Discussions By Condition: I cannot get a diagnosis.

Fatigue/Lightheadness/Heat Sensitive

Posted In: I cannot get a diagnosis. 13 Replies
  • Posted By: Banana3
  • November 10, 2007
  • 00:54 AM

Hi, I've experienced a variety of symptoms on an off for a while now, and I was wondering if anyone had any input on the possible cause. I'm a 24 yr old female, definitely not pregnant, I've been tested for diabetes and thyroid conditions in the past and everything has come back negative.

I was thinking it could be adrenal fatigue or something similiar, but I have no idea.

Some of the symptoms I've experienced.

-Major fatigue - I have a lot of trouble getting up in the morning, even if I got a good 8 hrs or so of sleep. I also am always tired throughout the day, at times almost feeling like I am going to fall asleep.

-Heat sensitivity- Especially when I am indoors these days, I almost always feel really warm. Everyone else will be comfortable in sweatshirts, and I'll be in a T-shirt and uncomfortably warm

-Lightheadness- I eat regular meals, and have small snacks throughout the day, but I often get that lightheaded feeling like I need to eat or need sugar or something even if I just ate an hour or so ago.

-Loss of appetite- not all the time, and though it may seem like its related to the previous symptom, I don't think it since sometimes I experience one w/o the other. It doesn't seem to be related to how much I eat, sometimes it feels like food is just sitting in the top of my stomach and I have no appetite at all.

-Muscle soreness/stiffness- primarily in my back and neck. Also my arms seem really tired lately, like it almost feels like its weight lifting when I have my hands up on the steering wheel.

-Also I have had pretty frequent headaches, constipation/diarrea, and I am almost always thirsty. And I am not sure if its related or not, but I find that I've had a lot of difficulty concentrating.

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13 Replies:

