Discussions By Condition: I cannot get a diagnosis.

Fatigue, indigestion and slow healing wounds

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Anonymous
  • May 27, 2009
  • 00:57 AM

So I've been undiagnosed, or at least not properly diagnosed, for 12 years now. My main symptom is intermittent fatigue which is brought on by either prolonged strenuous exercise (lifting weights, etc) or by diet (I have, starting 12 years ago, developed an intolerance to greasy foods). I have a longer history which I'm pasting below for those who like reading. Overall my issues seem, to me, to almost certainly be hormone related. I have many symptoms of low Human Growth Hormone, low epinephrine, etc.

Longer version:
History and symptoms
During 1997 while in college (age 21) I spent a year away from aerobic activity under doctor’s orders to clear up shin splints. During this time I had kept active by lifting weights. At the beginning of 1998 I began once again playing pickup basketball games. It was during this time that I noticed I was becoming fatigued quicker than normal, but thought it to be due to my lack of activity over the past year. However, as I continued playing over the following weeks, the fatigue began to worsen. I also noticed that my hands were occasionally shaky, and slightly trembling. This trembling got bad enough that when holding with others they could feel my hand tremors as well. At this time food seemed to, for awhile, give me added energy when bouts of fatigue struck me. As a few more months passed I finally gave up trying to play basketball. I was weak, fatigued and unable to play effectively just 15 minutes after beginning. At this point, ironically enough, lifting weights was also impossible. Along with my fatigue came an increase in gas and indigestion which I thought could be due to my lifelong poor chewing habits.
I returned home for the summer with lots of indigestion and frustrated. Shortly after returning home I had a night of extreme weakness, this was followed in that same evening by some nausea and vomiting. That same night I passed out momentarily when calling for assistance. The next day I felt “normal” again. One week later the same thing happened overnight, without the passing out, and I felt “normal” again the next day. Since then this same thing has occurred dozens of times. Most times I can link it to eating dairy and/or greasy foods shortly prior, but sometimes I can’t.
I then visited our family doctor who seemed fairly confused and didn’t agree with my own self-diagnosis of hyperthyroidism. He reluctantly agreed to do a TSH blood test for me. The test results came back ‘normal’.
I worked the rest of the summer installing in ground pools, with fatigue and tremendous gas. Once the summer ended I returned to school. My symptoms continued to worsen. I was slowly learning to predict the things that would set off my fatigue. It seemed to be aggravated primarily by physical activity, but also somewhat by stress and excitement.
Over the next few months I visited several doctors. First I visited the family allergist. He again ran TSH tests on me and found nothing. He had me on a strict diet with no sugar, yeast, etc., and had me taking Nystatin to eliminate candida growth which he saw as slightly elevated. When that yielded nothing he recommended I see a neurologist and a gastrointestinal doctor.
This gastrointestinal doctor diagnosed me with Irritable Bowel Syndrome and said he thought it was also contributing to my fatigue. By improving my eating habits (i.e. chewing better, eating slower, etc.) my gas was reduced (not eliminated) and yet the fatigue persisted.
I then visited an endocrinologist with the knowledge that thyroid problems are often difficult to diagnose. This doctor ran a battery of tests and then actually insisted that my problems all stemmed from stress. Knowing that I’m not a stressful person and that nothing had changed this information was not helpful (no solution was provided).
Next I turned to the neurologist. This doctor was very helpful and said I should see another endocrinologist due to my symptoms.
I then visited a second endocrinologist who ran different tests and said “I don’t know what’s wrong” and recommended I gain 10 lbs. (I am 6 feet tall and weigh 140 pounds, the same height and weight as prior to my problems).
A third endocrinologist ran all the tests that she and her associate could think of. These turned up nothing.
I then visited a naturopath. This doctor had me try some adrenal herbs, with no luck. She referred me on to holistic doctor with much more eastern influence.
This doctor at first had thought I had an ‘inflammation’ of sorts from my past wisdom teeth removal and sent me to a specialized dentist for an oral operation and lots of B vitamins. When that didn’t help he then said the next layer was that I was iodine deficient and had me begin taking kelp pills. I took kelp pills as well as garlicin, silver, oil of oregano, capryl, acidophilus, selenium and psyllium husk for my possible candida (not by doctors orders). I was also on a strict diet with no sugar, yeast, vinegar, etc (again self-diagnosed). None of that helped. Since then the holistic doctor has had me undergo treatment for an adrenal infection, nervous system issues & a kidney infection. No change.
Since these doctor visits I have learned that by managing my diet, and not participating in prolonged physical work, my symptoms are greatly reduced. However, the symptoms still occasionally flare up which is why I am writing this now.
With my own personal research, I believe the problem to be hormone related. Many of my symptoms match low HGH levels (fatigue, slow healing wounds)…blood tests have confirmed low HGH although I know these tests are notoriously spotty. The best way to describe how the fatigue feels is how a person feels after giving a big speech or presentation (drained no energy or adrenaline) My symptoms are as follows:
Major symptoms:
• Fatigue during exercise or stress
• Trembling hands during fatigue and sometimes when I feel “normal” – This feels like when you wake up and have difficulty making a fist.
• Stressful situations (like near miss car accidents) lead to very shaky hands and weakness… my system seems to have low amounts of epinephrine. The same symptoms are often brought on my hard exercise. If I try to “push through” and keep working out, lifting weights, the fatigue gets progressively worse with each workout session.
• Cuts are slow to heal.
• The digestion issues which started at the same time as my other symptoms have been narrowed to the fact that I don’t tolerate dairy and greasy meats very well at all anymore. They seem to lead to indigestion, loose bowels and, ultimately seem to bring on fatigue.

