty walking, loss of balance, memory loss, disorientation, dementia, extreme mood changes. Gastrointestinal symptoms: A sore tongue, Appetite loss, diarrhea and constipation. These are the most common symptoms of pernicious anemia. Your foot drop symptoms may/may not be a related symptom. Your lower back pain radiating down leg...could be from a ruptured disc or from sciatica pain. The urinary retention has many possible causes. Your doctor is right...that it is very easy to find out if you have pernicious anemia. If it is...and caught early...it is very treatable, but it will mean vitamin B-12 injections each month...for life, but without the B-12..left untreated, life threatning condtions can occur! GOOD LUCK...TAKE CARE...SKEETER. PS..If you get any more symptoms or test results and want to talk again, just let me know thru this forum. :)
    skeeter 42 Replies
    • February 3, 2007
    • 07:54 PM
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