  • Are your pulse and B/P normal when you feel light-headed? Have you been checked by a cardiologist? The heaviness in your arms might be cardiac related. Also, did you have a fasting blood sugar drawn for diabetes?
    rad-skw 1605 Replies
    • November 10, 2007
    • 09:18 AM
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  • Banana 3 i have the same symtomss
    Anonymous 42789 Replies
    • January 26, 2008
    • 10:32 PM
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  • I am sorry you are having such awful symptoms.Have you seen a neurologist? Or perhaps a rheumatologist?Some things that come to mind include thyroid disease (Hashimoto's thyroiditis or encephalopathy or perhaps Grave's Disease although your symptoms pattern doesn't match these completely), celiac disease, lupus, MS, plus a whole host of other things.I hope you can find someone who takes your symptoms seriously and gets to the bottom of them. Whatever you do, don't let your doctors discount your symptoms or tell you they are from stress or psychosomatic. This can be very damaging if it is truly not the case!By the way, I had many of your same symptoms and was ultimately diagnosed with Hashimoto's Encephalopathy. I don't know if this will be your answer, but you may want to check out my other posts (watch out, I was really angry there for a while because it took me 8 years to get diagnosed) for more info on it. You can also Google it. Good Luck finding your answer.
    Anonymous 42789 Replies
    • January 27, 2008
    • 03:09 AM
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  • I would look into possible multiple sclerosis. It has many, varied symptoms. Your heat sensitivity is the one that caught my attention. Cold is usually more comfortable for people with MS.
    eukepepper 10 Replies
    • January 27, 2008
    • 04:14 AM
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  • Hi. I am new to this board but after readihg your thread I can't help but thing when I was in the hospital dying. No one could figure out was wrong with me. I stayed in my home hospital 9 days, then my husband and children took me University of Madison Hospital in WI. When I went they said if I wouldn' have come in any later I would have been dead in 2 hours. But anyway, a 3rd year medical student diagnosed me and it was Graves disease. My heart was out of wack, significant amount of weight loss, couldn't east, I threw up for 7 months, hated the heat , It was winter so I would go out and lay in the snow for long periods at a time. It was wonderful. But I was so tired. I also have sarcoidosis which also played a part in this. My calcium levels were so high that I had to have shots in the stomache to bring it down. I spend 30 days total in the hospital. You may just have a number of things. With my fatigue, I found that I have sleep apnea, and just found out I have narcolepsy also. Lightheadness could be just being so fatigued. But I have soooooo many medical problems I can't count any more. But just I would give you some suggestions and maybe it's all related or maybe it's not. Just keep going to doctors till they get sick of you, and then go some more. Good luck. I hope it goes all well for you,;)
    klschup 42 Replies
    • January 27, 2008
    • 07:12 AM
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  • possiblity CFS?? thou i'd think that was more the case if you mentioned postexertional tiredness so im not so sure but with the large range of issues you have and also things like feeling hot and thirst and IBS symptoms (all of which which can also be a symptom of CFS eg heat intollerance).. i wonder. CFS often affects all the body.. the headaches, fatigue, muscle pain and concentration problems (also normally sleeping difficulties but you dont mention that)..are the most common symptoms in CFS. Most CFSers (50%-90%)develop Irritable bowel syndrome (IBS).. and with constipation and diarrehea.. you could well IBS too as that is what IBS does. IBS can be controllable some with fibre and probotics and trying to avoid the things which trigger it. I suggest to check out the CFS (also called Chronic fatigue Immunity dysfuction syndrome) list of symptoms at http://wwcoco.com/cfids/bernesx.html and you will see why im suggesting CFIDS thou without the post exertional fatigue..and sleep issues.. im not all that sure that that may be your issue but your other symptoms fit. CFS can be an on and off illness at first (it was in my own case and that's common) but if things are overdone.. one can have a "crash" (big flare up of symptoms which develop into full blown CFS).
    taniaaust1 2267 Replies
    • January 27, 2008
    • 08:49 AM
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  • The symptoms you have sound very familiar. I have also not been able to get a diagnosis as yet. However, it may be worth getting tested for Lyme disease.Good Luck.
    Adam2953 28 Replies
    • January 27, 2008
    • 06:06 PM
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  • I guess I posted in here last night and for someone reason they wouldn't post it. I am sorry if I offended anyone here but I am sorry I had the same symptons. Yes, I have IBS, chronic fatigue syndrome but also Graves and sarcoidosis. I was in the hospital on my death bed (so the drs. say). All the conditions here were all in one supposedly. This could also be Fibromyalgia. I have had it since I was a child. I am now 49 and living with all this ***l besides other things. This is what my input is. You could have sarcoid as it was a freak accident by xraying me because of all the pain. These are all autoimmune diseases. So you can take it for what it's worth. Just some of the things that happened to me. And yes you could have anxiety. That's what my family physcician told me and actually it was in A-Fib. I've also had my heart checked out besides the A-Fib I have mytro valve prolaspe. Not all cases are the same but if your dr keeps putting you off FIND ONE THAT CARES and if that one doesn't work FIND ANOTHER ONE. I may or may not have gotten all this stuff if my family physcian didn't think I was bull----ing him. But we'll never know. It is what it is. Good luck!!!