Symptoms which may or may not be related to my main symptoms:

• I still occasionally (a couple times a year) have 1 night where I get very nauseous and throw up. That is usually preceded by a very distinct taste in my stomach (noticeable with the gas via belching).
• I have a persistent phlegm in the back of my throat
• Poor circulation (my hands, ears, feet get have always gotten cold quickly, when nobody else is cold and my blood pressure is often difficult to obtain)
• I have recently experienced almost total numbness in a single finger, or toe, in moderately cold conditions.
If I continue working out and pushing it eventually, after an hour or so, I feel “normal”. My fatigue at that point changes from shaky and weak to just tired, like anyone else who has worked out hard for an hour or more.

In summary: The problems I experience seem to stem from one main ‘symptom’ or problem. That problem is that by body either quickly runs out of, or produces too little, adrenaline. Situations that call for quick energy, such as sports, near fender benders, stress all cause my body to quickly react as if I have no adrenaline left. Someone can jump out and scare me and my body reacts as if I was just mugged. Shaky hands, weak muscles, no energy comes quickly and after a brief (i.e. 30-60 minutes) rest, I feel ‘normal’ again. I did not used to be this way. I am not suddenly a more stressful person. Something is wrong. Also, my moms’ side of the family has a history of fatigue and Candida problems and my dad’s side has a history of thyroid problems. My dad also has fibromyalgia.
Also of note, my daughter (3 years old) has a similar intolerance to dairy. So, that may or may not be unrelated. The one thing she and I have in common is an unhealthy amount of antibiotics at some point. I took them (as a fool) in high school for my acne. My daughter had a series of infections (ear infection, then urinary tract infection from diarrhea from the antibiotics, then another ear infection).

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7 Replies:

  • Wow, that's crazy. I would urge you to entertain the possibility that no singular cause exists, but that your body may have been originally compromised, yet overtime its systems became prone to dysfunction. I mean, not only do you have the perceived adrenaline problem, but you have severe reactivity to more than one type of food. Definitely keep working on your diet. Can you post a general list of foods you've limited yourself to? Can you list long term and current medications? The starting time for your current symptoms is pretty fuzzy - was it 1997, 1998, or some time after (or before)? How often to you lift weights and have you taken any long breaks from lifting in recent years? Are you still dealing with Candida - and how long were you on Nystatin (note the side effects)?
    Anonymous 42789 Replies Flag this Response
  • Thanks for the reply... I am now thinking that my Gilbert's Syndrome, which doctors say has no symptoms, is the problem. There are dozens of websites devoted to this liver related illness and most have my symptoms. I'm going to keep going down this avenue as my slow healing wounds is the only symptom which doesn't match. Thanks again!
    Anonymous 42789 Replies Flag this Response
  • You may also want to ask your doctor about your pituitary function. A lot of the issues you describe seem hormone related, and the possibility of a small pituitary tumor could be altering your hormone functions
    Anonymous 42789 Replies
    • November 3, 2009
    • 11:44 PM
    • 0
    Flag this Response
  • Man, I feel the same exact way! I have never passed out, but came close. I found out that via a 5 hour fasting blood glucose test that I have hypoglycemia (low blood sugar). However; I have watched my diet for about a year with minimal gains to how I feel. My legs feel weak until I have walked a substantial distance. After lifting or running for 20-30 minutes I feel most normal. I shake with light weight, but can still bench press 350 lbs. I feel like my body is over-reacting to small stressful situations. My doctor originally tried to put me on anxiety meds, but that did nothing since obviously it isn't a chemical imbalance. I did live a very stressful life due to partying too much, not eating right, and working out waaaaay too hard. I attribute these factors to why I feel so bad- as your body reacts to any type of stress, be it working out or loosing your job, the same way. They way I see it, is that it took years of abusing my body to get to this point, it will take a long time to get back to the way it was. Hope this info helps you!
    Anonymous 42789 Replies Flag this Response
  • • Poor circulation (my hands, ears, feet get have always gotten cold quickly, when nobody else is cold and my blood pressure is often difficult to obtain)• I have recently experienced almost total numbness in a single finger, or toe, in moderately cold conditions. Do they also discolour when cold? Raynauds syndrome. Raynauds is just one symptom of quite a few different illnesses.
    taniaaust1 2267 Replies Flag this Response
  • I have a lot of these same symptoms. Hand Tremors and shakiness, gastrointestinal problems, killer acid reflux and fatique and some occassional vision problems. About two years ago, I was diagnosed with Pernicious Anemia. (very low B-12) I now have to get a B-12 shot once a month. About 6 months ago, I was diagnosed with low Vitamin D. I am taking Rx Strength Vitamin D. I also have reoccurring ulcers on my tongue. My endocrinologist told me that was low Vitamin C. I find it hard to believe that a woman in her early 40's can be deficient in so many vitamins. I was told I have poor absorption. I believe there has to be another explanation. I asked my endocrinologist to do the prelininary bloodwork for Lupus. Pernicious Anemia is an autoimmune disease which is often linked to other autoimmune diseases like lupus. I am going to have the Lupus test done in about two weeks when I go back to my Vitamin D check. If I were you, I would go back to my doctor and have him check your B-12, your Vitamin D, and check for Lupus. I wish you the best of luck. I have been searching for an answer for two years now and I think I am getting close. Longer version:History and symptoms During 1997 while in college (age 21) I spent a year away from aerobic activity under doctor’s orders to clear up shin splints. During this time I had kept active by lifting weights. At the beginning of 1998 I began once again playing pickup basketball games. It was during this time that I noticed I was becoming fatigued quicker than normal, but thought it to be due to my lack of activity over the past year. However, as I continued playing over the following weeks, the fatigue began to worsen. I also noticed that my hands were occasionally shaky, and slightly trembling. This trembling got bad enough that when holding with others they could feel my hand tremors as well. At this time food seemed to, for awhile, give me added energy when bouts of fatigue struck me. As a few more months passed I finally gave up trying to play basketball. I was weak, fatigued and unable to play effectively just 15 minutes after beginning. At this point, ironically enough, lifting weights was also impossible. Along with my fatigue came an increase in gas and indigestion which I thought could be due to my lifelong poor chewing habits. I returned home for the summer with lots of indigestion and frustrated. Shortly after returning home I had a night of extreme weakness, this was followed in that same evening by some nausea and vomiting. That same night I passed out momentarily when calling for assistance. The next day I felt “normal” again. One week later the same thing happened overnight, without the passing out, and I felt “normal” again the next day. Since then this same thing has occurred dozens of times. Most times I can link it to eating dairy and/or greasy foods shortly prior, but sometimes I can’t. I then visited our family doctor who seemed fairly confused and didn’t agree with my own self-diagnosis of hyperthyroidism. He reluctantly agreed to do a TSH blood test for me. The test results came back ‘normal’. I worked the rest of the summer installing in ground pools, with fatigue and tremendous gas. Once the summer ended I returned to school. My symptoms continued to worsen. I was slowly learning to predict the things that would set off my fatigue. It seemed to be aggravated primarily by physical activity, but also somewhat by stress and excitement. Over