    klschup 42 Replies
    • January 27, 2008
    • 06:50 PM
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  • "I've also had my heart checked out besides the A-Fib I have mytro valve prolaspe. " I dont know if you are aware of the following but it has been said (umm i think it was via the world famous CFS specialist Dr Cheney)..that 75% of people with CFS have or developed due to it, mitral valve prolaspe. So that problem goes hand in hand with the CFS one (probably why you have it). Also if one has one autoimmune problem.. one is more likely to have other autoimmune problems. klschup - you have Lyme, too! Join Lymenet and post that you need to find an LLMD and a decent lab. Fibromyalgia is a bogus dx - it means fibrous muscle pain - same thing with chronic fatigue "Syndrome". Almost all chronic Lymies got that dx a dozen or more times. CFS isnt a bogus dx.. it is an actual illness which unfortunately AT THIS STAGE (scienctists are working on it), there isnt any sciencific tests which COMPLETELY distinishes it from other illnesses, so hence one can only go via the history and the symptom complex and lack of finding another illness. Unfortunately due to that, people with other illnesses, which doctors have missed.. get often wrongly told they have CFS but CFS IS a true illness in it's own right. There will come a time when there will be an actual scienctific test for it... as it is there are scienctific tests (SPECT scans, hypercoagulability, qEEG brain topography, MRI brain scans etc etc) which can also help point to that diagnoses as there ARE things which are commonly to be found in CFS..but they just aint conclusive and can occur in other illnesses too.. If you have Lyme.. one shouldnt be diagnosed with CFS until there are specific scientific tests for CFS.. as Lyme patients can get very very similiar symptoms. Just cause lymes people get so often mistaken for CFS people.. it dont mean that CFS dont exist.
    taniaaust1 2267 Replies
    • January 28, 2008
    • 04:46 AM
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  • This is to Blaze: I have been tested for Lymes a number of times. I do not have it. People who have flare ups of sarcoidosis have really high levels of calcium. I know. I had to get a shot in my stomach everyday until they could get the calcium down. Let me tell you, they were very painful, especially when you are very sick. I don't believe that CFS is a bogus diaganosis. And it isn't the same as fibromyalgia. They are very closely related but they are 2 different diseases. Also, they are autommune diseases. I would give anything not to have the autoimmune diseases that I have. Everyday can be a living ***l. I don't doubt that you have lymes disease but not everyone has it. There are so many diseases a person can't even keep up on.:rolleyes:---------klschup
    klschup 42 Replies
    • January 29, 2008
    • 10:39 PM
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  • Banana3? Where are you?
    rad-skw 1605 Replies
    • January 30, 2008
    • 00:22 PM
    • 0
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  • klschup, Check these out, Sarc IS TIED to TICK BORN DISEASES, there are more than "just Lyme". Babseia, bartonella, just to name a few.They also aren't regularly tested for....{I was first dx'd with fibro, then sarc and finally a tick illness.} Have you ever noticed feeling alot better after taking abx for say a sinus infection?? Or broncitis? If yes, thats a give away right there, theres an infection some place else.Your symptoms may have gotten worse if you were treated with steriods for the sarc. Hence, the fibro , etc.Do some searches, , Mycroplasma and/or bacteria , untreated is behind all autoimmune disordersBorrelia burgdorferi may be the causal agent of sarcoidosis Hua B, Li QD, Wang FM. Naval General Hospital of PLA, Beijing. Serum antibody to Borrelia burgdorferi was measured in 33 patients with sarcoidosis who were confirmed clinically and pathologically. The results showed that 81.8% of the patients were positive. In addition, a strain of Borrelia burgdorferi was isolated from a patient's blood. Fourteen patients received ceftriaxone 2 g per day and/or penicillin 12 million per day and a patient received lincomycin 1.2 g per day. The antibody titer of the patients turned to normal level, their SACE turned to normal range, and chest X-ray findings were markedly improved in 3 cases after the treatment. According to the facts mentioned above, we consider that Borrelia burgdorferi may be the causal agent of sarcoidosis and sarcoidosis might be a special type of Lyme disease. PMID: 1582344 ~~~~ "Biopsies of lymph nodes reveal pathology often indistinguishable from sarcoidosis" this is a quote about Bartonellla - can be read here under "heart" - http://www.lymeinfo.net/bartonella.html ~~~Check out lymenet.org, you'll be suprised how many got dx'd with fibro or Cfs, find out they really have an undx'd tick infection. Take care~~Jerseylymie
    Anonymous 42789 Replies
    • January 30, 2008
    • 00:24 PM
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  • To Tanniaaust1: I didn't know that mitral valve prolaspe went with cfs or A-Fib. That is so funny beause I have both of them for along time. Probabaly the mitral valve prolaspe was diagnosed about the same time of the cfs.:o
    klschup 42 Replies
    • January 30, 2008
    • 09:35 PM
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