the next few months I visited several doctors. First I visited the family allergist. He again ran TSH tests on me and found nothing. He had me on a strict diet with no sugar, yeast, etc., and had me taking Nystatin to eliminate candida growth which he saw as slightly elevated. When that yielded nothing he recommended I see a neurologist and a gastrointestinal doctor. This gastrointestinal doctor diagnosed me with Irritable Bowel Syndrome and said he thought it was also contributing to my fatigue. By improving my eating habits (i.e. chewing better, eating slower, etc.) my gas was reduced (not eliminated) and yet the fatigue persisted. I then visited an endocrinologist with the knowledge that thyroid problems are often difficult to diagnose. This doctor ran a battery of tests and then actually insisted that my problems all stemmed from stress. Knowing that I’m not a stressful person and that nothing had changed this information was not helpful (no solution was provided). Next I turned to the neurologist. This doctor was very helpful and said I should see another endocrinologist due to my symptoms. I then visited a second endocrinologist who ran different tests and said “I don’t know what’s wrong” and recommended I gain 10 lbs. (I am 6 feet tall and weigh 140 pounds, the same height and weight as prior to my problems). A third endocrinologist ran all the tests that she and her associate could think of. These turned up nothing. I then visited a naturopath. This doctor had me try some adrenal herbs, with no luck. She referred me on to holistic doctor with much more eastern influence. This doctor at first had thought I had an ‘inflammation’ of sorts from my past wisdom teeth removal and sent me to a specialized dentist for an oral operation and lots of B vitamins. When that didn’t help he then said the next layer was that I was iodine deficient and had me begin taking kelp pills. I took kelp pills as well as garlicin, silver, oil of oregano, capryl, acidophilus, selenium and psyllium husk for my possible candida (not by doctors orders). I was also on a strict diet with no sugar, yeast, vinegar, etc (again self-diagnosed). None of that helped. Since then the holistic doctor has had me undergo treatment for an adrenal infection, nervous system issues & a kidney infection. No change. Since these doctor visits I have learned that by managing my diet, and not participating in prolonged physical work, my symptoms are greatly reduced. However, the symptoms still occasionally flare up which is why I am writing this now. With my own personal research, I believe the problem to be hormone related. Many of my symptoms match low HGH levels (fatigue, slow healing wounds)…blood tests have confirmed low HGH although I know these tests are notoriously spotty. The best way to describe how the fatigue feels is how a person feels after giving a big speech or presentation (drained no energy or adrenaline) My symptoms are as follows:Major symptoms: • Fatigue during exercise or stress• Trembling hands during fatigue and sometimes when I feel “normal” – This feels like when you wake up and have difficulty making a fist.• Stressful situations (like near miss car accidents) lead to very shaky hands and weakness… my system seems to have low amounts of epinephrine. The same symptoms are often brought on my hard exercise. If I try to “push through” and keep working out, lifting weights, the fatigue gets progressively worse with each workout session.• Cuts are slow to heal.• The digestion issues which started at the same time as my other symptoms have been narrowed to the fact that I don’t tolerate dairy and greasy meats very well at all anymore. They seem to lead to indigestion, loose bowels and, ultimately seem to bring on fatigue. Symptoms which may or may not be related to my main symptoms:• I still occasionally (a couple times a year) have 1 night where I get very nauseous and throw up. That is usually preceded by a very distinct taste in my stomach (noticeable with the gas via belching).• I have a persistent phlegm in the back of my throat• Poor circulation (my hands, ears, feet get have always gotten cold quickly, when nobody else is cold and my blood pressure is often difficult to obtain)• I have recently experienced almost total numbness in a single finger, or toe, in moderately cold conditions.If I continue working out and pushing it eventually, after an hour or so, I feel “normal”. My fatigue at that point changes from shaky and weak to just tired, like anyone else who has worked out hard for an hour or more. In summary: The problems I experience seem to stem from one main ‘symptom’ or problem. That problem is that by body either quickly runs out of, or produces too little, adrenaline. Situations that call for quick energy, such as sports, near fender benders, stress all cause my body to quickly react as if I have no adrenaline left. Someone can jump out and scare me and my body reacts as if I was just mugged. Shaky hands, weak muscles, no energy comes quickly and after a brief (i.e. 30-60 minutes) rest, I feel ‘normal’ again. I did not used to be this way. I am not suddenly a more stressful person. Something is wrong. Also, my moms’ side of the family has a history of fatigue and Candida problems and my dad’s side has a history of thyroid problems. My dad also has fibromyalgia.Also of note, my daughter (3 years old) has a similar intolerance to dairy. So, that may or may not be unrelated. The one thing she and I have in common is an unhealthy amount of antibiotics at some point. I took them (as a fool) in high school for my acne. My daughter had a series of infections (ear infection, then urinary tract infection from diarrhea from the antibiotics, then another ear infection).
    Anonymous 42789 Replies
    • August 19, 2010
    • 01:48 AM
    • 0
    Flag this Response
  • Hi guys. That can be some parasitic/bacterial/viral infection, especially because of alcohol/antibiotics abuse and prolonged stress to the organism. Try detox and anti parasitic programmes, it helped me tremendously. "chill-out" attitude is also required. I got very good results but it takes time. If you were stressed for many years, drinking and using antibiotics it may take same amount of time or even longer to recover. And there is cure for literally everything on this planet - different herbs, just do some research.
    Anonymous 42789 Replies
    • September 5, 2010
    • 06:51 PM
    • 0
    Flag this Response
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